My first bladder fistula?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

yazman
Regular Member


Date Joined Jul 2007
Total Posts : 58
   Posted 1/2/2008 2:25 PM (GMT -7)   
Hey guys.. I'm a 19 year old male here. I have been on Remicade since July and have enjoyed a nice remission ever since. I feel like I have my life back!

Over the past week, however, my urine has started to smell really funky and there have been a 1 or 2 times where I am guessing a little air has come out. I wasn't sure about the air, however, because it happened so quickly. At any rate, maybe I'm jumping to conclusions, but what have been your personal experiences with bladder fistulas?

I am seeing my doctor Friday morning (my urologist).. until then, however, I will be a nervous wreck! I need to take it easy!


I have read that antibiotics can often time help fistulas. Then also surgery may have to occur aswell. Can anybody fill me in on the treatment for getting rid of this sucker?

Thanks!
19 year old male/ Diagnosed with Crohn's Disease in December 2006

Current medication: Pentasa, Prednisone (40mg... almost finished!), Azasan, Nexium, Remicade


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 1/2/2008 2:39 PM (GMT -7)   
Yazman, Hi....I've had a fistula to my bladder prior to me even knowing I had Crohn's. My 27 year old daughter has CD and I had remembered reading about air passing through while urinating while she was young. From what I have read it is one of the complications that indicate surgery. They have to go in and repair the bladder. I don't want to scare you. I know other fistulas are treated first with meds but I think bladder fistulas have to be repaired.

If you need to contact me you may. I know how scary all this is. I'm about to leave to go home for the day but you may e-mail or post here if you need to.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


yazman
Regular Member


Date Joined Jul 2007
Total Posts : 58
   Posted 1/2/2008 3:04 PM (GMT -7)   
Thanks! I may contact you later today!

Is it ok that I am waiting until Friday or should I have this checked ASAP?
19 year old male/ Diagnosed with Crohn's Disease in December 2006 (age 18)

Current medication: Pentasa (3 pills, twice a day), Nexium, Azasan 100mg, Remicade, Iron


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 1/3/2008 6:00 AM (GMT -7)   
I think you'll be okay waiting.

Just a good note though. After my surgery, and since I'm being treated, I am feeling better then I have in years. I just always thought I was a lazy slug with IBS, not that I had a chronic illness causing me fatigue. So, in other words, if you have to have surgery you can and may be in remission for years and years and feeling better then you have prior to surgery.

I know many people steer away from surgery but there are benefits to it. I had half my large intestines removed and do have to deal with minor annoinances(sp?) but I don't wear a bag and am hoping for a long, long remission from this disease.

Just sending you some positive thoughts. Let me know what the doc says.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 7:39 AM (GMT -7)
There are a total of 2,732,933 posts in 301,069 threads.
View Active Threads


Who's Online
This forum has 151225 registered members. Please welcome our newest member, Milenita.
271 Guest(s), 16 Registered Member(s) are currently online.  Details
cupcakespinkgal, tickbite666, Serenity Now, jujub, Huddie, pmm73, GingerGirl, blksteeda, fibrocushie, PA_grandma, Traveler, eat2bwell, Nosila, ljimd, racquetball74, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer