Hello and I agree with Chutz re asking for larger doses. You are on a lot of narcotic now. Have you ever been to a pain clinic to seek options versus so much drug?
The more you take of the meds the more your tolerance builds and you can only go so high with the oral meds. Also you seem familiar with the side effects of the meds. It is good to know your meds.
I am only giving you fyi here as your the one who knows your pain best.
I hope you and your Physician can work this out to get your pain under control
I have had chronic pain due to internal bleeding leaving me w/adhesions along my stomach & intestinal lining.
I am in constant chronic pain, esp, when i eat or sit for long periods of time.
I dont think anyone should be in pain. My pain doc, started me at 250mg of Morphine,& Lyrica 75mg/day which was too much, so he lowerd the dosage.
My doc, worked from the highest dose for my height wieght & amount of pain according to the pain chart, which was for me 9.9 all the time.
After 5yrs of this, I decided to deal w/my pain in other ways, i was of no use to anyone in the cond, i was in while on the pain meds, aside from the actual pain itself.
I now am on Tramadol, & T#3's, i can function,think, & do things much more clearly than being on all those narc,drugs.
I have my bad days, very bad days, & thats when i phone my doc, & say im having a bad pain day, so i will be taking 6-8 T#3's today or next few days, then go back to my 4/day.
Doc has no problem, as long as i keep him updated & am truly honest w/him & myself about how much pain i am really in & how much is this med, going to make the just the pain better or my ability to function better as well.
Pain is the bodies way of letting yu know something is wrong. Once yu know however, then its up to you to do the right thing & really think about how is pain right now going to effect me mentally,& physically down the road of life.
Do i want to scarf down narcs, & die of liver failure at an earlly age, or do i want to try & walk,phone my best friend or lay down or maybe watch a comedy, when im in pain the last thing i want to see or hear is anything about it.
I want the exact opposite, try it, yu may find yourself in less pain than would ever have expected.
Welcome to the Chronic Pain Forum. I hope it will be useful to you.
I am disabled, and have chronic pain from a number of different health problems. I know the ins and outs of dealing with doctors regarding the treatment of chronic pain, and you are talking a little too big for your britches. Theoretically, patients with chronic pain are entitled to adequate treatment/medication to give them a decent quality of life. Unfortunately, because the medical community is under so much pressure to limit the prescribing of narcotic/opiate medications, many people with chronic pain are not being treated sufficiently to have a decent quality of life. You are darn lucky that you have a doctor that doesn't seem to fear prescribing adequate medication. Do your research, but be very careful discussing dosages with your doctor. A patient that voices extensive knowledge of pain medications can send a red flag up to the doctor that their need for pain medication may not be strictly medicinal. You may think you are OK on not being seen as a "drug seeker", but that label can pop up at any time, and it can haunt you for a long time. Once a member of the medical community questions your motives, the horse is out of the barn, and there is nothing you can do about it. It's not fair, but it's true.
In most long term health problems, the standard treatment is to start with a low dose of medication and work up. It may take a while to reach an appropriate dosage, you can't jump up high and work your way down, because side effects are much more likely to occur, and starting with a high dosage of a narcotic/opiate medication, you may not be functioning enough to realize there is a problem. I know how foggy I get when taking a strong dose of pain medication. I'm a happy camper, but I can't function worth a darn, and certainly wouldn't complain at all about being so fuzzy. It wouldn't occur to me in that state. However, you can work your way up, over time, to a ceiling dosage of a specific medication, to the point where you no longer get adequate relief. Thus, you must escalate to a stronger medication.
A couple of statements you made in different posts just don't make any sense. You stated that you didn't want to spend 1 to 5 yrs to find a correct dosage. Where the heck did you come up with that time frame? I think you just pulled that number out of the sky, as I've never seen any time frame in any documentation to that effect. Likewise, you said that you never start any medication without researching it for 1 to 4 weeks. That statement makes no sense at all to me. First, ask your doctor about what he is prescribing. Second, if you have any additional questions, ask your pharmacist, or read the information provided when you fill the prescription. Last but not least, just look it up on a medical search engine like WebMD. This shouldn't take you more than about a day. If your doctor wants you to take a medication, double-check the sources and start taking the medication. There is no reason to procrastinate up to a month.
The last thing that has me puzzled is your negative attitude toward tylenol. What's up with that? Granted, taking a high amount over a long period of time can be bad for your liver, but the amount you were quoting being prescribed were minimal. What's the problem with the tylenol?
Your posts are really strongly worded, but maybe you should review them a little more closely before submitting them. Also, using capital letters and punctuation correctly really helps other posters understand what you are trying to say, and allow them to respond to your posts more accurately. Just an observation.
Hope things go well for you. Let us know how you are doing.
I hope u dont feel that the folks on here are against yu. ive read through the e mails, ive been where yu are at now.
If at the very least please know we all here want to hear or see yu write that pain is under control.
I agree that yu shouldnt do all that research about meds,ive found that the pharmacist not the docs, know more about the meds, than anyone.
For extra info. go online & look it up. I wouldnt give much credit to what the government has or FDA has to say about Tylenol, its been around for well a long time, & only now their finding what they think are problems.
Im near 40ish & have been on tylenol since high school when my migraines first began. When i tried to get any other meds of course i was a suspected "drug seeker", & i was because i was in horrible pain.
Then i met a wonderful doc, in Chicago who trusts me because i see him every 3mo. i phone him if my pain is worse or even if its been better.
I keep in contact & dont push the issue i keep him informed on how im feeling & how or if my life has improved on the meds, he has prescribed.
Funny thing is he is always concernd at what my pharmacist thinks about what he is prescribing, i know why, though i have made many friends at my pharmacy & they all about me & my med issues ect.
I guess the point is keep your doc,informed they work for yu, but if they dont know or understand your needs or what yu do w/your life to help them enable yu a better quality of life then i would find another doc.
I wish yu the very best of luck & hope yu keep us informed on how your doing?