Recent Bowel Resection

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Gigi213
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/30/2007 12:53 PM (GMT -7)   
I recently had a bowel resection (12/8/07) of the ileum.  They removed approximately 12 inches to include the cecum and appendix.  I am having a hard time recovering and am hoping by sharing this I can normalize the experience because I feel that I am starting to get depressed.
I am having bouts of nausea almost daily....is this normal?  I am 3 weeks post surgery and am having a hard time lifting my right leg.  When I do, its like I can feel a sharp pain where I am resected!  Is this normal? Also the back pain (especially on the right) is unrelenting.  Is this all normal?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/30/2007 1:32 PM (GMT -7)   

Hello and Welcome to Healing Well.  This is Kitt.

Your questions are tough as I do not know what else is going on with you? It would be normal to have back pain after surgery but I get the impression yours is constant and unrelenting.  I do not know when your back pain started or where it is located.  The same with the nausea, by 3 weeks out, you should not be having nausea every day, however, I don't know if your taking pain meds or other issues that may cause these symptoms. :)

I would suggest you check out these symptoms with your surgeon. 

I am sure some of the members will share how their recovery went but again it may be different from yours.

Again a warm welcome to HW. Keep posting as we are here for you.

Take care. I hope you feel better soon.

Kitt


 
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
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Post Edited (stkitt) : 12/30/2007 6:02:34 PM (GMT-7)


vadreamer1
Regular Member


Date Joined Aug 2006
Total Posts : 196
   Posted 12/30/2007 4:37 PM (GMT -7)   
Could pain meds be causing the issue? I found that Percocet made my stomach do back flips. I switched to Vicodine and the upset tummy went away. Not sure if this helps. As mentioned above, do chat w/your doctors.

Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 12/31/2007 2:28 AM (GMT -7)   
Hello Gigi it is me again. However you replied to my post so I will reply to yours. I think that I literally had the exact same surgery as you. I had a foot of my terminal ileum removed as well as my appendix, ileocecal valve and a bit of my cecum...just like you. Where and how is your scar at? Mine is just above my belly button, curves around it and then goes down a few inches. Not too bad really. It is taking quite a bit of time to heal and I have my staples until the 7th. In terms of your symptoms I also noticed nausea for quite a while, and I will have days that I am really nauseous and still have crohnie stomach aches, and then other days when it clears up. Ask your doc for an anti-nause drug such as Zofran or Compazine ( I am allergic to that one). I am not too sure about the right leg pain, but I can see where it could hurt to move it becasue you did just have your abdomen cut open and messed around and muscles, nerves, etc all work together. For a long time and still actually my legs especially right gets really shakey when I am sitting on a chair or going to the restroom...its odd. If it continues I would definitely ask your surgeon or at least GP about it. Are you still on pain meds, and if so which ones and how much? I am on 20mg oxycontin every 12 hours and 20mg Oxycodone every 3 hours. I am trying to taper down on the Oxycodone, and I am doing pretty well and trying to take them every 6 hours rather than every 3. It will be a while until I am completely off though, and my surgeon told me this before I had surgery and recently when I just chatted with him. Well I am rambling...so best of luck and I hope you feel better soon!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection


Gigi213
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/31/2007 8:27 AM (GMT -7)   
Hi Crohnie8,
It does sound like we had the exact same surgery! Except mine was 5 days before yours. My scar starts at the lower edge of my belly button and goes down to my pelvic region. Although larger than yours, I have no staples. He sewed me up inside out (he said he did this because he thinks I am still young enough to wear a 2 piece). It is healing beautifully. I am on dilaudid 2mg and have weaned down to 2 times a day. I am allergic to percocet/darvocet/vicodin etc. I never really thought about the nausea being caused by the meds, but thats probably it. I had a good afternoon yesterday and took a 15 minute walk. My nausea subsided and I actually ate a sandwich. Did the surgeon tell you that he got all your crohn's? I think the D and cramping that you are feeling is normal and to be expected for a while after surgery. I too am off all meds for a month while I heal. I am nervous because there was talk of 6MP. I don't like what I have read about Remicaid or 6MP. My surgeon said he got it all. I know its crohn's....and it will come back, but why hit it with the most powerful drugs now.....shouldn't they wait until we really need them. There won't be anything left to fight it with it these don't work.

Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 12/31/2007 5:40 PM (GMT -7)   
I have been on both Remicade and 6-mp and they have both worked pretty well for me, obviously not for too long because I had to have surgery. My doc is talking about 6-mp and remicade for maintenance as well, and I am just fine with that as long as it keeps me in remission. Since we do have crohns chances are that the disease will come back right where they snipped it out...therefore I think that many GI docs just try to get a jump start on the medication therapy so that we arent always playing catch up in terms of treatment. I would much rather be on both of those meds then prednisone like I am right now. I cant stand the steroids! My surgeon also sewed me from the inside as well, but did staples for extra support...I am only 23 so I think that I am also young enough to wear a two piece..sheesh. How old are you, and how long have you had crohns? Hope you have a glorious new years!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection


Gigi213
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 1/1/2008 11:04 AM (GMT -7)   
Gosh, you are too young to be dealing with all of this.  I just turned 40.  I was diagnosed 10 years ago, but probably had it before.  It is nice to know that you tolerated the remicaid and 6MP well.....it is somewhat reassuring.  My veins are not good so if needing remicaid I would need a permanent port.  I say no-way to that.  I am having a good day today.  Last night I was able to lift my right leg without pain.  It is amazing how the body heals itself.  I hope you have a wonderful New Year too!  Stay in touch.  Gigi

phishhead
Regular Member


Date Joined Jul 2006
Total Posts : 35
   Posted 1/1/2008 3:42 PM (GMT -7)   
I have had 10 surgeries and obviously 10 incisions from 15-32 years of age....they've always gone over the same spot, around the belly button, etc. Thinking about getting a zipper tattooed over the scar. ;)

Once I've gotten out of the hospital I've usually had almost no post-surgical complications....BUT, the last 2 surgeries have kept me in the hospital for at least 2 weeks as I've struggled with problems. I think everyone's different so I don't know how to guide you. All I can say is I'm glad you made it through things OK and Happy New Year!!
34 Year old male-diagnosed with Crohn's at 15. 10 surgeries from 88-03. Have tried Remicade, Asacol, Imuran, Pentasa, and Prednisone and haven't really responded to any of them. Chronic diarrhea since 92. Due to such a short bowel a good day is 10 bathroom visits,25 on bad days. Also still have plenty of pain/cramping. I'm on Oxycontin 160mg and a Duragesic Patch 50. Just went on disability, can't work unfortunately. I live in New Orleans, LA."Nothing I see can be taken from me." -Trey Anastasio "A good day aint got no rain...A bad day is when I lie in bed and think of things that might have been." -Paul Simon
 


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 1/1/2008 4:36 PM (GMT -7)   
Oh goodness 10 surgeries that is quite a few. A zipper tattoo would be awesome...when people see my scar they say it looks like a zipper...especially with the staples in. My veins are also crap, but I haven't been considered for a port so far. This fall I could have really used one. My second hospital stay I had 10 IV changes, and ended up with a picc line, then my surgery I had 6 IV changes, and still each one didn't even work that great. I have known quite a few people that have had a port and it has worked really well, and caused no problems. I may ask for that if I do remicade now becasue my veins especially since being on prednisone are horrible.
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection


