Poppies Poppies Everywhere....

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kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/2/2007 10:30 PM (GMT -7)   
I just really need to vent a little so bear with me. I had to take a late night trip to the ER due to the intense pain. I don't know why I even thought I would benefit from this. eyes You know the result- morphine. I try and try to tell them the stuff dosen't work. I am a freak of nature or something. I felt the warm woosh down my spine and thought, oh my gosh- this might give me some relief! Nope, the woosh was it. And something works for me, for a week or two and back to square one. Back in pain again. Is there any hope? Is it too much to ask to have some quality of life back? I want my own garden with poppies so I can figure out my own cocktail because opiods always seem to be the answer. And if it works for someone- I am sooo very happy for you. Really, I mean that. But what about the rest of us? What do we do? Anyone ever just had one of those days?

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/3/2007 8:24 AM (GMT -7)   
Yes, I know what you mean. It is aggrevating to have a high tolerance to medications. I can't think of a time though that I wasn't. Before all this started I had kidney stones and the nurse said she legally couldn't give me anymore shots. So, she called in the dr and he ok'd it. I think it was like 8 shots of demerol (sp.) Not that it does anything for me either. I have just always been this way, and I am 5'0 tall so that works against me as well. I understand they are trying to CYA but they should be able to tell if someone is actually benefiting to the medications administered or not. Well Gramps, I guess we are SOL. Until there is a different answer or if anyone has figured out how to get something that works. Have you ever watched Friday Night Lights on NBC? I just started watching it a few weeks ago and there is a chracter who is in a wheelchair (I assume it was a recent accident that put him there) so this young man goes to Mexico in hopes of this "wonder" procedure. His friends talk him out of it, but I thought- you know- no one knows more what it feels like to be so isolated and hope for better things. the funny thing was the Dr in the show called the FDA "pansies" and I had to laugh, cause I thought, you know, thats true. I know how desperate I feel sometimes and I feel my leg more and more losing function and I can't imagine this the rest of my life. I just feel there has to be more to offer. This is America. I'm sure NBC will give this kid the happy dream in the end, but where does it go for the rest of us? It should be your own right to want to try experimental medicines, under dr supervision of course, to help ease the pain. There would be less SSI if people were able to function on a semi-normal level. Just thought I would share..... :)

03Mach
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 11/3/2007 8:45 AM (GMT -7)   
Kttn,
Are you on any maintenance meds? What types of treatments have doctors tried with you? A poppy garden could be a very dangerous thing : ) I thought that poppies were "fairly" easy to grow?

Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 274
   Posted 11/3/2007 11:13 AM (GMT -7)   
My hubby has jokingly talked of starting his own poppy garden nono .  It's just that we get so sick of being treated the way we are.  I too have often worried about not getting pain control in the hospital but so far my docs are good about keeping me from suffering.  Of course I have to wait until my docs are notified.  The next day after surgery,(a weekend of course), I ended up with complications so I was admitted through the ER.  When I got to my room and they came to give me something for pain it was 50 of demerol.  I would have laughed if I wasn't hurtin so bad! Fortunately my doc took care of it, but come on.  That's why I said they all need to be trained on PM because they think we should respond to the meds like opiate naive patients and it ain't gonna happen.  As has been said, the life of a CPer, fun fun.

TTRN
Regular Member


Date Joined Sep 2007
Total Posts : 146
   Posted 11/3/2007 6:16 PM (GMT -7)   
I have to say that being an RN I am ashamed of my profession and the judgemental attitude held by many. If they were in the bed just one time with pain,they would see a different side. I know what it is like and the things you have to do and say to "sound" in pain to get relief. I am so sorry, but I'm in the same boat, all I can do is try to educate my co-workers, which believe me I do.  Toni

ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 11/4/2007 7:34 AM (GMT -7)   
I find that Demerol works better than Morphine for me for whatever reason....so no, your not a freak of nature!! Our bodies just all react differently to meds.
 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/7/2007 12:15 PM (GMT -7)   
Well, glad to know I am not the only one who has the idea of it.... lol. Gagabonnie, I have taken methadone before. It does work fairly well, but my drs were reluctant to give anything for BT pain except soma. And apparently they attended a confernce where a study was done in regards to soma, and they want to ween me off of the only thing that has ever worked consistantly. Methadone is totally unique, I think it just has a bad name. I was a little sleepy the first few days (though that was welcome for me cause I never sleep) and after I adjusted I never had that "fuzzy" feeling like the other meds can give. Give it a try- my dr gave me a 2 week supply to see how I liked it. And, as far as the neurontin you are on- try lyrica, its stronger and works much better I feel. 03Mach, love the name I have a mustang...... anyhow, I do know what you mean by maintenance meds.... But I am on 20mg oxycontin 2xs a day, 15 mg oxycodone 3xs a day, soma 2xs a day, lyrica 75 mg 3xs a day, amitryptaline 1xs a day, zoloft 1 xs a day, fleuro-somthing (water pills) 2xs a day, potassium pills 2xs a day, and occassionally aciphex and zyrtec. But I only take those as needed. I am also in physical therapy 3xs a week, have a tens unit and a weekly massage. I have tried holistic medicines, acupuncturists and I think the chiropractor made things worse. Boxerlover- I am with you, demoral does absolutly nothing for me. Neither does morphine. I just get so worried about my tolerence level. What if I get sick and need a surgery or I am in an accident? These are things that I think about, and I wonder what they can do if this happens. Or when I get older.... then what? I'm sure at that time the FDA will be allowing childerns aspirin as a controlled substance. uggggh. I'm home from work today over all this. I'm glad I am not so annoyed alone.

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/7/2007 12:16 PM (GMT -7)   
TTRN, you mentioned you were a nurse- do you have any suggestions as to what to ask for? Or a way to get better meds without sounding like you are "seeking" when you do have to have surgery or go through the ER?

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/8/2007 10:59 AM (GMT -7)   
Well Gramps, you are right... no plans on going to Afghanistan. Is that where they are grown? Because thats quite frightening if it is. Surely the US grows them somewhere under federal regulations? Honestly Gramps I am such a girly girl, I would never stick my hands in dirt. And if I did bend down to start gardening I don't think I could get back up.... lol. And we all love you Gramps, please don't stop talking. You have been a fantastic source of knowledge and just plainly a good comfort to talk to. Speaking of, another trip to the PM dr today- they did an upper MRI (they had only done my lower back previously) and there are 2 herniated discs up there as well. I am going in tomorrow and Monday to have a radio frequency done on my upper and lower along with the cortosone shots. How are you doing? Did you ever get in one of those app. after Duke?

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/8/2007 11:26 AM (GMT -7)   
Gramps- that is FANTASTIC news for you! I mean, not the auto-immune deficiency of course, but that someone is finally taking notice to you! I have thought so much of you the past few days and I couldn't think of something that could have gone better! Well, I know the human pincushion part is no fun- but I hope you actually get some answers! Will you be able to communicate with us? I am going to pray as much as I possible can they find out whats happening with you. And you may have an answer for a few more of us as well. I feel like I have been drug through the wringer with everything, I can't imagine how you feel about drs. As for me, I have had both before with very small results. But- you never know. Oh Gramps, good luck. This is the best news today! I couldn't possibly be happier for you! Please try and keep us updated if possible!!
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