Crohn's in mouth questions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/2/2008 10:34 PM (GMT -7)   
I have a couple questions about Crohn's in the mouth. 
 
First of all, I keep getting the mouth ulcers, I believe they are called aphthous ulcers, either on my tongue, roof of my mouth, sides of mouth, etc.  I just get over one and then another forms somewhere else.  Does that happen a lot and is that a sign of a flare?
 
Also when I went to the dentist 6 months ago, I was told I have a mild case of gingivitis.  I have never had it before and I try to keep my teeth and that very clean.  Can Crohn's contribute to gum disease?
 
Thanks for any replies!  :-)

Post Edited (indigosunrise) : 1/2/2008 10:39:00 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/2/2008 11:16 PM (GMT -7)   
I used to get those mouth ulcers mainly on the roof of my mouth, they are CD related, I don't know for sure about the gingivitis though...Taking probiotics daily has kept my mouth ulcers at bay, havn't had one in the whole 4 yrs I've been taking the probiotics and before that I got them frequently.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 1/3/2008 12:51 AM (GMT -7)   
I used to get them all the time. Many at a time or one right after another for months on end. I would maybe have one or two days every 6 months where I did not have one. This went on for years and years only subsiding when I went on steroids. I was in a constant flare for about 15 years. I use something called Kenalog in Orabase. It comes in a tiny tube and you put on the mouth sore at night. It does make them heal faster, but doesn't prevent more from forming. You need a prescription for it. I rarely get them anymore now that I am on Humira.

As for the gingivitis, I have never been told that I have that, but I will bleed more when I have a cleaning at times. My dentist feels that it is due to the immune system and/or medications that I take, but not actually the Crohn's itself.

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 1/3/2008 10:28 AM (GMT -7)   
I've had "mouth issues" of late. Very sore gums. I had a "flare up" in my mouth I guess I'd call it. The gums near my front lower teeth got so inflamed that my front lower teeth became almost slightly loose and I had pain down in what felt to be my jaw bone. I was checked for tooth abssesses and everything, and NOTHING. I am finding this disease manifests itself in some very peculiar ways, not always what the medical community is able to recognize it would seem. I have always been an oral hygiene fanatic so it is very disappointing that I am having issues with my gums now. I too have been told I have gingivitis/gum disease and have never had problems before.

Not long ago, I thought I had strep throat perhaps. I went to the doctor (general practitioner) and the throat swabs were negative. He looked in my throat and said I had a large ulcer on my Uvula. It went away on its own, but was painful until it did. Another wasted trip unfortunately.
Type I Diabetes- 28 yrs. (MiniMed Insulin Pump)
Celiac Disease- 6 yrs.
Crohn's Disease- 1+ year (Nov. '06)

Post Edited (miguelblanco) : 1/3/2008 10:31:35 AM (GMT-7)


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/3/2008 10:35 AM (GMT -7)   

Thank you all for posting on here!

Miguelblanco that sounds like my story!  I have never, ever had any kind of gum disease before and when I went to the dentist and he told me that I about fell off the chair!  That was before I noticed all this other stuff and went to the doctor and found out about possibly having the whole IBD thing (my doctor believes I am in the beginning stages of Crohn's, although the biopsies did not confirm it).  Sometimes I do get sores on my gums as well.  Sometimes when I floss I will bleed real easily but other times I will not bleed at all.  It is weird! 

 



miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 1/3/2008 11:18 AM (GMT -7)   
indigosunrise said...
Thank you all for posting on here!

Miguelblanco that sounds like my story! I have never, ever had any kind of gum disease before and when I went to the dentist and he told me that I about fell off the chair! That was before I noticed all this other stuff and went to the doctor and found out about possibly having the whole IBD thing (my doctor believes I am in the beginning stages of Crohn's, although the biopsies did not confirm it). Sometimes I do get sores on my gums as well. Sometimes when I floss I will bleed real easily but other times I will not bleed at all. It is weird!


