Well, how is everyone doing in here? My name is Mike. I was diagnosed with Crohn's November '06. I'm feeling better having read some of the things people have gone through. This is a lot to deal with. I have type I diabetes (insulin pump) and Celiac Disease as well, so I definitely didn't need another thing to deal with.
I've been kind of frustrated with all the doctor appointments, and feel like they just keep throwing medications my way in the 'ol, "here, try this..." sort of way. I'm allergic to darn near everything it seems, and the drugs don't always seem to agree with me either. I have not been taking anything really for the last month or so. I'm just fed up with it all. Things like Prednizone really throw my bloodsugar levels out of whack and make it impossible to control them. So that's out. Tried some sort of cortizone suppository and it gave me terrible night sweats (like sweat through the mattress bad.) The docs don't seem to believe I could have such an adverse reaction to it.
I've tried Pentasa, which healed up the fissures I had around my anus, but it upset my stomach. Now they want me to try some sort of colacort? enemas? or rowassa enemas? Ugggh....
I'm not as sick as I once was. I no longer have bowel movements multiple times per day. Usually just once in the morning. Problem is, I have this "discharge" afterwards throughout the day. Through my internet investigating, I wonder if I don't have a fistula? I no longer have a lot of blood in my stool. Just this clearish-yellow watery crud that keeps oozing out of me all day. Infection? My energy levels have been better of late. No fevers. Can't tolerate cold AT ALL any more. Appetite is good. Weight staying on. Having a lot of joint pain like arthritis. Especially in my hands/elbows/shoulders, which I never had before.
Anyone have any ideas what this last "hurdle" could be? Sorry, I don't know what the "getting to know you" protocol is around here. I usually post on golf forums of all things, so this is new to me.
Post Edited (miguelblanco) : 12/28/2007 3:52:56 PM (GMT-7)