Has the doctor discussed giving you medications prior to the infusion to prevent reactions. Given the long length of time between infusions, it would be much like starting over. These days it is common to premedicate patients with Benadryl/Claritin and Tylenol before the first infusion.
I took Remicade for 2.5 years. My gut went into remission after 3 infusions. First time in 25 years I could eat almost normally. I had no problems other than Remicade stopped working and towards the end I would feel "flu-ish" after the infusions. The first 2 years were a breeze. I do not have fistulae so can't comment on that aspect.
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CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?