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Regular Member

Date Joined Sep 2005
Total Posts : 78
   Posted 12/27/2007 2:56 PM (GMT -6)   
A new way to look at this dreaded disease!
I know that it is hard sometimes to think of anything positive when we have to associate it with CD.  I have had symptoms for 21 years.  I was originally misdiagnosed and given a complete hysterectomy in error at the age of 27 (and no I didn't sue the doctor).  After nine more months of all of the severe symptoms minus the "D", I was finally diagnosed with CD.  At that time, I had no idea what I was facing.  All I knew was that I was 27, the mother of 3 small boys, working 2 jobs, and a failing marriage because my exhusband thought I was making up some mysterious problems. Eleven years, three bowel resuctions, a divorce, and a lifetime of meds later, I wouldn't give the experience up for anything.  My son asked me a while back if I could not have CD disease would I?  My first thought was probably what most of yours was......well yeah.  But before I answered I thought about the question.  Then I explained to him that if I could go from this day forward without it then absolutely.  However, if I had to have never had CD and learned the valuable lessons that I have learnt along the way, then absolutely not.  I truely believe that I have become a much better parent and person than I was before.  When you first get sick and no one knows what is wrong, there are many thoughts that race through your mind and usually not good ones.  I know for myself it was 9 months of wondering if I was dying or what.  So in 9 months, I thought of my kids.  What would happen to them, who would raise them, would they be raised with the values that I wanted, etc.  Once I was diagnosed and knew I was going to live, I decided to make the best of of a bad situation.  Family is my life.  Yes, I work (insurance is a necessity), but my family is far more important than any material thing there is.  I like a nice house, nice car, clothes, etc.  However, it is more important to work 80 hours a week and drive BMW or work 40 hours a week drive a Grand Prix and be at my kids ballgames, teacher conferences, and have a family sit down supper instead of grabbing something to eat at a fast food place.  Maybe you all don't agree with me, but it was just food for thought.   I know from time to time we all get discouraged with this illness.  Trust me I too am sometimes down.  Especially when I see my exhusband, who went on with his life because being sick was to much to deal with, making 150K+ a year and living high on the hog.   But it doesn't take me long to realize that he has missed out on so much, I have pretty much single handedly raised our children.  He works to much to have time for them.  They are all almost raised now and it is to late for him to get those years back.           

Regular Member

Date Joined Feb 2007
Total Posts : 123
   Posted 12/27/2007 3:18 PM (GMT -6)   

I've heard God never gives you more than you can handle. You're a very courageous person.

I have had Crohn's for 32 years - raised 3 children, and now that I'm older and wiser, I try to enjoy each day because I know that it can all come crashing down without warning.  You're right about becoming a better person.  Just knowing how precious each day is makes me a more tolerant person.  I don't sweat the small stuff as I did in my 20's & 30's, which I found only to exaserbate the CD symptoms. 

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 12/27/2007 4:02 PM (GMT -6)   
I totally agree. I would rather not have this disease in the future but it has taught me so much and helped me realize what is important in life. I really think it gave me confidence and the ability to speak up for what I need, and to not care what anyone thought about me, just to live my own life. I wouldn't trade that freedom for the world. I look at friends that literally cry because they have to go out in public with a cold sore and I hold my head up high and go to school everyday just thinking how nice it is to be "above" such trivial matters and able to worry about more important things (like making it to the bathroom in time.)
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 12/27/2007 4:15 PM (GMT -6)   
Well said. We all have some thing in life that we have to deal with, some of us have more to deal with than others. As the old saying goes, God never gives you more than you can handle, sometimes I just wish he didn't have so much faith in me!

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 12/27/2007 4:26 PM (GMT -6)   

Wow,very inspiring,and I do agree with your words.

Thanks for sharing :-)

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 12/27/2007 5:05 PM (GMT -6)   
Hello, this is Kitt.  Kudos to you for sharing. My husband has had Crohns for 31 years.  I decided to go into Nursing because of his disease so I would always be able to advocate and care for him.
I was blessed with a wonderful career and my hubby is still with me and doing very well.
You are an inspiration. yeah
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Regular Member

Date Joined Sep 2005
Total Posts : 78
   Posted 12/27/2007 11:26 PM (GMT -6)   
Thanks to all of you who understand.  I wasn't trying to ramble just look to the brighter side of this disease.  I have always been a believer that God doesn't give us more than we can carry.  Sometimes though I think he has my shoulders mistaken for someone else.

Veteran Member

Date Joined Nov 2007
Total Posts : 4055
   Posted 12/28/2007 1:33 AM (GMT -6)   
My beliefs are different. I don't believe a compassionate God would give lousy diseases to anyone. I believe that if there is a God, she or he greives along with us and wants to see us well and strong. Just my two cents!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 12/30/2007 8:31 PM (GMT -6)   
tmlindsey thanks for posting this and to the others for responding. I have asked myself these questions too for the past 5 months. I still haven't had my own answer.... still in process of developing but it was nice to hear all of yours. The part about the BMW was interesting. That was how the "old" me described success. Fast life but you spend so much of it working to keep up with the joneses, you never really see life just for how it is. Now I just want a newer car (I'm in a 96 nissan sentra that probably can run fine for 5 more years but I don't think it will last me 20 more years), to have my own place, to finish school and pay off the loans from it, a job (like you for the insurance) and extra "spoons" to be able to do fun stuff every now and then. Hopefully my wishes will come true and I'll be able to look back like all of you and see my blessings.

take care all and thanks for being here. You all have been a God send.
Newbie - 35 yrs old Diagnosed: 08/03/07
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 12/31/2007 10:36 AM (GMT -6)   
I know that I am a better person because of this disease. I was well on the road to believing that stuff was most important. That has gone away. I know that my family is what is most important. I work to live. I know that my talking about what I am going through will help someone else to cope with what troubles they may face. I also know it will tell them I am here if they need a shoulder. The dust bunnies be darned in my home. It is straight and my daughter is loved and knows she is loved. I have had the blessing over this holiday season to see what a difference I am making in others lives because of the way I choose to handle my situation. You would be amazed at how others view what we deal with if we just let them in a bit. Thanks for the post. I think we all need to be reminded that if you can find something to be happy about grab it and make it grow inside of you and the whole world will see your glow no matter what is thrown at you.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Regular Member

Date Joined Sep 2005
Total Posts : 78
   Posted 1/4/2008 1:46 PM (GMT -6)   
Gumby44 - I agree that I don't believe God gives any disease to anyone.  Some things in life just happen....freak of nature.  I do believe that God does want to see us all well and strong.  It is my opinion that he has given the doctors and people in the medical profession the knowledge and the ability to try to make our lives easier.  By my saying God doesn't give us more than we can bare, I wasn't necessarily speaking of just CD.  While raising 5 boys, my plate has been full.   

Regular Member

Date Joined Aug 2006
Total Posts : 44
   Posted 1/4/2008 2:45 PM (GMT -6)   

     I believe that God allows us to get sick so we learn to realize that with no God it could be worse.  I am the second daughter of a breast cancer victim.  Mom died in 1987.  My sister was 17 and I was 12.  We blamed God for many years, "How could our creator hurt us by taking the person we were closest to?"  My father was diagnosed with a rare nerve disease, Guillian  Bere Syndrome, within nine months of Mom's death.  My sister started college in the fall of 1988 and I went to live with my mother's parents.  My father was sent to Iron Mountain, Michigan, to the Veteran's Hospital until he was able to function on his own.  I believe God gave him the strength to get well enough to come home to me.  There is much more to the story. 

     When I was diagnosed with Crohn's, I had to tell my father over the phone so he would hear it from me and not someone else in our family.  I remember the silence from his end.  After the long pause, I said, "Dad, you did NOT give me this.  Buppa (my mother's father) had Crohn's disease and Nannie (my mother's mother) had Ulcerative Colitis.  This did NOT come from your side of the family."  I heard a sigh of relief, then he went on to tell me he had worried because his family has so many rare diseases.  I joked that since Buppa had Crohn's and Nannie had Colitis, one of us (meaning their six grandchildren) were bound to get one of them. :) He feels bad that I have it, and that it did come from mom's side of the family, but he was definately relieved that it did not come from him. My father's life is a great example of how God is there for us even when we think we are alone.  He has faced so many hardships in his life, yet he believes in God and talks with his mother about God.  Dad was turned off of organized religion when he was a kid.  It is too long to tell.

     When I am asked why I believe in God and Jesus, I tell my story.  My Mom was diagnosed with breast cancer when I was in third grade.  They removed her breast, but they did not get it all.  It then spread to her liver through her blood.  I was in fifth grade when they diagnosed her with liver cancer.  I remember we had just learned about successful transplants in our Weekly Reader in school.  I told my mom that she could have my liver.  (I would do it again if I could.)  I was VERY serious.  She of course told me no, because I would then die.  I told her that I didn't care because the way I saw it was that Mom was a great Mom and she could have more children.  I thought my father and sister needed her more than me, so I felt that I was the replacable one.  The connection to God and Jesus here is; if I can love my mother enough to willfully die for her, why then is it so hard for people to believe that our brother willfully died for us, and our father was willing to offer his son for us?.  This is just why I believe.   

  My sister and I have actually become stronger believers in God and Jesus because of the hardships our parent faced and the ones we faced ourselves.  Illness has just become a part of existance in our family.  Many of us have health issuses.  God helps us get through the bad days and enjoys the good days with us as well. 

I am sorry that I give too much detail.  I hope that someone else can benefit from my experiences.

Regular Member

Date Joined Sep 2005
Total Posts : 78
   Posted 1/11/2008 11:15 AM (GMT -6) show great strengh.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/11/2008 1:23 PM (GMT -6)   
tmlindsey I really enjoyed your post and you are so right. I am thankful for Crohns because it has helped me to see what is really important and you are so right, family is everything. I have the most wonderful and supportive husband thankfully. My ex was so unsupportive, so I can relate to what you have been thru. I raised my girls by myself for the most part and they don't even really talk to him anymore. His loss.

Teenatoons that was beatifully said.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Sep 2006
Total Posts : 146
   Posted 1/11/2008 4:53 PM (GMT -6)   
Teenatoons that was meant for me to read today. I have really let the disease make me the victim this week, meaning I have been in the dumps, feeling sorry for myself. Thank you tmlindsey for starting this post and for the beautiful words you so well wrote. If it wasn't for our Lord and Savior, I do not know how I would make it each and every day because through Him I receive Strength. I know that one day this physical pain will be gone and what an amazing day that will be. God did not promise life to be easy and all of us will be tested somewhere in our lives. Sometimes I look at crohns as my test and my valley that I will rise up from so that I can help others with chronic illnesses after I get through with my battle.
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2007, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007.  Now receiving Humira, Topamax 300mg daily, Cymbalta 120mg daily, Prevacid 30mg, Maxalt, Vicodin and Ultram as needed, Fish Oil, and Multivits   

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