wishfulthinker06
New Member


Date Joined Jun 2013
Total Posts : 3
   Posted 6/28/2013 11:32 AM (GMT -7)   
I Am Truly Hoping Someone Will Reply. I Had The Same Surgery, But Mine Was Eight Inches Removed, I Also Had The SaMe Pain. I Ended Up BEing Readmitted For An Extreme Flare. I Just Finished My Antibiotics Yesterday, And Am Weening Myself Off Of Prednisone Every Five Days. How Long Did It Take To Feel Better? I'm Afraid To Eat Anything Other Than Dry Cereal And Bananas. And I'm Noticing My Right Leg Causes Pain In My Right Abdomen WhenI Lift It. Oh, I'm Six Weeks After Surgery Today.And I Have Been Diagnosed With Crohns Since September 2011, And Now Endometriosis As Of Last Month... That Was On My Ileum. Please Help Me Get Through This Bc I Feel Like There Isn't Hope.

Question Everything
Regular Member


Date Joined Aug 2012
Total Posts : 444
   Posted 6/28/2013 12:19 PM (GMT -7)   
For me 5 weeks tomorrow. 40 cm or about 16 inches removed. I stopped taking pain killers on day 9. Yes I hurt still. basically eat what I want, nausea is calming down. But still running to the bathroom about 10 x daily. on the 1-10 scale I'm 7-8 a lot. 7-3 more tests. Pain right side front to back lower, almost if having a flair. No drugs except a Tylenol. Having lots of fun wondering what comes next. mornings are worst. pushing the limits of what they think are limits. I need to get to lifting up to 50 + soon. I just hate doing nothing.

Talk to the surgeon, mine thought I was eating nothing of substance. Best of luck.

T

Better Living Through Chemistry

wishfulthinker06
New Member


Date Joined Jun 2013
Total Posts : 3
   Posted 6/28/2013 2:20 PM (GMT -7)   
Oh Man, I Was Told To Slowly Build Up To Normal Diet Bc Surgery And Antibiotics Destroyed Me. Try Eating Rice And Baked Chicken.. I Found That I Cannot Tolerate Anything Acidic Or Carbonated Or Else I'm Running To The Bathroom. I Never Ate A Lot To Begin With.. Little ThingS Like Granola Bars, Bananas, Dry Cereal Throughtout The Day, And One Good Portioned Meal At Night. I Got My Bm Down To 2-3 A Day. Omg AndAnything Colored Orange Or Red I HavE Learned To Stay Away From. I Am Really Worried about The Right Side Pain Though. I Guess I'm Paranoid about Something Going Wrong. As For Lifting, I Feel Ya. But Im A Bartender So My Lifting Is Just Cases. I See That Im Really Sore After I LifT A Couple Twelve Packs. Do You Know Anyone Who Has Had This AndFelt This Way.. HopeFully Feeling Awesome Now? My Surgeon Isnt Great At Answering Questions.. He Referred Me Back To My Gi Who I Meet With Later In July.

Question Everything
Regular Member


Date Joined Aug 2012
Total Posts : 444
   Posted 6/30/2013 12:09 PM (GMT -7)   
wishfulthinker06,
I did electromechanical work before the layoffs last Nov.. rarely lifted anything over several pounds other than a tool kit. But finding a new job everyone wants 50+ lbs. capacity on a regular basis. Believe me I feel the pain trying to increase my lifting capacity. It takes time, my brother in law was hacked up pretty bad for emergency surgery and follow up surgeries, he was telling me at least 6-8 months. He's got a helper (union) for bigger loads.

Take your time, Lift with your legs, keep the load closer to your body. You know the drill. Best of Luck with your recovery.

T

Better Living Through Chemistry

A Beautiful Mind
Regular Member


Date Joined Feb 2011
Total Posts : 78
   Posted 7/1/2013 1:51 PM (GMT -7)   
I had a little more removed than you, but the same section. At 4 weeks I was ready to head back into the gym (but didn't until 8 weeks because of the risk of a hernia). So I'm not sure if I was a speedy recovery or what. In fact I only took pain pills for about 4 days after I left the hospital.

mjs30
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/3/2013 1:22 AM (GMT -7)   
Hi,
New to all of this. 30 year old male. I haven't technically been diagnosed with Crohn's yet, but all the doctors I've seen (GI, urologist, colorectal surgeon) have all said that they are like 99% sure that I have it. But they were not able to complete my colonoscopy because of the narrowing in my colon (I think). So they couldn't take biopsies where they wanted to, where it was inflamed and narrow. So the biopsies they took were negative for Crohn's. So I'm having another genetic blood test from Prometheus (not sure if anyone has heard of this), but they say this isn't a great test either. Anyway...I was in the hospital for severe stomach pains and cramps (couldn't eat food really at all with out excruciating pain), and severe pain defecating. So I was admitted to hospital for about 6 days at the beginning of May 2013. I had an intra-abdominal abscess, which was drained, and obviously infection, which was treated by IV antibiotics. I was released, and I really at this point cannot eat a meal with out taking at least 10 mg of lortab, and even then the pain is real bad. Also about two weeks later after release, started getting urinary tract infections (urinary pain and difficulty). Was given cipro, which took it away for awhile, then it came back, so was referred to urologist, who did a cystoscope and diagnosed me with a fistula. Was given sample of Asacol HD which seemed to start working, but now ran out of sample and GI doc doesn't want to give me more until results from Prometheus blood test.

Also I saw a surgeon today, who pretty much said I need surgery to correct fistula and remove part of terminal ileum because of stricturing and narrowing there, and possibly some part of colon near rectum, but she said she wouldn't be able to say until she got in there to do the surgery. Additionally appendix will be removed. I tentatively setup the surgery for July 15, 2013 (which is like 2 weeks away), but I'm afraid this all moving too fast??? I haven't even technically been diagnosed with Crohn's? Should I go through with surgery, or hold off? I wonder if less aggressive treatment like different medications (i.e., immunosuppressant drugs, or steroid type treatment) should be explored before I do this very invasive surgery? Surgeon I saw today said that they would try to do it laproscopically, but said that she couldn't guarantee this, and may need to do open surgery. I'm just concerned that this is moving fast, but it sounds like from what I've read that surgery is probably best option, and people have gotten a lot of relief from it. I still can't really eat food without taking pain meds, even now, so I'm not sure what to do. My diet is very poor and I'm malnourished. I've lost like 25-30 pounds in last 2 months because of this crap. I'm 6'2" and I weigh like 150 lbs, and I have a pretty large frame to begin with, so I'm really skinny. The main concern the surgeon had today was the fact that my nutrition is so poor, so she wants me to up my protein a lot (which I'm going to try to do through protein powders, which she suggested). She says if my nutrition improved before surgery I will have a much better recovery. And is true that the recovery can be 6-8 weeks, that's a long time! She also mentioned possibility of temporary stoma, if some of colon had to come out, but that it would only be for like 2-3 months. How does that work, and I hope to not have a stoma the rest of my life? Just not sure how to proceed, please help?

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 7/3/2013 7:36 AM (GMT -7)   
Wow... So many issues.

First, I do feel for you. It seems that you are going to face surgery indeed. You should consider taking suplements with high protein (and calories) too, like boost, ensure and others.

Also go in a low residue diet, because you have narrow passages.

Paramount, look for a GI who will take care of you! Asacol is a quite light medicine, maybe you have a route here.

Best luck
Male, 37 (lovely family of wife and two daughters)
Diagnosed in nov/94 - from pentasa to biologics.
Blockage (popcorn!!) - First Surgery 2001 (no ressection)
Severe bleedind(2003)/Stricture and ressection in Dec/2008
Blockage due to adhesions - Third surgery in feb/2011
4th surgery to remove stricture and pillcam! Jun/2013 - no resection / On humira and imuran now.

Question Everything
Regular Member


Date Joined Aug 2012
Total Posts : 444
   Posted 7/5/2013 11:07 AM (GMT -7)   
MJS30,
If you start another topic you will get answers. This is a whole new subject.

T
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