Couple of gentle comments here, no offense intended.
First of all we are all equal and no one comes with a title as we are not professionals here.........but members of a support group. Secondly, I agree many things do not get into a medical record as should and by being an advocate for yourself you are doing a good thing. Educating yourself about your own disease is very wise.
Post Edited (Blue Velvyt) : 1/5/2008 1:36:02 AM (GMT-7)
I will only make a few comments. I am sorry if you have had bad experiences with physicians, but please remember your medical record reflects Objective and Subjective comments by the physician.
If you have an issue that is a possible malpractice, do not talk about it with anyone other than your attorney. That is just fyi.
If your venting, perhaps say that in your post as we will always have a debate over good doctor/bad doctor and good patient/bad patient. We are all here to support and show caring. Having Crohn's Disease is a tough road, I know this and everyone of you lives this daily. Each person has their own background and experiences to draw from.
You all have my respect and admiration for living this disease and not letting it control you.
I am sorry I did not mean to come accross that way. I agree it is great to share, my concern was new people reading might misinterpret the posts as anti physician, and I would never want someone to not seek medical help . I did not mean to imply members were attacking each other. I have not seen that.
I truly care deeply about everyone here and I am trying to get to know everyone...........I know I am the newbie here as a Mod and I will always do my best to keep the boards safe and comforatable for all.
Perhaps I should have posted an intro re myself but I did not want to come on with a long intro and be perceived as grandstanding. :)
I am always open to members opinions and my email is wide open too.
Post Edited (stkitt) : 1/5/2008 11:45:10 AM (GMT-7)
Post Edited (Kiera) : 1/5/2008 1:01:32 PM (GMT-7)
Nanners, you are right, if a newbie can learn anything here it is how to become your own Advocate. Patients have the right to know about their meds, treatments etc. Patient's have the right to say no. Patients have the right to Pain relief. Patients have the right to have a spouse or family member with them at their bedside or in the clinic in the exam room.
I have taken my hubby with me or I have gone with him to his appointments.
I will confess, if you all don't laugh, I have refused to be weighed at the clinic for 8 years, I just say no thank you to the cute, young nurse who wants me to hop on the scale in the hallway and than she can shout out my weight. My Doc said " Is it true we have not weighed you in 8 years?" I said yup but I will show you my Weight Watchers Card. Patients have all kinds of rights. LOL
When you get one of those surveys in the mail asking how your visit to the hospital or clinic went.............fill it out and send it back. They truly do make a difference in getting changes made in health care. I am the first to admit change is slow..............very slow.
Bless you all and keep on working and supporting each other.
Hugs at ya