it sounds cliche... but i feel like i am dying

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Evangeline
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/23/2007 9:49 PM (GMT -7)   
i always hated that expression... but at 36, i am ravaged daily by pain caused by a broken pelvis that healed improperly after the birth of my son, DDD, fibromyalgia, scoliosis and neuropathy.  I am VERY BLESSED in my life and I TRULY enjoy every day to the fullest, but I usually somehow manage, and it is getting incresingly more difficult, to keep a smile on my face and truck on through every day.  This is my first time in a chat room ever, so any advice anyone has would be of GREAT HELP!!! thanks

aggscott
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 10/24/2007 4:00 AM (GMT -7)   
Hi Evangeline-nice to meet you~I'm Aggie, I'm 34
I didn't even know that you could break your pelvis from birth, I never even thought about that..wow- now it's bad enough to have the pain from birth it's self! I have three so I remember that pain. Did it happen while you were having him?

I have Fibro and I just started to deal with Lupus, which has so many different symptoms that just trying to figure it all out would make you sick!

Question-have you found a good doctor yet? Someone that will help you be comfortable? Having a good doctor that listens and understands can help so much..What type of meds did they try? Sometimes it takes a while to find that right med or meds to take that help. I wish you lots of luck and pain free days...

Aggie

TTRN
Regular Member


Date Joined Sep 2007
Total Posts : 146
   Posted 10/24/2007 5:15 AM (GMT -7)   
Evangeline, I'm so sorry for your pain. I know the feeling but I am 50 and at least dont have small children to deal with just big ones. It almost makes you desperate. However finding the right medications is key. I have tried many,my issue is DDD, and so much scar tissue around the nerves from 2 previous surgeries, but keep your head up and find a good Dr. Good luck I prya you will find the strength daily that you need to get by.  Toni

Shelter
Regular Member


Date Joined Feb 2007
Total Posts : 155
   Posted 10/24/2007 5:53 AM (GMT -7)   
First & Foremost  tongue Welcome to Forums Evangeline
and  there are many folks here
that  are great to talk to
 
Where I live we actually have an area called the Evangeline Trail
...
Chronic Pain...  is  not an easy go
ravedged by Pain...  ( not good)
I am so sorry to hear,  that espically as young as you are
not that us Old' Mom's  are supposed to ahe painbut I do know   caue   much started for me after teh birth of my 5 th child
my pelvic bone split...
I heard it
I also have DDD, and other stuff going on
 
sometimes life feels like an upwad battle
 
A Freind at work said
"that mountain you are climbing, is a grain of sand."
In someones eyes...
 
Do you have a Pain Doc ?
My kids are all teens, and   its   jsut like they were still 7
Grrrrr
Wishing they'd get compassionate & start automatically  helping with all I can no longer do.
Do you have help at home?
 
((hugs)) from another MOM
 
 
 
 
 
 
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31
 
~
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal ProblesmFibro Myalgia ,Kidney Stones Esophegial Spasms,( L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease , Bulging Disc, anterolisthesis L4 L5 , caused by osteoarthristis ,  slipped Disc,  bone spurs, causing pinching or pressure  on spinal chord...), ~
 
 
Meds:  Cyclobenziprine, Amitripline, Celebrex , and Robaxacet as needed ,  vitamins  Bcomplex, Calcium&Magnisium,  extra  Vitamin D ,  Rhodiola RX (GNC brand) ,Garlic,  Acidophilous, 
 

 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/24/2007 6:39 AM (GMT -7)   
Hi and welcome to our family! You're doing fantastic for your first time on a forum. If your pain is so bad it's affecting your life then you need to talk to your doc about it. There are many good medications to help relieve some of the pain. Maybe not all but at least they can lower it to a tolerable level.

Start a pain journal. Each day, several times during the day, rate your pain on a scale from 1-10. Note what, if anything, you took, if it helped, what you were doing at the time...etc. Then show it to your doc every time you go in. This way he'll get a clear picture of what your life with pain is like.

Keep us posted.
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 274
   Posted 10/24/2007 1:53 PM (GMT -7)   

Evangaline, hi I'm 37 and have been in pain since I was 19, so I can relate to how you feel. I started pain management 5 years go and I'm slowly getting some quality of life back. I don't have kids, just 4 legged ones.  Welcome and you will find geat support here.

 

Melissa


oakley
Regular Member


Date Joined May 2007
Total Posts : 358
   Posted 10/26/2007 9:58 AM (GMT -7)   
Hello
....I absolutley had to write and tell you how beautiful your name is... if its not your real name , a lovely choice nonetheless...Welcome to Hw. You have done the right thing coming here. It is always the right move to reach out. If you want you can also sign up to chat here as well . It is fun and very supportive to meet friends here. I will pray for you to find peace and live a good healthy life. I do have pain somedays as well...it makes me grateful for the days I dont. God bless you and keep writing...keep moving forward...keep smiling...it surely looks good on you and a smile brings out the best in everyone around you. Love, Annie 

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/30/2007 10:36 AM (GMT -7)   
Welcome here, and you are among friends. I have found a lot of comfort here. I'm 30, and I have been dealing with the chronic pain for at least 3 years. I have fantastic drs who do everything they can to help me. I had drs before in a different state and they basically accused me of pill seeking. (which at that time I was a bartender, so I could have easily gotten anything I wanted) Back to the real topic. I went through a serious spell of depression about a month ago, crying all the time, it was terrible. My PCP had a shrink come see me and he explained that chronic pain and depression go hand in hand. They put me on amitryptiline and zoloft to help- and it has, it has even helped some with the pain. seriously. But I am at another state where I am barely eating, I can feel pain and have knots all over my body. Cancer is first generation in my family. (every generation has died of it) So there are moments I think I am dying. Sometimes I can barely get out of a chair. Sometimes I can't eat. I'm waiting for a rheumatologist appt- thats in Dec. I know the feeling. Sometimes I lie in bed thinking, my god- this is it. I am going to die. I have had talks with my mother regarding my affairs just incase I don't wake up one day. So I know where you are at. But, in truth I miss the things I did before this took over my life. I miss surfing and bungee jumping and even the way it feels to run. I miss the breeze in my face and the sweat. So I know. And, before I came here- I felt so isolated- especially because of my age. All my friends and my boyfriend went to a major theme park one day and the pain was so bad from the walking I had to get a wheelchair. You are among friends here...... I have not found someoen yet I could not relate to. If you need anything, please feel free to message me, or e-mail me. We are a big family here and we all want to help each other. I recommend this site to everyone I know in pain, because no one knows until they have been there.
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