I am sorry you are going through so much..........keep on posting and let it all out here. We are you support so vent away.
Crohn's disease diagnosed in 1974 at 13 years of age. First surgery at 18 removed entire colon, rectum and 3 ½ ft of small intestine resulting in an ileostomy. Multiple surgeries since, with only 4-5 ft of small intestine remaining at this time. What remains is in bad shape with two severe fibrotic strictures. Very painful. Any further surgery would likely put me on TPN, which I've been fighting to avoid with anti-motility meds and pain management. Silver lining - My hubby of 21 years is the kindest man in the world and my hero, and our 18 year old son is a constant source of pride and joy for both of us.