Low Dose Naltrexone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

GregB777
New Member


Date Joined Dec 2007
Total Posts : 9
   Posted 12/27/2007 9:17 AM (GMT -7)   
Hi Everybody--
 
I'm new here.  I was wondering if anyone has had any experience taking Low Dose Naltrexone?   If so, what results (good and bad) have you found?
 
Any information would be greatly appreciated!
 
Sincerely,

GregB
 

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 12/27/2007 3:36 PM (GMT -7)   

There are a number of us who have tried it. I don't know who has used it successfully. Do a search on LDN, Naltrexone, and Low Dose Naltrexone and you should get lots.

Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again so it's still not working. Now blind in that eye. Hope the other eye does not suffer the same fate. Depressing.
Married with 4 grandkids.


GregB777
New Member


Date Joined Dec 2007
Total Posts : 9
   Posted 12/27/2007 7:23 PM (GMT -7)   
Hi Dave--

I already searched the forums, but had a hard time condensing things. for example, I found the thread where you started to explain your experiences with it, but then I found other other threads where you had already gone off of it. I could not find the connecting thread where you discussed WHY you quit, and for what reason.

So why DID you go off it? Was it not helping? Were there bad side effects?

Thanks again!

-Greg
-greg

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 12/28/2007 6:17 AM (GMT -7)   

I went off it because I was now on heavy doses of Prednisone for my eye and I thought the LDN was negating the Pred. When I went back on it, it gave me the big D.

Penn State has done two tests: One with 17 patients for about 3 months which faired well and a second double blind study that carries it farther. That should be the proof in the pudding. My experience was that it worked like gangbusters for 3 months then left me flat, for the autoimmune gremlins to come back. This time with vengence.

Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again so it's still not working. Now blind in that eye. 1/08 now taking Remicade monthly with no real progress treating inflamed eye. Vision still <20/200. Inflamation starting to show up in good eye. I haven't given up yet, but it doesn't too promising.
Married with 4 grandkids.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 12/29/2007 1:24 PM (GMT -7)   
I was on LDN for two months and it didn't too much for me except to cause insomnia. Others have claimed improvements. Your mileage may vary.

best regards,
Robert
Crohn's since 1988
3 resections


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 12/29/2007 4:34 PM (GMT -7)   
Hi
 
I am using LDN with great success. I started in september, after tapering prednisone. I got my dx in june 2007, had diarrhea 5-7 times a day, bloating, leg cramps, tummy pain, abdominal discomfort and had partial obstructions including vomiting for 8 hours, painful cramps. Prednisone calmed down all of this, but the D and the pain returned when down on 10 mg. So I started LDN the day after the last 5 mg dose of pred. I have an idea that prednisone did calm down the inflammation, and so LDN did the rest. But this is just my personal opinion.
 
My leg cramps, having them each night and morning have also gone. I have only one BM a day. Sometimes now and then I get a little pain when I have been eating some vegetables that leads to a mild obstruction cause my small intestine is narrowed with a possible stricture in a little area. It then helps drinking some water and have a mild pain killer. LDN can't take away a stricture. My earlier obstructions were terrible.
 
I would suggest that you contact our group at yahoo.com. Register there, make yourself an email adress at yahoo, because you'll get a lot of new interesting post each day, and you won't have your ordinary email box overloaded.
 
At yahoo there is a group called lowdosenaltrexone. Search for ldn at yahoo, and you're welcome to join us. There you'll find a big group with mixed autoimmune diseases. We are IBD'ers, MS'ers and a lot of other ppl. posting there in a helpful and friendly forum.
 
Bad: LDN has some small side effects. I got tired, needed a nap once and sometimes twice a day, not more than 30 minutes.
 
Others may have vivid dreams a week or two. Some may wake up and feel to get up in the middle of the night, a lot of energy. I did have this some nights, but fell asleep after maybe 20 minutes.
It's possible to lurk and read. You'll learn a lot.
with all the best from Ingrid
 


 
Diagnosed CD June 2007. Have only used prednisone. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. LDN is super! I am now in remission ;-)

Post Edited (Skjura) : 12/29/2007 4:38:55 PM (GMT-7)

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 1:00 PM (GMT -7)
There are a total of 2,733,634 posts in 301,137 threads.
View Active Threads


Who's Online
This forum has 151273 registered members. Please welcome our newest member, minniemighty.
393 Guest(s), 14 Registered Member(s) are currently online.  Details
Celeste15, Uniandra, Gemlin, klondiker, Girlie, minniemighty, Rhaina, jabele, ChickNorris, pmm73, panicgirly, dbwilco, quincy, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer