Short, you have a lot of symptoms that I have and your history sounds like mine. I was not diagnosed for 20 years so I hope you get diagnosed sooner than that! I have an auto-immune disease so I agree with Gramps, see if you can get to a rheumatologist. There are so many different auto-immune diseases out there. Don't let them write you off. If I was diagnosed earlier, I would have had a chance to go into remission. My docs think I am too far along for that now. You are not a hypochondriac, you know your body better than anyone, find a doc who will LISTEN to what you are saying and DO NOT let them pat you on the head and shoo you out the door.
Hey there Shortnsweet
Sorry to hear what you've been going through from such a young age. I would agree with the others, a rheumotologist seems to be the way to go. I would also suggest you look at they fibromyalgia forum, nearly all of your symptoms describe fibro, but they can also describe any other number of conditions that need to be diagnosed properly. Do a search for the list fibro symptoms, I'm sure you'll find it interesting.
Short, sorry it took me so long to get back. The symptoms we have in common are the bone pain, problems at that time of the month, IBS and also the skin issues you mentioned.
There are two reasons it took me so lomg to get diagnosed. The first was when they did a biopsy early on, my disese showed up, but they never told me. I had two things wrong at the time and they only told us about the one. So off I go with this disease and suffer for 15 years. I was always sick with all these strange symptoms and I would go to the doctors and they would pat me on the head and send me on my way. Or, when I had something go really wrong they couldn't figure out why. It was so frustrating. For awhile I thought I must be crazy. I knew something wasn't right but they kept telling me there was nothing wrong. So now I am stage 3 of a potentially fatal disease and no chance of going into remission, where if they would have caught and treated it early, my chances woukd have been better.
DO NOT let them tell you there is nothing there. You know your body better than anyone and keep looking for an answer.
Don't even worry about asking questions, that's why we are here and I wish I could help you more.
Short, thanks for the prayers! I also have thyroid issues and I was so hoping to see if some of symptoms were related to that and would get better once I started thyroid meds. No such luck, I guess mine wasn't thyroid related. Hopefully they will help you feel better.
We are so similiar ! I used to be a fitness professional and I SO miss being able to do the things I used to do. Basically all I can do now is water exercises and very moderate ones at that.
I can't tell you how many times I have said the exact same things to my husband. He's getting pretty good at knowing when to touch me and when I'm going through what we call a "woozy" where I am sweating and hot and I can't stand to be touched.
I am so sorry you are going through all this and vent away, that's why we"re here!
This is my first post here...some of what you say has been in my history. I had been to the rheumy and gastro docs. In fact, the gastro almost killed me. She thought nothing of me having a high blood serum ammonia reading. Nothing ever found. Finally through research on the web and comparing my symptoms...I found a rare metabolic disorder that seemed to fit. But yet it was suppose to be found in children. It also can be caused later, usually in women because of trauma or injury. The problem was I had been sick since a child and wondered. Like you, I have lost up to 7-8 babies.
I met with the metabolic specialist. I took my complete medical history as I could remember and had had mom fill in since birth. I had also sent the last 5 years of medical records from the five doctors that were trying to treat me.
I tested negative for what he thought I had...but we knew I could have false negatives. Finally had liver biopsy -- and there it was. I have Urea Cycle Disorder. For years doctors had told me it was fibromyalgia, chronic fatigue, etc. Those were all symptoms of a deeper problem. Am now on special medication.