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keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 1/3/2008 6:59 PM (GMT -7)   
Is is possible to be flaring but all the labs show everything is ok?
Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
 
Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, norco 10/325 x 4x, fish oil, vit e,folic acid,Vit B12,inject monthly,
 
         
 
 


Valorie
Regular Member


Date Joined Nov 2004
Total Posts : 64
   Posted 1/3/2008 7:35 PM (GMT -7)   
yes, definitely- have had many flares where my bloodwork was totally normal. think it is all in the timing and where you are in the flare at the time. also if you are on pred, that messes up alot of the lab values so its hard to tell if they are off. i know how frustrating it is to feel like crap and not get independent proof but i am working on believing in myself. good luck and hang in there!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/3/2008 8:50 PM (GMT -7)   

Yes I believe it is possible too.  My hubby has had flares and I would have bet the bank on Crohn's as after all these years I can tell and the physician said flu............

Just my 2 cents worth.

Kitt


 
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
******www.healingwell.com/donate***
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4096
   Posted 1/3/2008 9:07 PM (GMT -7)   
Yep. go by symptoms..you know how you feel
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/4/2008 10:22 AM (GMT -7)   
My daughter's CRP and sed rate were normal while she was on meds, but her RLQ pain was still there for awhile. We believe that as long as you have symptoms like that, you might not be in flare but your Crohn's can still be active.

keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 1/5/2008 3:00 PM (GMT -7)   
Thanks for the replies everybody.  Can anyone explain the difference between being "active" "flarring".  Thanks, God Bless!

Dx with CD 1987, 3 resections, 3 abcess sx, DD back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
 
Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, norco 10/325 x 4x, fish oil, vit e,folic acid,Vit B12,inject monthly,
 
         
 
 


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 1/6/2008 12:04 AM (GMT -7)   
To me, active disease is when you have symptoms such as D/frequency, pain, blood, etc. A flare is when the symptoms go from either not there/barely there to very evident or when things get totally out of control. You know, you are having to go frequently with some pain and the next day, you can't get off the toilet, sweating profusely, cannot eat, lots of pain, bleeding and etc... That to me is a flare. But that's only my opinion and experience.

By the way, in the beginning of my disease years ago, I used to lose lots of blood with every bowel movement. For some reason, I would rarely show that I was anemic. Once I was in the doctor's office exlaining how I was bleeding so much and he said that it wasn't possible because I was barely anemic. He decided to do a rectal exam and when he did, he had blood on his gloved finger (sorry for the grossness) when he removed it. He then asked me if I was eating lots of tomatoes. He didn't think it was blood until he tested it--thought it was tomatoes!? I have since switched doctors. So yes, I think tests don't show everything that's going on in our bodies.
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