Crohn's and other diseases

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/9/2008 12:57 PM (GMT -7)   

Hi everyone,

 

I’m a newbie here, I’ve been lurking for a couple of months reading everyone’s stories. I’ve been living with Crohn’s disease for approximately 8 years, I was diagnosed in 1999. I’ve only had 2 flare ups since diagnosis so I am very lucky but I’m still very scared what long term prognosis will be. Are Crohn’s patients more susceptible to other autoimmune diseases like MS and Endometriosis?  I’m worrying right now because I have these weird tingling sensations all over my body and noticed that MS can cause these. Has anyone heard of Crohn’s patients also having MS?


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/9/2008 1:00 PM (GMT -7)   
Hi and welcome researchnut :)

I googled crohn's and ms and found this link....
 
 
 
:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/9/2008 1:04 PM (GMT -7)   
thanks pb4 so I guess it's possible but rare :(

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/9/2008 2:03 PM (GMT -7)   
Well lets just hope this is not an issue you will be dealing with...have you gone to your GP and talked about your concerns with the ms?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/9/2008 2:32 PM (GMT -7)   
Yes, I hope not. I made an appt with my Primary Doctor. I wasn't sure who to really contact. Hopefully she can ease my worries.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/9/2008 8:29 PM (GMT -7)   
Are you on or have you taken Remicade?
Belleenstein:

30+ years living with Crohn's.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/9/2008 8:30 PM (GMT -7)   
What about your B-12 levels?
Belleenstein:

30+ years living with Crohn's.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 1/9/2008 11:11 PM (GMT -7)   
It is possible to have both Crohn's disease and some other autoimmune disease. I have had CD for 30 odd years and am now being diagnosed with "probable MS'. I know that there are people in the MS forum who also have CD . I sure hope this is not the case with you. ...Good luck.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


Opossumgirl
Regular Member


Date Joined Oct 2006
Total Posts : 121
   Posted 1/10/2008 7:18 AM (GMT -7)   
I have Crohn's and AS and had symptoms of MS that included tingling and numbness of hands and feet, hand tremors, eye pain with movement. leg weakness in heat. The MRI was clean and the neurologist (MS specialist) diagnosed it as nerve inflammation from the Crohn's. I also eventually determined that the 9 mg doses of Entocort EC were the cause of the hand tremors. He said it is very rare for Crohn's with MS. Best of luck.
Opossumgirl
DX W/AS 1996

DX of CD 8/2006

Taking: Pentasa (1 Gram 4 x Day), Humira (1 Shot Every Other Week), Entocort EC (6 mg), Ultram and hydrocodone as needed for Pain, Advair for Asthma, Synthroid for Hypothyroidism, Metoclopramide as Needed for GP and Nausea, Forvia (2 X Day), Calcium (1200 mg) W/ D Each Day, Milk Thistle (1000 mg daily for liver support), Ambien as needed,


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 1/10/2008 8:34 AM (GMT -7)   
I have Crohn's and fibromyalgia. The fibro causes numbness and tingling in my hands, arms, shoulders and sometimes feet. It is def something you should talk to your family dr about and get it looked at. GOOD LUCK!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/10/2008 8:43 AM (GMT -7)   
Welcome ResearchNut!
I can't be much help with your questions regarding CD leading to other autoimmune disorders, but I did want to say welcome aboard! It's always great to chat with a new member. You are very lucky to have been handling your CD so well for so long, sorry to hear about the new symptoms you're experiencing. Talk to your GI, it might be time to run some tests and figure out what's going on. Please take care and let us know if you have any other questions or just need to vent! We're here for you!
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 1/10/2008 9:14 AM (GMT -7)   
I have Crohns and Scleritis of the right eye, both auto immune diseases. I'm blind (20/200) in my right eye. My left eye is 20/15 but has Scleritis in it as well.
There are two theories: One that says they are realated and the other is I'm susceptable to autoimmune issues as I also have Asthma and Arthritis.
My Sclereitis, however serious it maybe is so rare it puts me into the <1% category. The Scleritis is being treated with Remicade at monthly intervals.
Dave D
Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again so it's still not working. Now blind in that eye. 1/08 now taking Remicade monthly with no real progress treating inflamed eye. Vision still <20/200. Inflamation starting to show up in good eye. I haven't given up yet, but it doesn't look promising.
Married with 4 grandkids.


