Active Crohns/Inactive Crohns, I am confused ???

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Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 1/3/2008 8:18 AM (GMT -7)   
I was in the hospital 17days in Dec. I was admitted for partial obstruction that cleared up and still had ongoing abdominal pain on the right side. Test were run and I was told I had no active Crohns showing and a fistula that had healed. I was thought to had developed some sort of infection, first was told it might be C-difficile and then that that wasnt conclusive. I was still given Vancomycin in the hospital and discharged on it for 14days. I was also in the hospital in Sept for 9 days without a blockage but ongoing pain that was not controllable and couldnt eat or sleep, etc. I plan on asking my GI some questions next week about my latest stay and what the plan is now. He has raised the dosage of Remicade and mentioned  switching me to Humira if necessary. I have had numerous abdominal surgeries and I  am wondering if I have a stricture from scar tissue or something else that is causing problems. How can they tell from tests if the Crohn's is active or not? Something is going on because I havent had back to back hospital stays for Crohn's that close together in over 15 years. Every time I develop a bad flare lately it leads to the hospital. Has anyone else been told there Crohn's is not active but still had problems with it?
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/3/2008 8:43 AM (GMT -7)   
Yeah I had 3 hospitalizations in Feb and March of 2007. The pain I experienced was obstruction pain. They did multiple catscans, SBFT, blood tests and couldn't find any active Crohns. It was so frustrating. Finally I put myself on a strict low residue diet and did a brief round of Pred and that helped. But I really think it was the low residue diet that helped the most. I think my problems were caused by adhesions. I think one caused my intestines to get kinked or something. Maybe thats whats going on with you. But I definetly feel your pain, it really is like hitting your head against a brick wall. Sure hope you feel better soon.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 1/3/2008 9:14 AM (GMT -7)   
I know it is so frustrating. There like we dont believe it's your Crohn's and I am like well I cant eat and I have severe pain, and it is on the lower right quadrant of my adbdomen. I had lots of adhesions removed during a hysterectomy surgery in Sept 2004. I had one doctor tell me that he believed it could be something going on from previous surgeries causing problems too. I dont know how they determine that, they mentioned possibly doing a laparocopy (sp?) if I didnt get better recently. I just pray that I dont have another hospitalization again anytime soon. I see doctors at the Mayo so that has been a godsend. I am on a low residue diet too right now and I am taking a Probiotic (Florastor). It is good to talk to other people than can relate to what you've been through. Thanks, Amy
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/3/2008 9:20 AM (GMT -7)   
Can't the Dr. perform a colonoscopy to see what's going on in there?
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 1/3/2008 9:41 AM (GMT -7)   
Adhesions can be confusing. I had one tying my small intestine to my front abdominal wall, like a sausage and I had no obstructive symptoms. My gyn who did the surgery (laparoscopic) was amazed I hadn't obstructed. In fact, he thought he was going to have to schedule me for an open surgery to release it but was able to do it through the scope. I had pain (the reason for this laparoscopy) in the RLQ, exactly where the adhesion was, which went away after the lap only to return 3 months later. They did another laparoscopy, thinking the adhesion had reformed. Guess what? It hadn't. Same pain, no adhesion the second time.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 1/3/2008 9:51 AM (GMT -7)   
They were going to do a colonoscopy in the hospital but didnt due to the pain stopped and I was able to go home a couple of days afterwards. I imagine I will probably have some more tests in store soon. I have some tenderness off and on on that same side but no cramping or real pain like before. It's like it feels bruised or something. When I had the hysterectomy it was done laparoscopy and it took 5 hours due to adhesions needing to be remove first, the surgeon said he had to perform adhelyosis (sp). I think it could be adhesions too but not certain. I am trying be very careful with my diet because this latest time I had no pain prior to going to the hospital like in Sept. I got real bloated 2 hours after eating lunch, the pain then wrapped around into my back and I was in so much pain I was writhing and couldnot sit up. My husband called 911 and the paramedics sit me up on the bed to move me and I threw up. I knew then it was an obstruction for sure. In Sept. I had pain for almost 2 weeks from even trying liquids and taking pain meds like Percocet and I ended up being directly admitted to the hospital by my GI. The Mayo seems to be big on MRI's and Cat scans. I havent had a SBFT or colonoscopy done recently.
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix

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