post surgery pain

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crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 11/28/2007 2:16 AM (GMT -7)   
I had emergency surgery (temporary colostomy) for a supermegacolon episode back in 2003, I have been bounced around from dr to dr, I am on lots of narcotics now, the most I have ever been on, it seems to be an never ending spiral down as I feel horrible with or without the meds. I have compteplated surgey, but have been told it's not the best way to go? boy have I had it with the drug abuse jokes,inuendos, and the monthly ritual to get all the meds I need, please advise.

volfan
Regular Member


Date Joined Nov 2007
Total Posts : 58
   Posted 11/28/2007 9:48 AM (GMT -7)   
Dear Crohnie, Though my pain is of a different type I know exactly how you feel. Unless others (including family) have been in our shoes they can't begin to understand. Chronic pain is something that can and will control our lives if we let it. Is your pain being managed by a good pain clinic? If not it may need to be. A good clinic can offer many more services than just prescribing meds. I recently completed a two week course at my clinic where many issues were discussed. Being involved in a class with other CPers was a huge help and a wealth of knowledge. Not only do we sometimes need someone to talk to but our significant others do as well to help them begin to understand. The jokes and suggestive comments are really through ignorance of the disease we suffer with called chronic pain. Most of mine came from close family members who I know love and care for me deeply. They were terrified of me becoming an addict. My oldest son was witness to two of his closest friends families being ripped apart by addiction and abuse which started out with a back injury. So not only do others need to understand us, we need to educate and reassure our significant others. Yea the monthly ritual is a huge drag but it can't be avoided. If you are being stereotyped as a drug seeker (and there are many out there) stand up for yourself. Let them know how you feel about their treatment. Don't put up with rude nurses or receptionists. If this is happening tell your doctor. I did and it did make a difference. I have also found that staying as active as I possibly can has helped me tremendously. I figure I can hurt somewhere else as good as I can here at the house. I do hope you will feel better. Stay strong and keep the faith!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/28/2007 1:23 PM (GMT -7)   
Hi Crohnie and welcome! Volfan has great advice. Don't tolerate it. I don't tell anyone who doesn't need to know about my med's. Saves a lot of grief. Another options is to take one or several of these people who think they need to make nasty remarks and drag their little caboose along with you to your next doc appointment. Give them some education! Maybe they will understand if they see first hand.

Good luck and keep us posted...
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 11/29/2007 9:36 PM (GMT -7)   
Thanks for the encouraging words people, I am not alone
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