Lookin for more advice. Crohns free in 2008?????

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Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 1/4/2008 12:04 AM (GMT -6)   
Well to start the new year I want to take a different approach to dealing with my CD.
I have CD with chronic constipation not "D". (yet!)
The only drug Im on right now is entocort 9mg day. My GI wants me to stay on it indefinatly!!!! Is this normal? The FDA says 6 weeks. I have tried without success Asacol and  pentasa. The entocort works some but I still have pain in the RLQ. The next drug for me is imuran.
I plan to make some drastic changes in my life right NOW!!! Ive been preparing for weeks. I have read the makers diet and researched the SCDiet. Heres the plan. Tell me what you think?
1. Flax oil capsuls 3 x day to help with inflimation.
2. Chamomile tea first thing in the morning and before bed.
3. No alcohol.
4.Nature Made Maximin vitiman pack. These were 2 for 1 at walgreens. Are they any good?
the contain...Balanced B-100, vitiman C, Vitiman E, Calcium, Vitamen A and D, and then a multivitiman.
No Iron, it stops me up!!
4. Natures way acidophilu***** How in the world can 50 million bacteria live in a dry pill? or a capsul for that matter? is this a scam???
5. Diet. Fish, beef, chicken Raw fruits and Veggies ONLY!! Nothing prepared, white, or fast food!
Is there anything else?

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 1/4/2008 12:06 AM (GMT -6)   
Sorry for the poll! oops

Elite Member

Date Joined Feb 2004
Total Posts : 20557
   Posted 1/4/2008 1:02 AM (GMT -6)   
I use:

bee propolis (natural anti-inflammatory and excellent dietary supplement)

probiotics (primadophilus reuteri made by natures way, has guaranteed intestinal release along with other benefits, like aiding with lactose intolerance, high cholesterol and for women, vaginal health)

stool bulker called Prodiem, similar to metamucil (strongly suggested by my GI) has done wonders, instead of many trips to the can a day with little deposits, I go less times with larger ones and no more mucus, it helps for D and C.

omegas 3-6-9 (more natural anti-inflammatory)

vitamins b12, A and C-calcium ascorbate (very necessary for IBDers)

chamomile tea (another anti-inflammatory) first thing every morning before eating anything

Chlorophyll which I just started with yesterday, essential for crohnies, please google it for more info.

I take all of the above everyday....

I also avoid processed foods (especially table sugar and artificial sweetners, ect) fast-foods, animal fats, caffeine and exercise regularly...it's amazing with all of the above combined for me how much healthier I am overall and not just better CD wise...I also drink nothing but water and chamomile tea (one/day).


My bum is broken....there's a big crack down the middle of it!  LOL  :)

gemini kiwi
Veteran Member

Date Joined Nov 2006
Total Posts : 1136
   Posted 1/4/2008 4:05 AM (GMT -6)   
Drink lots of water and move that body. :-)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/4/2008 9:33 AM (GMT -6)   
I personally do not eat red meat anymore as it is very hard to digest. Might I suggest more fish, turkey and chicken. I found the red meat kept causing me to have partial obstructions. Since I quit eating it things have improved alot in that area.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 1/4/2008 11:54 AM (GMT -6)   

No, Entocort at 9 mg a day indefinitely is not the standard. Entocort can be used at 9 mg a day for up to 8 weeks to induce remission. The FDA has also approved Entocort as a maintenance medication at 6 mg for another three months after the induction of remission:

1) to induce remission, 9 mg up to two months

2) maintenance, 6 mg up to another three months 

My daughter never has D. At 9 mg a day, the Entocort made her a little constipated (but of course not as bad as pred). When she tried to go off Entocort, she flared, so now she is on 3 mg a day...been on Entocort nonstop since July 2006 and had no symptoms for at least the past year.
Be sure to check out the ingredients in your vitamins...they might be "illegal" according to the SCD or Maker's diets. This is why we get the Freeda SCD-legal multivitamins from www.lucyskitchen.com. Solgar's B complex vitamin is also OK. Don't take any multivitamin with iron in it because: a) nobody should take iron unless their labs show they need it and b) the other ingredients in the multi interfere with iron absorption...also, multis are meant to be taken with a meal and food interferes with iron absorption. 
Morton's salt with iodine has dextrose in it, illegal according to SCD. (legal list on www.breakingtheviciouscycle.info). However, I think the plain Morton's salt is OK.    
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivit, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. Off SCD diet but wheat was iffy so back on SCD modified to include potatos and rice.   

New Member

Date Joined Jan 2008
Total Posts : 17
   Posted 1/12/2008 10:51 AM (GMT -6)   
I hope the new diet is going well. I just recently started getting more serious about a diet/lifestyle change and I am already amazed after one week. However, I already had a decent diet so I wasn't starting from the bottom.

Here is what I am doing and what is working for me (similar to you): no meat (except fish), no wheat, no processed, no sugar and no dairy. Basically, no crap which just plain stinks at times! Seriously, I love things like cookies and pizza! I also started a juicing program in the am and try to eat a salad at lunch. I was worried about raw foods bothering me so I have little amounts of raw greens with lots of avocado, cuks, etc. There is so much good stuff to eat once you go in that direction. I love food, especially ethnic type foods which are more conducive to eating well. I also eat lots of miso soup and brown rice. I have tried to create a diet based off of many health plans. If you just remove all the junk, that is the major starting point. Can I recommend some other books: Valerie Harper's Controlling Crohn's the Natural Way, Robin Robertson's Vegan Planet, Natalia Rose's the Raw Foods Detox Diet, Michael Pollen's the Omnivores Dilemma, and the new cookbook Veganimicon. I only take fish oil capsules and a good daily multi-vitamin.

I don't take any prescribed pills. After a surgery in 1993, the doctor wanted to get me started on pills (I think pentasa) and I asked if this would prevent my crohn's from returning and he said that there was no proof or guarantee of that by taking the pills. So I thought that I wouldn't take pills until I get sick. Mind you this was after years of pills, in and out of the hospital and this surgery. I didn't really think about diet or things back then but I simply lived like I didn't have crohns (if that makes sense). I have only had a few minor flare ups and I usually drink lots of herbal teas (peppermint) and miso soup and I am fine. In the back of my mind I always fear getting sick again but I believe that healthy living is the best staple for anyone. Get outside as much as possible even just to the local park and trash your TV!! I also recommend yoga, walking, light running, and hiking.

My major weakness is coffee (a true Seattle-ite). I wish you well. You can do it! Crohn's disease stinks, plain and simple. It is nice to have this forum to share ideas and information with others who deal with this disease. Thank you for posting your question and making me think about my own health! Cheers! yeah

Veteran Member

Date Joined Jul 2003
Total Posts : 1205
   Posted 1/12/2008 11:04 AM (GMT -6)   
If you can eat yogurt try that for bacteria use the plain with no sugar I buy 1 tub a week and chuck down 4-6 table spoons daily.
Drink lots of decaf green tea fresh brewed not bottled sugary stuff.
Do not take omega 6 it has been proven to cause inflammation
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

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