Can you tell me where your pain is exactly?? Is it strictly in your groin? Does it radiate anywhere?? Exactly WHERE is it? (You don't have to be shy...lol) Does it include your genitals? Your buttocks??
There is a few people on here with LPHS, which stands for Loin Pain Hematruia Syndrome, but I don't know much about it, sorry. I'm sure one of them will catch this.
I wanted to tell you something that may help for the pain, however. They are called B&O suppositories (belladonna&opium). They are a C-II narcotic, and obviously they are placed in the rectum. They provide local relief (and some systemic) of pain. As a nurse, I used them all the time on those men who had surgery on their prostates, etc. I never heard any complaints about them. They seemed to relieve the pain very well. I actually used them myself for my Interstitial Cystitis. Ask your urologist for them (or any of your docs).
I feel terrible that no one has been able to diagnose you. Where do you live??? Are you near any large towns with teaching hospitals or well-known research hospitals?? Those are the places to be for the latest and greatest medical care, and those docs are USUALLY top notch.
DX: DDD, DJD, HNP L2-S1, OA, OP, intractable pain, severe asthma, COPD, migraines, endometriosis, uterine ca, PCOS, metabolic syndrome, chronic epstien-barr virus, fibromyalgia, depression, anxiety, PTSD, avoidant personality disorder, social phobia, SLE, connective tissue disorder
MEDS: MS Contin 100mg q 6; MSIR 30mg q 6 PRN; Celebrex 200mg QD; Actiq 600mcg q 6 PRN; Lamactil 25mg BID; Klonopin 0.5mg BID, Cymbalta 60mg QD;
Ventolin 2 puffs q 6; Advair 500/50 one puff q 12, Multivitamin