Skin conditions-what are they like?

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Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 1/2/2008 1:01 PM (GMT -7)   
Happy New Year everyone!
 
I have a question for the long term crohnies.  I've never had any skin conditions related to Crohns, but in the last few weeks, I've had a weird skin problem with my left upper thigh.   I will get this excrutiating burning feeling on a patch of skin, very suddenly.  After several days, the red, raised patch of skin turns brownish and dead skin falls off the affected area.   This has happened 3 times in the last few weeks. I also have a lot of little red bumps around the upper thigh.  
 
Is this anything related to Crohns and if so, what do you do for it?  

Thanks for this forum and for everyone's support!
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


EmmyT
Regular Member


Date Joined Oct 2007
Total Posts : 75
   Posted 1/2/2008 2:55 PM (GMT -7)   
I haven't had that per se, but I do have a lot of contact rashes and echzema.

Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 1/3/2008 9:14 AM (GMT -7)   

EmmyT - Thanks for reply.  

Still calling all crohnies with skin conditions/side affects....has anyone experienced burning rashes on the upper thigh?   What are the 'skin conditions' associated with Crohns like?

Thanks!


DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/3/2008 9:46 AM (GMT -7)   
hi,
sorry for your troubles you're going through right now.
i just saw a dermatologist 2 weeks ago & had a bunch of biopsies done as requested by my GI dude.  i had a large satellite ring on my neck, it hurt, itched...a clinic DX it as ringworm but it wasn't.  biopsies revealed no fungus.
a week after a few more brokeout...but more painful. 2 on my legs 1 on arm, 1 on shoulder & 1 on thigh.
turns out it's Pyoderma Gangrenosum (which is specific to crohns & RA too).
is this what you were thinking of?
 
if it's PG you need proper treatment b/c the treatment is totally different than that of a fungal or excema problem.
 
take good good care
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Dilaudid; OxyContin. 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/3/2008 10:46 AM (GMT -7)   
Pyoderma Gangrenosum is rare but is getting more attention now Thank God .....

I have almost lost my fingers and a leg to this DD and the Pain is unbelievable

It is not bacterial it is autoimmune and nothing grows in a biopsy or swab..........
I am literally covered in SCARS from shoulder down to all my fingers and all over both legs.....It looks like I was in a fire .........

Erytha Nodosum ( sp) is another more common skin disorder........
I would have doc check it out if I were you
It took almost 10 yrs for my PG to be DX ........

Erin I am so sorry ...have a look in pics in MF.....my PG sores some are in there.........Luvs.....LYN.
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 Moderator for Anxiety/Panic
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 DX with Crohns ...Pyoderma Gangrenosum ..Anxiety /Panic.....
 TOO many meds to Post 
 
           Wishing all a Better and Healthier New Year in 2008  
 
        We have Anxiety ..Anxiety Does NOT have US........FIGHT
 
                        Luvs and God Bless..LYN
 
 
                            


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/3/2008 11:06 AM (GMT -7)   

I will get patches of eczema here and there--I have a patch on my back right now that seems to come and go in the same spot.  I have little red bumps all over the top part of my legs, above the knees on up--I don't know if that is similar to what you have or not.

Best of luck to everyone here and God bless!

 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/3/2008 11:23 AM (GMT -7)   
Yes I have the little red bumps where the dead skin comes off. I spoke to my doc and he said that if they don't bother me don't bother them, unless I notice inflamation or puss, swelling or signs of infection. I have not had any of those symptoms, and they don't hurt at all.

R u on remicade? there are mild skin rashes associated with remicade, which my doc said might also b the culprit, especially since I'm prone to hair bumps on my legs.

I too have experienced erythmea nodosum, and it was the worst. It presented itself as raised nodules on my legs, got them when I was n college I couldn't walk or hardly lay a sheet on my legs they began to hurt so bad. I think the steroid pack made them go away and I haven't them since (knock on wood and he thank God)
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/4/2008 6:22 AM (GMT -7)   
The EN is very bad as well .......Pyoderma Gangrenosum is derived ( word) from PYRO ( burning/ Fire) dermaskin as you all know and the Gangrenosum is gangreous

There is Pyoderma Gangrenosum ......and the
Pyoderma Gangrenosum ......Bullous ........

I sincerely would NEVER wish any of these on my worst enemy.........
    Contribute today to support Healing Well Forums...Donate @
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 Moderator for Anxiety/Panic
 Moderator for Alzheimer's
 Co Mod for Crohns
 
 DX with Crohns ...Pyoderma Gangrenosum ..Anxiety /Panic.....
 TOO many meds to Post 
 
           Wishing all a Better and Healthier New Year in 2008  
 
        We have Anxiety ..Anxiety Does NOT have US........FIGHT
 
                        Luvs and God Bless..LYN
 
 
                            


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 1/4/2008 10:56 AM (GMT -7)   

I think, from what I've read now and seen pictures of on the net, that it's erythmea nodosum.   The pictures certainly look the same as what is on my thigh.   Fortunately, I have some old Lidoderm patches and I have to slap them on the burning spot when it hits.   After a few hours though, the burning stops and it's just sore, like a bad bruise.   The initial red raised patches are 4-5 inches in size, a bit irregular, and then they get smaller, turn yellowish brown, and then eventually the top layer of skin falls off.  So far, it hasn't left scars.   It feels exactly like a burn, except there's no watery blister involved.

pray4healing - I'm not on Remicade.  Did your EN feel like a sudden bad burn and then eventually kill the skin?  

Or for those with PG - does that burning hit real fast, out of nowhere?  It's so bizarre to be fine one minute and then feel like I just fried my upper thigh.  What is the treatment for PG?

I'm so sorry to hear about those suffering from PG - my thoughts are with you.

This forum always makes me feel stronger - just knowing there are people who have the same kinds of issues and that all in all, I'm very lucky.    And the advice far exceeds anything I've ever gotten from a doctor!

Thanks everyone for the replies!  :-)


DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


raf
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/8/2008 9:44 AM (GMT -7)   
I have vitiligo and have also developed alot of skin tags over the last few years...
dx Crohn's in 2004 at 37 years old.
3600 mg Asacol/day since dx.
Mild/frequent symptoms...fever, d, headaches, cramps.
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/8/2008 12:50 PM (GMT -7)   
hi raf!
vitiligo...is that correct, it's where your skin is unpigmented? like splashed with bleach sort of? is that hereditary? have you had it all your life?
i've seen a few people with it but never had the opportunity to ask them about it.
best wishes.
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Dilaudid; OxyContin. 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/8/2008 1:15 PM (GMT -7)   
Although PG is not bacterial it comes to a point With ME that I have to go on IV antibiotics to stop them from getting worse or to at least try
I am made to leave them open to the air not cover so the skin does not stick to bandaid and tear more....Protopic did not work for me it burnt my skin.
'I am on Methotrexate,and a few other meds for the PG.....I also know for ME stress and trauma to the body makes them break out more

I feel like I have a hot branding iron right on my skin at site of sore
I have had them as big as an orange or grapefruit and deep to the bones .........going into a black around the edges ulcerlike sore........I can start out with the pustule at night and have a full blown sire by am

I would talk to your dermy to find out and if it is EN you can be tx for that .......Take care.LYN


Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 

Post Edited (Howlyncat) : 1/8/2008 1:25:04 PM (GMT-7)


raf
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/8/2008 1:21 PM (GMT -7)   
erin.K said...
hi raf!
vitiligo...is that correct, it's where your skin is unpigmented? like splashed with bleach sort of? is that hereditary? have you had it all your life?
i've seen a few people with it but never had the opportunity to ask them about it.
best wishes.
erin

Erin,
Yes, that is what vitiligo is...I have not had it all my life; I suppose the first time I noticed any depigmentation was maybe 10 years ago.  It has progressively gotten worse - hands, back, around the eyes....  No known cause or cure. It is an auto-immune disorder where your body decides the melanin in your skin is an invader & attacks it. It is tolerable, but as it worsens so will the reactions of people - tough on the self esteem as you might imagine.
 
To the best of my knowledge, there is noone in my family that has ever had vitiligo, or crohn's for that matter...wait, I had an aunt with IBD...don't know if it was CD or not.


dx Crohn's in 2004 at 37 years old.
3600 mg Asacol/day since dx.
Mild/frequent symptoms...fever, d, headaches, cramps.
 


raf
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/8/2008 1:22 PM (GMT -7)   
Why my last post showed up in your quote...I don't know! LOL.
dx Crohn's in 2004 at 37 years old.
3600 mg Asacol/day since dx.
Mild/frequent symptoms...fever, d, headaches, cramps.
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/8/2008 8:55 PM (GMT -7)   
dear raf,
if it is of any comfort to you, just a few hours ago...i saw on the news a young man w/ vitiligo all around his eyes & face & neck.
i may not be like most people...but i still thought "hey, that's a pretty darn attractive person!"
the insecurity that comes with it i can only think i can understand. people who see surfaces only are those who choose to do so, and are not worth your worry. their loss not yours.
i get some wicked looks from people too...i have some pyoderma G that's taken home on my shoulder...it was the main focus of most peoples eyes at a party i was at saturday nite.
i'd rather have had the focus on my shoes!
lol
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Dilaudid; OxyContin. 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/8/2008 9:20 PM (GMT -7)   
Cl,
No my en did not present itself that way just like big knots all over my legs even on the bottom of my feet! HOWEVER, I have a cousin who does not have cd or any other ibd and she developed en ( the docs still don't know y) she said hers did present that way with the burnin and dead skin, its gone away but now her legs look as if mayb she's had several small bruises all over or been pinched or bitten. Its hard to explain. Have u mentioned it to ur doc? Have they mentioned getting a biopsy? That's how mine was diagosed, my gi sent me to the dermatologists and they took a chunk of one of the nodules and tested it. Mayb u should ask about it.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 1/11/2008 11:56 AM (GMT -7)   

Thanks for reply, pray4healing.   

I haven't seen the doctor since it started, but I have my usual appt. next Wednesday with my primary physician.   I still have one of the 'burn' marks - this third one has stuck around a whole lot longer than the first two did.   I've never been to a derm, but I've heard it can take YEARS to get appt's. with them....even worse than gastros!    

I am seeing a new gastro on 1/29, which I'm very excited about (only took 4 months to get an appt!).  I've had the same gastro for about 7 years now and his 'ho-hum' attitude has finally worn me out...time to move on and see if a new gastro has any better ideas besides 'go from 6 Asacol/Colazal per day to 12... or start Entocort and Flagyl again.......and then stop by in 6 months...'.

Thanks again for your info.  It was very helpful.


DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed

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