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/14/2008 7:18 AM (GMT -7)   
Thanks to everyone who replied. I went to my doctor on Thursday to discuss it with her but she said the tingling could be from many things and that it was unlikely it was MS. She sent me to have an xray done so I'm just waiting on the results. Hopefully that comes back ok. She did tell me a few years back that I had signs of arthritis so I guess maybe that could be the cause.
 
 
 
 
 
 

Post Edited (ResearchNut) : 1/14/2008 8:04:51 AM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/14/2008 8:53 AM (GMT -7)   
It's important to get your B12 levels checked as tingling in the fingers/toes is often an indication of low B12 levels and if it's not looked after then it can turn quite serious with irreversable nerve damage.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/14/2008 9:06 AM (GMT -7)   
My doc checked my B-12 levels last month becuase I told her I was trying to concieve. I had been taking a Prenatal vitamin, extra iron, and extra b-12. She said my B-12 stats were way too high. So I went off of them. Now I'm only taking the Prenatal, Extra Calcium, and iron. Do you think too much B-12 could of caused the tingling? 

28 year old female
 
Diagnosed with Crohn's in 1999. Currently on Asacol (400 mg tablets - 6 per day).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/14/2008 9:07 AM (GMT -7)   
I don't know, I only know that not enough can cause tingling...did you mention the tingling to your doc?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/14/2008 9:26 AM (GMT -7)   
Yup, I told her last week, she mentioned they did check my B-12 levels and that they were too high, so I stoped taking my supplement. Right now I'm just waiting on my x-ray results.
28 year old female
 
Diagnosed with Crohn's in 1999. Currently on Asacol (400 mg tablets - 6 per day).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/14/2008 9:33 AM (GMT -7)   
That's good that she's aware...you'll have to be sure to keep us updated since there are so many things that can be related to having CD that many of us are still not aware of, so definitely anything CD related is good to share...seems there are so many things that are connected that you wouldn't expect to be...it's an awful disease.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ResearchNut
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/14/2008 10:38 AM (GMT -7)   
I'll definately let you guys know what I find out.
28 year old female
 
Diagnosed with Crohn's in 1999. Currently on Asacol (400 mg tablets - 6 per day).


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 2/5/2008 11:07 AM (GMT -7)   
I had a blood test once right after a B12 shot and it was very high, but according to the vitamin experts that is only what is circulating in the blood. It has to build up stores in the bone marrow etc. My next one was back to the low levels because I was due for a shot. And I also found you can't take too much B12, your body will dump what you don't need.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 2/5/2008 11:14 AM (GMT -7)   
BTW researchnut, what meds are you on? And is the tingling on both sides? Remicade made my peripheral neuropathy worse and I think humira is doing it now. I thought it may be entocort but have been off that for 3 weeks and I have worse sx since then.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/5/2008 11:28 AM (GMT -7)   
Yes, I'm going to ditto what tinglebell said; your body dumps what B12 you don't need and there is no toxicity with B12. At least that's what I've read from many sources recently. If this is true, it seems odd your doctor would say your levels were too high. Anyone else have this issue? I'm genuinely interested because I just started my son on a sub-lingual B12.
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 2/5/2008 11:53 AM (GMT -7)   
I have had eczema for years, which I have heard is an autoimmune disease or reaction.  I also have had episcleritis of the eye off and on (more on than off) since June or July of last year, which is also an autoimmune reaction.  I have not been officially diagnosed with Crohn's or IBD but my internist believes I DO have one or the other and she said the episcleritis is somehow related to IBD.
 
I hope you are able to find out something soon--good news!  Best of luck and keep us posted! 
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 3:06 PM (GMT -7)
There are a total of 2,734,926 posts in 301,259 threads.
View Active Threads


Who's Online
This forum has 151366 registered members. Please welcome our newest member, Thankuall.
424 Guest(s), 18 Registered Member(s) are currently online.  Details
Thankuall, abb, countess18, Gemlin, dismissed, Girlie, getting by, wpack3, Mad Martha, Dmc695, BKelly, tallguy, ks1905, joavila92, Ariel Smith, sam12, julymorning, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer