Temporary colostomy

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crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 1/7/2008 9:42 PM (GMT -7)   
I had an emergency colostomy (temporary) as the result of a supermega colon situation, as I was so sick I signed anything to get releif from the extreme pain I was in. I had the colostomy reversed after 3 months. Years later I am on lots of narcotics to releive the constant pain I live with everyday. I ask myself if the surgery was botched or is it normal to have so much pain even that I have had 2 other major resections (1/3 stomach/1/3 large colon) that I have little or no serious issues with. I have been told the pain source is from the scar tissue is this possible, any thoughts.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/7/2008 9:56 PM (GMT -7)   
My MIL had a temp colostomy too (she has divirticulosis and ended up with a bowel perforation and almost died), she did not have the complaints you mention, so I don't know if it's normal for you...she has had hers reversed and doesn't experiance any problems with pain and such from that either.

I say find a doc that will take this seriously because something doesn't sound right.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/8/2008 7:45 AM (GMT -7)   
I have had 4 major abdominal surgeries and after my last resection my surgeon told me he had to spend the first 2 hours just cleaning up the scar tissue. So that pain could definetly be from adhesions. Unfortunately another surgery to "fix" them would really do no good as it would only create more adhesions.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 1/8/2008 10:37 AM (GMT -7)   
welcome to my life this is how I am too. I had an emergency resection then 1 week later I had the emergency temp ostomy...followed by reversal 4 months later the stoma didnt heal properly allowing feces to pool under my skin forming an abscess so bad that the walls of it were not allowing antibiotics to penetrate and only was able to be removed surgically...it had gotten so bad that all of my abdominal wall was infected and had to be scraped down. That was done in July...my CD came back so fast thta this week I am having a fistula removed...I remember the pain I was in last time since there were so many adhesions...my GI thinks that in addition to the adhesions causing constipation issues it may be why I am nauseous all the time and vomit quite often. I know the more they go in the more can develop but it is neccessary that this fistula is taken care of surgically. My GI had me start up miralax again since when i miss a day with a bm more comes out of the fistula...when I use the miralax tho more drained from the fistula but it didnt help with going the normal way so I still have to use glycerin suppositories quite often. THe issue of the pain meds are not helping with the C issues with me either but once I go with aid of a suppository then an hour or so later I am running to have D. My GI said that is normal from the adhesions etc since once that built up area is gone the other stuff has an easier way to getout. This whole nausea thing happened to me after my emergency ostomy surgery ever since that I vomit more than ever....ought to be fun one day when I do decide to have a baby and if I am one who will get morning sickness too...that will be fun...

I am glad that my GI was able to that my fistula is CD related and not surgically related as they can be if they present the way mine did...it is just mine took longer to appear which also was a pretty good indication it was CD and not Sx that caused it....I was really losing faith in my surgeon even tho he is 1 of the best in my state but my GI is the best in new england so I get to go for this again...I know I need a central line placed but this time I will have it placed when wide awake....no more jugular cathetars for me especially central lines that hurt me more than the surgical site ><

So yes it is greatly poissible that it is in fact adhesions I can attest to the fact that they hurt loke a SOB and I am on dilaudid and fentanyl and the pain some days is horrific and the scope visially showed remission just the pathology showed CD so the humira helped that was when I asked him why the severity of the pain and he told me it was the adhesions. I gave him the C thing ....told him about it prior to the scope so he could look for that cause too. I hope that if the nausea comes back again...it was gone for a good 4 months before returning that I can get some script for it....but I am allergic to compazine so not sure what I would get but hopefully I wont need it. I dont know if a capsule endoscopy would show if adhesions are present within the colon/small bowel but a scope can. I think that there are other types of adhesions as well. After my ostomy Sx I didnt have the pain that I have now but I had bunches of adhesions...probably what caused the nausea which started 1 month after Sx that time.

Hope that you can get your pain resolved and know that adhesions can definitly be the cause of your problems granted with our DD you never know really unless it is visualized to tell you 100%
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/8/2008 11:52 AM (GMT -7)   
I think the only way the can tell if you are having problems with adhesions is to surgically go in there and look for them. I have had tons of tests and those never show, but definetly are there. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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