Do I actually have Crohn's and not UC,or can they change?

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/31/2007 9:18 PM (GMT -7)   
I was diagnosed with UC in 1995.  I had a patch of ulceration in my left side of my colon.  Blood in stool, mucus, frequent bms, weight loss, frequent abdominal pain.  Somewhere around 2003, I had a colonoscopy which revealed entire colon looking perfect, but two ulcers, one deep, in my rectum.  Symptoms changed to severe constipation with bouts of diarrhea, more bleeding, less abdominal pain, severe rectal pain, body weakness, less mucus.  In August 2006, the rectal ulcer was tunneling towards my vagina, GI said about 1 inch deep.  Took Remicade after that and Nov 2007, only have the one same ulcer, now at about 1/4 inch deep.  I keep asking my GI if I really have Crohn's and he never gives me a straight answer.  Says well you were diagnosed with UC because of biopsies and the diseases are pretty much the same and same treatment?!?  I want to know for sure what I have.  What tests can he do or how can I know?  What do you all think I have? 
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade,ulcer shrunk in 3 months, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/31/2007 9:39 PM (GMT -7)   
 
You could ask for the Serology 7 test, a biopsy or I guess if your not satisfied with the physician seek a second opinion.
 
The members are not qualified to dx but they can share their opinions or suggestions.  I am finding they are very knowledgable re their own disease process.
 
I hope this helps you in some small way.  Bless You.
Kitt
 

 
 
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
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Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 1/1/2008 10:16 AM (GMT -7)   
I have one doc says I have UC
another doc says I have Crohn's
and 2 other docs say I have both YES its possible to have both for us lucky few I do believe I have both from symptoms and scopes done.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 1/2/2008 10:44 AM (GMT -7)   
My diagnosis has changed a couple of times as well, although opposite of yours.  At first I was told Crohn's due to the skipped areas throughout the colon,the biopsies and the fact that I had severe mouth ulcers.  It appeared to be mainly in the colon however, and I had a huge fissure.  I was on every medication that you list except for anamantle.  I always had lots of bleeding, mucus and pain.  I had to use the bathroom often (15 to 20 times a day), but it was not always diarrhea. Often it was just blood.  A couple of years after the Crohn's diagnosis, I was told that maybe it was UC because on the colonoscopy, it seemed not to be in skipped areas but mostly confined to the lower 8 inches of my colon.  I was also told that the medications for both were the same, so not to worry about the diagnosis. I switched doctors because I felt that I was getting sicker and sicker and wanted another opinion.  The new doctor said that he wasn't sure which I had either but thought it looked more like UC or both.  Yes, he said you could have both.  Now he's back to calling it Crohn's.  I had a very, very severe flare about 3 years ago.  Went on yet another coctail of meds which brought things somewhat under control after about a year.  Then I was put on Humira (I reacted to Remicade as well).  I have been on Humira for nearly 2 years now and I am free of my symptoms for the first time in 16 years of this disease.  I know it is frustrating not having a clear diagnosis of one or the other.  You may indeed have both.    

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/2/2008 2:09 PM (GMT -7)   
Dear Potatoqwn,
I don't like hearing about the possibility of having both diseases, so I will try not to think about it... but I am relieved to hear the Humira is helping you! Best news I've heard in a long time! Hopefully since we have kinda similar cases, it will work for me too!! Happy 2008!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade,ulcer shrunk in 3 months, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 1/2/2008 4:12 PM (GMT -7)   
I was officially diagnosed with UC but my doctor told me that “it would most likely” develop into Crohn’s.

MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!

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