REMICADE AND PREGNANCY....I NEED YOUR HELP!

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PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/4/2008 2:50 PM (GMT -7)   
HI THERE!!
 
I HAVE JUST TURNED 27 YEARS OLD A FEW WEEKS AGO, I WAS DIAGNOSED WITH ULCERATIVE COLITIS IN JANUARY OF 2007, OSTEopenIA (DUE TO PREDNISONE), PSC (PRIMARY SCHERLOSING CHOLANGITIS) IN JULY 2007, AND FIBROMYALGIA DECEMBER 2007..IT'S BEEN ONE HECK OF A YEAR!! 
 
I HAVE BEEN FEELING SOMEWHAT BETTER BEING OFF THE PREDNISONE AND THE URSO IS HELPING MY LIVER PAIN AND MY BLOOD WORK SHOWS IT!
I HAVE BEEN RECEIVING REMICADE TREATMENTS SINCE AUGUST 2007 FOR THE ULCERATIVE COLITIS...
MY HUSBAND AND I WANTED TO CONCEIVE IN THE VERY NEAR FUTURE..AND WANTED TO ASK YA'LL about REMICADE AND PREGNANCY...I HAVE HEARD THAT YOU NEED TO BE OFF OF REMICADE FOR 3 MONTHS BEFORE TRYING TO CONCEIVE?? IS THIS TRUE? I ALSO WANTED TO KNOW ANYTHING about HAVING LIVER DISEASE AND PREGNANCY? I HAVE HEARD THAT YOU COULD BE INFERTILE OR HAVE A LOT OF TROUBLE TRYING TO CONCEIVE?
 
I APPRECIATE ALL SUGGESTIONS AND CONCERNS! PLEASE HELP! I NEED YOUR KNOWLEDGE!
Diagnosed with Ulcerative Colitis - January 2007
Diagnosed with Primary Scerlosing Cholangitis (Liver Disease) - July 2007
Medications include: Asacol, Remicade, Urso, Neurontin, Prednisone (Just weined off), Imuran, Percocet


PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/4/2008 2:51 PM (GMT -7)   
O YEA, I HAVE BEEN OFF OF IMURAN SINCE NOVEMBER....HOW LONG DO YOU HAVE TO BE OFF IMURAN IN ORDER TO GET PREGNANT? THANKS!!
Diagnosed with Ulcerative Colitis - January 2007
Diagnosed with Primary Scerlosing Cholangitis (Liver Disease) - July 2007
Medications include: Asacol, Remicade, Urso, Neurontin, Prednisone (Just weined off), Imuran, Percocet


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/4/2008 5:57 PM (GMT -7)   
Hi PSC27!

We have had several members take remicade during their pregnancies. I believe one member has had two Remicade babies. In regards to liver disease and infertility, that is something I think you should ask your doctor. I'm sure he can give you the statistics and concerns he might have since he knows your medical history.

Also, I have a favor to ask. It is very difficult to read posts writen in all uppercase letters. In the future, could you please not post in all caps? Thank you.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 1/4/2008 6:55 PM (GMT -7)   
I've had 2 remicade babies. Email me. Click on my username to get my email address.

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 1/4/2008 7:04 PM (GMT -7)   
I was diagnosed with Crohn's in Jan 06. I got very sick during pregnancy in 05 and literally thought I would die several times. My husband and I (I just turned 28 yesterday) are trying to get pregnant again and my GI gave us the go ahead to stay on Remicade. As fas as drugs go, it's fairly new so there aren't alot of studies but my GI (and many others from experiences on here) think it's safe during pregnancy and even breast feeding. Talk with your GI about the pros and cons. As long as your UC is under control Ithink it's better to stay on meds than risk having a flare up which would be a problem. Take care and goodluck!

Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/5/2008 9:03 AM (GMT -7)   
thank you for your help, i really appreciate it...i was just diagnosed with fibromyalgia december 20th of 2007 just a few weeks ago.  My GI just stressed that Remicade during pregnancy is not good, I just don't want to jeapordize my health and my baby's health, you know?!  As far as my UC goes, I have been doing great since I started Remicade.  My GI said I was the "sickest patient he has ever had"...I just don't want to miss out on being a parent, its always been a goal of mine...and even though my health problems I want to be strong even if I only have one I would be content.  Best of luck to you, too! Thank you!
Diagnosed with Ulcerative Colitis - January 2007
Diagnosed with Primary Scerlosing Cholangitis (Liver Disease) - July 2007
Medications include: Asacol, Remicade, Urso, Neurontin, Prednisone (Just weined off), Imuran, Percocet


JustNerves
Regular Member


Date Joined Jun 2006
Total Posts : 33
   Posted 1/6/2008 2:02 PM (GMT -7)   
I am having this debate right now. I am 7 weeks pregnant and starting to get some symptoms of Crohns. Are you from Canada? I am and my doctor told me the 3 month thing as well. I had an infusion about 5 weeks before conception and have not had one since. I have recently learned of other GIs besides mine that are allowing their patients remicade infusions. At this point I think I may be leaning toward getting at least one to get me throught the first trimester.

If you are in Canada, a good place to call is MotherRisk which is run out of Sick Kids hospital in Toronto. I phoned them about Imuran as well, which they said was okay. Good luck with everything.

PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/6/2008 2:17 PM (GMT -7)   
wow,
Imuran is a category D drug, which is unsafe for pregnancy...
No, I am from USA, NJ
 
I have talked to a few people who have had remicade while pregnant, just not after 32 weeks because it crosses the placenta...
It is a great debate, isn't it? I wish it was more black/white on what to do...
Ulcerative Colitis (Pancolonic) - January 2007
 
Primary Scerlosing Cholangitis (Liver Disease) - July 2007
 
Liver Stage 3 Fibrosis Approaching Cirrhosis - July 2007
 
Ulcerative Colitis (Pancolonic) has CLEARED/HEALED entirely - colonoscopy - November 2007
 
Fibromyalgia - December 2007
 
 
Medications include: Asacol, Remicade (Began 8/15/2007), Urso, Neurontin, Prednisone, Imuran, Percocet, Lidoderm Pain Patches, Furosemide


JustNerves
Regular Member


Date Joined Jun 2006
Total Posts : 33
   Posted 1/6/2008 2:28 PM (GMT -7)   
Wow, thats so strange. We don't have "categories" here. Doctor's tend to go by numbers and studies that have been done. the answer I got about the Imuran was that there have been lots of pregnancies studied because of moms taking the drug after transplants etc. and that it was deemed safe. There may have been lower birth weights and premmie births but that they could have been attributed to the disease and not the drug. It is a great debate. I wish you all the luck in the world getting pregnant. I'm sure you will have no problems. I am also 27 and this is my first pregnancy. Very stressful and I post a lot.

PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/6/2008 2:31 PM (GMT -7)   
Isn't it terrible at such a young age that we have to deal with this stress? My husband and I want to conceive before my liver disease worsens, and then I am deemed as "infertile" that really scares me...I may not be in best condition to get pregnant, but I feel if I don't try to I will be devistated...
Ulcerative Colitis (Pancolonic) - January 2007
 
Primary Scerlosing Cholangitis (Liver Disease) - July 2007
 
Liver Stage 3 Fibrosis Approaching Cirrhosis - July 2007
 
Ulcerative Colitis (Pancolonic) has CLEARED/HEALED entirely - colonoscopy - November 2007
 
Fibromyalgia - December 2007
 
 
Medications include: Asacol, Remicade (Began 8/15/2007), Urso, Neurontin, Prednisone, Imuran, Percocet, Lidoderm Pain Patches, Furosemide


JustNerves
Regular Member


Date Joined Jun 2006
Total Posts : 33
   Posted 1/6/2008 2:35 PM (GMT -7)   
Dont let the fear deter you. What I have learned so far from posting and reading tons of books is that babies can withstand alot in there. I was scared too (still am) but try and think of all the positive stories. That is why I like to post here, people have great stories and advice to share and since I feel so bad lately I just sit here and read anyway.

PSC27
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 1/6/2008 3:05 PM (GMT -7)   
what medications are you currently taking??

Ulcerative Colitis (Pancolonic) - January 2007
 
Primary Scerlosing Cholangitis (Liver Disease) - July 2007
 
Liver Stage 3 Fibrosis Approaching Cirrhosis - July 2007
 
Ulcerative Colitis (Pancolonic) has CLEARED/HEALED entirely - colonoscopy - November 2007
 
Fibromyalgia - December 2007
 
 
Medications include: Asacol, Remicade (Began 8/15/2007), Urso, Neurontin, Prednisone, Imuran, Percocet, Lidoderm Pain Patches, Furosemide


JustNerves
Regular Member


Date Joined Jun 2006
Total Posts : 33
   Posted 1/6/2008 4:07 PM (GMT -7)   
Currently, only Salofalk. Before I knew I was pregnant I was on Imuran and Remicade.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 1/6/2008 6:31 PM (GMT -7)   
The doctors can offer short term effect info on remicade babies, but how about the long term? Say 10, 20 or 30 years?
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