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sissy0232002
Regular Member


Date Joined Nov 2006
Total Posts : 67
   Posted 12/30/2007 8:25 PM (GMT -7)   
I was just wondering, is it common or is there anyone else like me who has had a long remission, I was diagnosed in 2000 which is when I had my resection and ever since then I pretty much besides the D everyday and occasional B, have been doing really well no flare up's. My doctor tells me that my crohns effects my connective tissue also and that I have costochondritis, I get really bad pains in my ribs, I had to be put on steroids for that one time but that is it. I feel really lucky how long can this last no flare up's?
Tanya, 29 year old female with crohns for six years
surgery: colon resection seven years ago 12 inches removed
medications: Pentasa 250mg four caps four -x- a day
doing well right now


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 12/31/2007 2:32 AM (GMT -7)   
Well congrats on the remission! I am sorry that you have another medical problem, but hey atleast the crohn's is under control. In terms of how long remission lasts it is really varies from person to person, and unfortunately there is no set time of remission after surgery or when proper meds are found. However it sounds like you are doing well so I suggest keep on doing whatever you are doing...stay on maintenance meds, and try to continue living a glorious life with little to no symptoms. If your lucky you could never have a significant flare up or need for surgery again. I have known people who have done that! Best of Luck!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/31/2007 3:17 AM (GMT -7)   
Hi Tanya, I am glad your in remission. Sorry that you have an other problem.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/31/2007 7:41 AM (GMT -7)   
I once enjoyed a almost 20 year remission. Mine was drug free, but I would no longer ever recommend that. Watch your diet and take your maintainence meds and enjoy life.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/31/2007 9:18 AM (GMT -7)   
My mother had a very long remission. Unfortunately, the doctors didn't understand CD, the meds or their side effects. So her remission was brought about by high doses of prednisone that she was left on for years. The side effects were long lasting. At least now they have much beter maintenance drugs.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 12/31/2007 10:30 AM (GMT -7)   
Sissy, you are so lucky to have been in remission so long, don't question or doubt it! Just enjoy it and pray that it continues...your remission could last a very long time if you are lucky. Take care and happy 2008!
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia


sissy0232002
Regular Member


Date Joined Nov 2006
Total Posts : 67
   Posted 12/31/2007 12:09 PM (GMT -7)   
Oh I know that I am very lucky and yes I am thankful, thanks everyone for your replys, much appreciated. Happy new year!
Tanya, 29 year old female with crohns for six years
surgery: colon resection seven years ago 12 inches removed
medications: Pentasa 250mg four caps four -x- a day
doing well right now

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