I've had to be very careful about the types of toothpaste I use. I was going to use that "Tom's of Maine" stuff, but hated the taste of it. I've settled on some old school "Pepsodent." It's white in color, not overly strong and non-whitening. My dentists have said stay away from whitening toothpastes/products by all means for me. Too drying and aggravating. Even plain old Crest paste was making my mouth sore.

It is nice to hear from others that are experiencing the same things, even though it's all so confusing and frustrating too, isn't it?! :-)
Type I Diabetes- 28 yrs. (MiniMed Insulin Pump)
Celiac Disease- 6 yrs.
Crohn's Disease- 1+ year (Nov. '06)


raf
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/8/2008 9:47 AM (GMT -7)   
I had an ulcer on the side of my tongue that is now almost completely gone...painful & it made me slur my speech. Noone said anything at work, but I am sure it was noticeable.
dx Crohn's in 2004 at 37 years old.
3600 mg Asacol/day since dx.
Mild/frequent symptoms...fever, d, headaches, cramps.
 


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 1/8/2008 12:38 PM (GMT -7)   
OH YEAH! I've had the mouth ulcers! BOY, they are a PAIN. It's like someone has taken a small carving knife and sliced up every inch of my mouth. I always get them when I have a flare. As if the FLARE isn't bad enough, I then have to talk funny for days until the ulcers go away. I FEEL YOUR PAIN!

Crohn's can contribute to ANYTHING, including gigivitis. Being an auto-immune disease, Crohn's can cause you to have all sorts of medical issues that have nothing to do with your bowels.

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 1/8/2008 2:05 PM (GMT -7)   
I can identify with this. I've had them all my adult life but much worse in the past 10 years. I get them on my tongue, gums, soft palate, tonsils and one time I was sure I had them in my esophagus. I rarely get them on my inner lips or inside cheek anymore. They make you feel miserable. I personally believe that they are caused by probably a dozen different things, like fever is caused by many things. My doctor is always blaming "stress", some people insist they are viral (mine were cultured once and grew nothing other than normal flora) , strong toothpastes definitely aggravate them, chemo patients get them when their white count gets too low. I have heard that some researchers think they are caused by an abnormal immune response to normal bacteria in the mouth which is why only normal bacteria grow in the culture. I have tried every remedy known and the only thing that worked well for me was a steroid rinse. How can you put an ointment on your tonsil? The only period of time in my life that I did not have these was during two pregnancies. that would make sense because when you are pregnant you are immunosuppressed.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 1/9/2008 8:11 PM (GMT -7)   
I haven't had the ulcers, but I have had a lot of redness of my gums esp the upper. I had some upper teeth capped, and thought it was a reaction to the metal, but now that I have been taking a lot of vitamins, it is better. I have had a lot of dental work over the years as opposed to my 2 sisters who have not, and have narrowed it down to malabsorption syndrome due to crohn's. So you younger folks especially need to to diligent about vitamins/minerals intake. I always thought diet alone would be enough, and I was wrong.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 1/9/2008 11:15 PM (GMT -7)   
I get mouth ulcers/sores before and during a flare. They are indeed painful. It's bad enough that you can't eat because of the pain in your tummy...but the mouth sores make it almost impossible to eat anyway. Not enough to get one you end up with a double whammy. Fortunately my flares have been mild lately so I haven't had the mouth issues in a while.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:30 PM (GMT -7)
There are a total of 2,732,818 posts in 301,057 threads.
View Active Threads


Who's Online
This forum has 151210 registered members. Please welcome our newest member, Margaretcb.
372 Guest(s), 12 Registered Member(s) are currently online.  Details
notsosicklygirl, Psilociraptor, JaSanne, Rikky1, magoo2, BKelly, Buzzlymeyear, Ed Ski, Red_34, trumpet123, Sue*Nash, Sissy63


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer