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Faizi
Regular Member


Date Joined Oct 2006
Total Posts : 451
   Posted 1/5/2008 5:16 PM (GMT -7)   
I have not posted in some time -- not because I have not thought about this place or been concerned -- just busy Crohning along with my daughter who has the cruddy disease. I used to write here regularly and learned much from the posters here for which I am most grateful.

Right now, we are kind of in the doldrums, I reckon. We started off with some hope -- Remicade, Humira. I don't mean to say that we are totally without hope now and it is not that we thought the Remicade and Humira were cures but we did hope for possible remission that might last a couple of years.

Could be worse. I think she has been in the hospital two more times since I wrote here. Just got out again a couple of weeks ago. At least now, she can slide off the Prednisone very quickly and does not suffer much ill effect. She is now on Entocort in addition to the Humira and Imuran. She has an abscess and a fistula and will have surgery for those in a couple of weeks. I really liked the surgeon when we met with him. I like a doctor who is straight forward and knows his/her stuff -- no holds barred. He told her that she is on a track for surgeries in the future; that the time will likely come when she will have to have a bag, either temporarily or permanently -- unless there are new drugs developed or a cure.

By far, he is the most knowledgeable doctor we have met. That was refreshing.

A lot for a nineteen year old woman to have to take in but I would rather for her to hear the truth of the crud than to think that it is just going to go away.

Anyway, we are doing all right. She still works every day that she is not in the hospital.

Just wanted to drop a line and say "hi." I will continue to read the forum because I have found this to be the best source of up to date information.

Thanks to everyone.

Faizi

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 1/5/2008 10:22 PM (GMT -7)   
Faizi,
Just wanted to wish you and your daughter all the very best for 2008.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/6/2008 3:27 AM (GMT -7)   
Faizi,
I also wanted to wish you and your daughter the best year for 2008.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/6/2008 10:35 AM (GMT -7)   
Faizi,
Hello, I am Kitt. Nice to meet you.  I wish you and your daughter the best and she must be pretty special holding down her job and dealing with the disease.......a strong young lady.
 
Please keep us posted.

Kitt
 
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
******www.healingwell.com/donate******
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 

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