Remicade to Humira anyone?

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sassyone
Regular Member


Date Joined May 2004
Total Posts : 120
   Posted 1/2/2008 7:18 PM (GMT -7)   
Hi everyone,
 
I dont post very often but I continue to read alot of the posts on a regular basis.  I have been on Remicade for over 5 years now and am considering changing medications and beginning Humira.  My GI tells me that the results have been good for his patients stopping Remicade and changing to Humira.  I am considering the change due to the convience.  I currently have my infusions every 6 weeks at 10mg/kg and am just sick of going.  What do you think?  Any experience or input would be greatly appreciated.
 
Good health to all!
"Even if you are on the right track, you'll get run over if you just sit there." 
                          ~Will Rogers~ 
 
Dawn


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 1/2/2008 7:29 PM (GMT -7)   
Heres a ringer. Im on HUMIRA now and it's not working. Is going to remicade a option?
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 165lbs). On HUMIRA, Prednisone

============================================


D&G's Mommy
Regular Member


Date Joined Jan 2005
Total Posts : 185
   Posted 1/2/2008 8:08 PM (GMT -7)   
I felt Remicade stopped working for me a year or so again, I was at double dose every six weeks and I switched to Humira.  Worked much better.  Unfortunately the Humira costs $500 every three months, where the Remicade was my $30 copay every six weeks.  I wish the Remicade continued to work, though it is way more convenient doing the shots at home.

Cathy
Mommy to a 5 and 6-year-old
Currently on Humira, questran from time to time.
Using acupuncture.


sassyone
Regular Member


Date Joined May 2004
Total Posts : 120
   Posted 1/2/2008 8:22 PM (GMT -7)   
I guess I am lucky since the Humira is considered a rx and would only cost me $45.00/month.  Remicade costs me my out of pocket $2000.00 a year but I am getting close to hitting my cap on my Major Medical Insurance of 1 million.  Humira would be a prescription and would not apply to major medical at all.

"Even if you are on the right track, you'll get run over if you just sit there." 
                          ~Will Rogers~ 
 
Dawn


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/2/2008 9:24 PM (GMT -7)   
I had excellent results with Remicade for 2 years. Then I began to feel worse after my infusions than I did right before receiving them. I tried prednisone pre-medication schedules but those only helped for 2 infusions. The switch was made to Humira. Unfortunately my adverse reaction to Remicade only intensified on Humira. My GI told me that 90% of people that have reactions to Remicade would have a similar reaction to Humira.

I guess what I am saying is that I wouldn't switch if the Remicade is working for you.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 1/2/2008 9:25 PM (GMT -7)   
If it ain't broken don't try to fix it. If Remicade is working for you don't change medications! Just my opinion!
Good Luck!
I have had Crohn's since I was 21 years old and I am now 27....

On HUMIRA....


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/2/2008 11:01 PM (GMT -7)   
I haven't heard that 90% of people with reactions to Remicade have them with Humira. I thought because Humira was human proteins there was less chance of a reaction. If Remicade is working for you, however, I would stay on it as long as possible... once you quit it, you can't go back to it so that is a huge issue.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade,ulcer shrunk in 3 months, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 1/3/2008 12:59 AM (GMT -7)   
I was on Remicade with only moderate results. Then I developed a reaction to it and had to stop. I found it expensive and time consuming. I had to take a day off work every six weeks and that was difficult. I went on Humira about a year later. I have had great results. I am in my first and only remission for a year and a half now with Humira. It is less expensive for me and not at all time consuming. I wish you luck with your decision.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/3/2008 3:44 AM (GMT -7)   
I also am on Remicade for over 2 years. If the Remicade is working for you why switch. I would recommed staying on Remicade until it does not work for you. Then switch to Humira. Once you stop Remicade its very hard to go back on it because you build up anti-bodys to Remicade.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


sassyone
Regular Member


Date Joined May 2004
Total Posts : 120
   Posted 1/3/2008 7:15 AM (GMT -7)   
Thank you all for you advise and wisdom. This is a very difficult decision that I am not taking lightly. Thanks again to everyone!
"Even if you are on the right track, you'll get run over if you just sit there." 
                          ~Will Rogers~ 
 
Dawn


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 1/3/2008 4:54 PM (GMT -7)   
I wouldn't fix what ain't broke. I know it's a bummer to get the infusions but the risk of not responding to the Humira and going into a flare (and Remicade no longer working for you since you got off it) would be too much for me to take.

I stopped Remicade when I started to react to it and wasn't responding anymore. I was really bummed as the drug was awesome for me. I started Humira and thankfully am doing great on it (and haven't heard the 90% either, quite the opposite actually). But I would have stuck it out with Remicade if it had worked so I don't exhaust all my options.
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