I give up on doctors sighhh

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New Member

Date Joined Oct 2007
Total Posts : 3
   Posted 11/7/2007 9:19 AM (GMT -6)   
 Hi  ive only wrote on here once before. You all were so nice.  Ive been home for the last three weeks and going crazy.
im not able to go back to my other job cause i cant lift more than 10lbs (as the neurosurgeon said)
quick update that i have buldging discs one is real bad the other ones not so bad. as shown on my mri and they also found a
pituatary gland tumor or cyst still waiting to go to the endo at the end of the month on that. the mri also shown that i have a low flow blood vein in my neck (anyone ever hear of that)  sighh.  but i went to see my primary dr for a 10 day recheck and told her of all the other problems im having (left shoulder pain when lifting it up, tendonitis in left elbow, neck pain when turning feels like a charlie horse in my neck instead of my leg, headache, trembling in right hand, upper part of legs weak, middle back burning, restless sleep,
depressed, anxiety, get tired very easily)  she said shes going to send me to another nuerosurgeon we didnt like the other one. and to wait to see also what the endo says at the end of the month.. im not a patient person and i know i have to be but its not easy when holidays are coming and i do all that, im not working,,,sighhhh im going crazy thinking about all that needs to be done and i cant do it. sorry for all this just woke up this morning and had to vent to someone im off to now get blood work done..thanks all

Regular Member

Date Joined Dec 2006
Total Posts : 273
   Posted 11/7/2007 7:16 PM (GMT -6)   

Sassy, can I relate yeah .  I went to my rheumy to what I thought was a follow-up and left having to have monthly blood tests, an MRI,  x-rays, 3 new meds and a partridge in a pair tree :-) . Sorry couldn't resist.  I have my "well woman" exam next week which is more blood, a pelvic, a bone density and anything else she comes up with.  I see my pain doc tomorrow and my onchologist Friday.

I get so sick of this.  In fact I got so sick of it last year I "post-poned" most of my appointments.  I just couldn't take it anymore.  Of course I got totally yelled at, but sometimes when your whole life revolves around doctor appointments, procedures, tests, meds and I was in the hospital 7 times last year, you have too say enough! Or at least I did.


Veteran Member

Date Joined Aug 2007
Total Posts : 1428
   Posted 11/10/2007 1:38 PM (GMT -6)   

I am a regular on the Lyme Board too but I have extreme chronic pain as a result of it. I was reading your symptoms and they are eerily familiar. Have you checked into Lyme Disease? I have been in major pain and have been in so many circles with Drs. for about 20 yrs. The last 6 1/2 have been the worst. I also see an endo because the Lyme has wreaked havoc on my entire system. Addison's Disease was just added to my list but my Lyme Dr says all of these issue should resolve upon successful treatment. Most mainstream Drs. know little about Lyme and the testing through most major labs is very unreliable. I had to send my blood to a lab in CA called Igenex.

I was so relieved to finally get a diagnosis. I thought I was dying of cancer or some other terminal illness.
I have been on oral abx for 2 months and start IV next week. I have already seem imporvement, although slow, but at least I know the cause of my chronic pain.

I hope this helps! Best of luck to you,

Dx-FMS 2006, CDC positive LD 8/07, Ehrlichiosis-HME 9/07, Hypocortisolism (Addison's Disease), Cervical Cancer Survivor. Probably infected with Lyme since a teenager 20 yrs ago.
Tx-Doxy, Tahitian Noni, Cat's Claw from Sept-Nov 07
Fentanyl, Percocet, Soma, Xanax, Protonix, Melatonin.
Currently only on Diflucan and pain meds to prepare for IV

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