I'm freaked out....

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LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 1/7/2008 6:50 PM (GMT -7)   
Well,my scope is on Wednesday,and I'm completely freaked out,to the point where I want to cancel! Iv'e been on Humira since the begining of October,so this scope is to see how well it is working.I'm so scared because I feel great,but the last time I felt great and they found alot of inflammation,and my stricture was the same.I hate the thought of going in there feeling good,just for them to find something wrong with me.
 
I HATE THIS!!!!!!!!!!!!!!!!!! mad mad
 
I'm so depressed right now.
 
Lynn

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 1/7/2008 7:13 PM (GMT -7)   
Definitely don't cancel it... you'll be fine! Even if you are feeling fine and don't get the scope..if there are issues they will still be there and you just won't know or won't be able to treat them. It's better to be on top of any issue then let it go untreated. Preventitive is the way to go. GOOD LUCK!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/7/2008 7:23 PM (GMT -7)   
Lynn

I'm sorry to hear how ur feeling and I understand all too well. Like u said b4 think positive thoughts. And if worse comes to worse view it like this: ur on humira and ur feeling fine SO, if they do happen to find somethingwrong (which we pray that they won't ) that itl probably be n the early stages so ull b able to stay feeling okay while they treat it. Rather than waiting until it has u doubled over n pain (which seems to b my m.o. lately). Get it over with and the anxiety will disappear. This is the thought process I used to decide to go ahead and have my surgery. We can either b pro active and take control of this thing or b reactive and deal with it after its already started to kick our butts. I don't know about u but as much as it sucks I'd rather take the offensive route. Besides ur n my prayers and I say ur workin urself up over nothing! :o) keep us posted!!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/8/2008 3:29 AM (GMT -7)   
Hi Lynn, I would not cancel it. It is important for ppl with CD to have these test. My prayers will be with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/8/2008 9:57 AM (GMT -7)   
The anxiety of not knowing is the worst part...go get the scope, don't cancel it. Just know that you will deal with whatever the Doc finds out. You can do this, don't get freaked out, it'll be fine. Take care.
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 1/8/2008 5:58 PM (GMT -7)   
Well, my personal belief is to leave well enough, well alone. If it ain't broke, don't try to fix it, etc. I don't agree to a scope just to see if a treatment is working or not. HOW I FEEL tells ME that, and I'm the most important one in this equation. The prep itself is irritating to the intestines, large and small. If the gut is improving w/treatment, why on earth do I want to irritate any more than absolutely can't be avoided??? I can avoid a scope. They can't do one unless I agree to it.

My only caveat is that after 32 years w/Crohn's an annual colonsocopy is virtually a requirement due to the increased colorectal cancer risk w/long term Crohn's.

JMPO
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Blue Velvyt
Regular Member


Date Joined Sep 2006
Total Posts : 194
   Posted 1/8/2008 6:12 PM (GMT -7)   
darn I hate probes of any kind, I hate the rooms, I hate the linen robe, I hate lying hooked up to tubes waiting on staff to come, I hate the prep (by the way DONT mix lemonade in to the mix, soooo gross)

But without them they cant pre-fix situations that could get so infinitely worse, man this year my depression is at an all time high....

I just keep telling myself it's not going to win and Ill be fine ( or fine enough), I have to keep thinking that or I would be in real trouoble, and this forum keeps me filled with positive thoughts....

Thats why I am now going to be coming here, posting where I can, every day if I have to returning the favor that so many hear have done for me

Get through it and as weird as it may sound, May the force be with you :)

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/8/2008 6:25 PM (GMT -7)   
Oh LynnRN don't be troubled by it! You are probably drinking that nasty nasty stuff as I type -- but you really can do it!! Think positive -- think about how GREAT you will feel when they tell you all is well!!!! And that is what I am praying for!! If that is not the outcome, then I pray that strength, peace, and direction be given to you in huge volumes!!! Please let us know the results!

LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 1/9/2008 8:11 AM (GMT -7)   
Yeah,finally a sussessful scope for me!!! I just got back,and I'm so happy,I'm never happy after a scope. Thanks for all the encouragement from you guys. He was able to do a total scope this time,normally,I'm so inflamed that they can't pass the scope,my colon was clear ,and my one stricture that I have had for years was able to be stretched even further.My GI was so excited. I guess those Humira shots are worth it,I guess I won't complain about them anymore :-)

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/9/2008 8:18 AM (GMT -7)   
Lynn
I am so happy for you
NOW arent you glad you didnt cancel??

Kudos on the news and how great you are feeling

LYN
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 1/9/2008 8:50 AM (GMT -7)   
HALLELUJAH! Congratulations, Lynn!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/9/2008 12:17 PM (GMT -7)   
See!!! We told u! I'm so happy for u! Now all that anxiety has turned into happiness and hope!!! Congrats lynn!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2008 12:39 PM (GMT -7)   
Yeah that is good news. Now instead of anxiety you have hope. Thanks for sharing.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/9/2008 1:20 PM (GMT -7)   
Man, it's good to see posts around here of success stories and people feeling better. Great to hear, Lynn! :)
Just trying to be a "Regular Member".


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 1/9/2008 2:14 PM (GMT -7)   
Just asked to be well medicated before you get it done, i alway do then you will never feel it.
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 1/9/2008 11:25 PM (GMT -7)   
Congratulations on your wonderful results, but mostly for having the courage and tenacity to see it through. Well done. !
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 1/9/2008 11:50 PM (GMT -7)   
Good work, Lynn! That is awesome your colon looks so splendiferous!!!
Co-moderator - IBS Forum


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/10/2008 12:08 AM (GMT -7)   
Lynn, I'm so happy for you! It must be so great to know!
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