Is it Crohn's?

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aearonso
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/9/2008 3:10 AM (GMT -7)   
My boyfriend has been in and out of the hospital for over a week with abdominal pain, nausea, vomiting, and now constipation. He's had multiple CT scans that have shown swelling in the terminal ileum, but there is nothing wrong with the colon, so it's not diverticulitis. He doesn't have a fever, but his white blood cell count is slightly elevated. I know constipation is kind of unusual with Crohn's, but this seems to be the best guess diagnosis at this time. Does this sound like Crohn's?

Thanks!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/9/2008 3:18 AM (GMT -7)   
Hi and Welcome to Healing Well. It sounds like he may have IBS. With Crohn's there is weight lose, blood in the stool, Diarrea, alot of stomach pain.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/9/2008 7:25 AM (GMT -7)   
I would have to disagree with the above post.....when I was first diagnosised, I didn't have weight loss, blood in my stool, diarrehea, or stomach pain. I didn't start to lose weight until about a yr. after I as diagnosised and I was very, very sick. I tend toward constipation....

A colonoscopy would be a good thing to have done at this point.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2008 7:28 AM (GMT -7)   
Many with Crohns have diarhea, but there are also many who suffer with constipation. When first diagnosed I had uncontrollable diarhea, but now I am constantly battling constipation. Has he had a colonoscopy yet? Maybe a Small Bowel Follow Thru also might be called for. Sure hope he gets feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/9/2008 9:01 AM (GMT -7)   
It could be Crohn's. There are also bacterial pathogens that can focus on the terminal ileum (Salmonella, Yersinia, Campylobacter, TB, etc.) so that is something else to consider.

When he had the CT scans, did they use oral and IV contrast? If they used oral contrast, I would not bother with the x-ray small bowel follow through, it is less accurate. I have a stricture at the terminal ileum. My SBFT appeared normal, but CT scan with oral contrast and colonoscopy both suggested Crohn's. A positive Serology 7 test finalized the diagnosis for me. I never had D, vomiting, nausea... My symptoms were fevers, liver problems, WBC and ESR elevated, and some constipation.

I do agree with Nanners that a colonoscopy with biopsies is a very good idea, as well as the Serology 7 test if the doctors are strongly considering Crohn's.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/9/2008 11:24 AM (GMT -7)   
As soon as I read "swelling in the terminal ileum" I thought CD, with IBS there is NO inflammation, ever. He should be closely monitored..what other tests are they sending him for?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


aearonso
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/9/2008 2:52 PM (GMT -7)   
Wow! Thanks for all the responses! I really appreciate it. My boyfriend is staying in the hospital another night...they want to do that barium x-ray thing, but want to wait until his intestines are less swollen (they have him on steroids). I believe his CT scans were all with oral contrast. How does a Serology 7 test work? And they also don't want to do a colonoscopy until he is less inflamed. So, how long of a hospital stay does this look like it's going to be? I just want a diagnosis! I miss my boyfriend!

How would bacterias such as salmonella, yersinia, etc etc. be identified?

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/9/2008 6:32 PM (GMT -7)   
Being diagnosed with abnormal swelling in the terminal ileum is usually a good indication of Crohn's disease. A biopsy and blood test series would be necessary for a 100% positive diagnosis.
Just trying to be a "Regular Member".


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/9/2008 7:52 PM (GMT -7)   
The Serology 7 test is a blood test. The doctors would draw the blood and send it off to the lab, then you get the result in about a week. It is very accurate.

A bacterial pathogen would be identified from a stool sample. Do you know if he submitted one?

I'm not sure how long he'll be inpatient. Hope he feels better soon.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 1/9/2008 8:08 PM (GMT -7)   
That test does seem to indicate a good chance that it is Crohn's. He should have the workup(s) done ASAP.

Sincerely,
Matthew

aearonso
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/11/2008 11:10 PM (GMT -7)   
So, my bf is out of the hospital, and they are fairly certain it's Crohn's (though they haven't done the colonoscopy/biopsy yet to confirm it). He is on Prednisone, an acid blocker, and pain meds. He has a doctor's appt next week, and then they will do a colonoscopy. So...my question is, what do we do first? See a nutritionist? Join a yoga class? Join a support group? What has been most helpful to you?

Side note: He is totally addicted to Rockstar (the energy drink) and drinks an insane amount a day. I'm trying to get him to stop, but he doesn't think it will affect his Crohn's...can someone validate for me here?

survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 1/12/2008 7:25 AM (GMT -7)   
i find caffiene irritating and makes me feel worse, but that may be just me.
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