Welll...I am sorry to hear that you have had a rough time with your disease. It is never fun when no medication seems to work and you continue to feel crummy. Have you and your doctor ever discussed options outside of medications such as surgery to remove the diseased portion of the intestine. This isn't a decision to make lightly, but definitely something to consider if nothing else has worked. Although a gastroenterologist is the doc to see for crohns and uc...check and see if anyone in your area specializes in IBD or has any additional interest in it...maybe they will have new or different ideas for your treatment. I hope you feel better soon.
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Prednisone, Oxycodone, Oxycontin, Remicade,
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon