I made it to Remission

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CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/9/2008 12:19 PM (GMT -7)   
For the first time in over twenty years, the ole GI tract is running smoothly. Total remission now for almost three weeks. I still can't believe it. No more keeping track of the nearest piece of porcelain. Almost seems a bit strange.
 
Short version: Diagnosed with mild Crohn's in October. Initially on Lialda and Entocort. Helped some, but not enough. Switched from Lialda to Pentasa. A bit more help, but still having six or so crampy ones a day. Started on Prednisone on December 17. Was in complete remission by December 23. I absolutely LOVE and HATE the prednisone. Not only has it completely done away with my Crohn's symptoms, but it has also cleared up rashes that I've had on my back, chest and eyebrows(!) for 15 years (I believe these were Crohn's related rashes). It has also completely cleared up all of my arthritis related pain. My back, elbows, and knees feel 20 years younger. I'm going to plan on going skiing and bowling for the first time in years. So why the hate? Physically, I feel better than I have since high school. Mentally, I'm going off my rocker. The prednisone has given me extremely wild mood swings. Anger that is almost uncontrollable, as well as depression. Not to mention the fact that my wife thinks I don't find her attractive anymore (if you get my drift). I'm down to 20 mg per day now of Pred, and the emotional issues are getting better. Just hope it's still a high enough dose to keep the Crohn's and arthritis away.
 
The doc told me that I have one of the most mild cases of Crohn's he's seen. I just can't imagine how you guys/gals that have moderate or severe Crohns can even make it day to day. My Crohns completely ruined my quality of life for so many years, it just seems unthinkable that it could have been worse.
 
Well, thanks for letting me tell my story, vent and celebrate. Oh, btw.. for those of you with crohn's related arthritis, Celebrex has also helped me a TON. On my current regimen of meds (20 mg Pred, 4 grams Pentasa, 9mg Entocort, one Celebrex) ALL of my symptoms are completely gone.
 
I hope all of you may find the relief that I have from such a terrible, debilitating disease. My best wishes go out to you all.
Just trying to be a "Regular Member".


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/9/2008 12:30 PM (GMT -7)   
I'm happy for u crohns daddy and I'm equally surprised that the prednisone has given u shuich relief! When I was on prednisone the physical changes alone were too miuch for me to handle, it gave me severe acne, of course the weight gain, moon face, hair breakage etc. Mentally I was a little wacky myself, ill never forget I was in highschool at the time and once I was getting ready for school and was trying to do my hair, I got so angry and frustrated that I just started cutting it! I cut one side of my hair and ended up having to go get a hair cut.
U did say that u have a mild case of crohns. Makes u realize how blessed u are huh? Mine has been classified as moderate to severe, but even now when I come on the boards I see people going thru so much more than myself, I become grateful and encouraged.
Enjoy that ski trip! U deserve it!!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2008 12:35 PM (GMT -7)   
Don't want to burst your bubble, but if you are still on Pred you are still under the effects of the medication and that is quieting things down for you right now. But when the time comes to get off this med, your joint pain will probably return and some of your Crohns symptoms can return to. I do hope you continue to feel good, but I think the Prednisone is what has you feeling better at this time. Also, as you get lower on Pred it can cause joint pain itself for a few days after each taper.

But I truly do hope things continue going well for you. Make sure you continue to take any maintenance meds so your remission can continue.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/9/2008 12:45 PM (GMT -7)   
praying4healing said...
I'm happy for u crohns daddy and I'm equally surprised that the prednisone has given u shuich relief! When I was on prednisone the physical changes alone were too miuch for me to handle, it gave me severe acne, of course the weight gain, moon face, hair breakage etc. Mentally I was a little wacky myself, ill never forget I was in highschool at the time and once I was getting ready for school and was trying to do my hair, I got so angry and frustrated that I just started cutting it! I cut one side of my hair and ended up having to go get a hair cut.
U did say that u have a mild case of crohns. Makes u realize how blessed u are huh? Mine has been classified as moderate to severe, but even now when I come on the boards I see people going thru so much more than myself, I become grateful and encouraged.
Enjoy that ski trip! U deserve it!!

That's it exactly. Prior to reading this board, I was really wrapped up in self pity. I thought my life sucked, and no one had it worse than me. Then I come here, read about those with really bad Crohn's, and am completely humbled. I feel stupid and selfish for feeling the way I did. My heart truly goes out to you, praying4healing. To be going through this at 25 just isn't fair. I hope you are able to find remission and relief more than you can possibly know.
Just trying to be a "Regular Member".


Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 1/9/2008 8:27 PM (GMT -7)   
I also achieved "remission" on prednisone, but as soon as I came off of it all my symptoms returned. You can't stay on Pred forever. I remember I was just as excited as you are thinking it was all over with. But since you have a mild case, you might be different.
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