oh that bloated feeling

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runner43
New Member


Date Joined Dec 2007
Total Posts : 13
   Posted 1/10/2008 4:15 PM (GMT -7)   
Hey just wondering how many other people get so bloated you look like you could be 6 months pregnant?  It is few and far between that I don't have a stomach filled with so much air I feel like I could explode.  Does anyone else deal with this and if you do, what do you do about it and what can I stop eating that is may be contributing to it? 
 
 
 
 
 
 
43 yr old F, diagnosed: June 93
1 surgery, have a stricture right now mad
meds: pentasa 500mg 2 pills 4x a day
zoloft 50mg once a day
multivitamin
calcium
 
yeah  looking forward to a few more 5k's in the spring and hopefully a 10k before next winter..God willing!

bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 1/10/2008 4:42 PM (GMT -7)   
i get that way myself, some days its really awful and mostly i get it in the evenings. i have tried gas-x but it didnt really help me and i cant figure out what may be causing it other than when i take fiber i know it adds to it.
sorry i cant help more,

bunny
Crohn's Disease Diagnosed 12/24/03 and Bipolar

Im 26 years old, and am currently only taking Levisin, Clidinium and protonix for my CD. I'm off my remicade--nervous. I am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar, Wellbutrin and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BP med. im on fentanyl patches for pain also, and i take some meds prn for my allergies, asthma, and migrianes.


cbk
Regular Member


Date Joined Apr 2007
Total Posts : 134
   Posted 1/10/2008 4:42 PM (GMT -7)   
it's the stricture

debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/10/2008 6:22 PM (GMT -7)   
I'm not lactose intolerant but milk will do that to me.  I can't live without my milk so I tried lactaid milk.  I drink Fat free, lactose free milk now and it makes a big difference.  it tastes better than normal nonfat milk too but the problem is that i costs twice as much.  I am the queen of gas and bloating. Everything gives me gas but that seems to help the most for me anyway. Forget soymilk,  it does the exact opposite only with bad smells too. skull

debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/10/2008 6:30 PM (GMT -7)   
P.S. runner43, are you running in the ccfa team challenge? I'm thinking about it.

runner43
New Member


Date Joined Dec 2007
Total Posts : 13
   Posted 1/11/2008 6:22 AM (GMT -7)   
debbikay,

I don't know when the ccfa team challenge is...i will check out the web site and get back to you...it may be something to shoot for. my goal for this year is a 10K, but maybe i can squeeze out a half-marathon.

thanks.


43 yr old F, diagnosed: June 93
1 surgery, have a stricture right now
meds: pentasa 500mg 2 pills 4x a day
zoloft 50mg once a day
multivitamin
calcium

looking forward to a few more 5k's in the spring and hopefully a 10k before next winter..God willing!

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 1/11/2008 8:14 AM (GMT -7)   

Hi runner!  The nasty bloat hangs around for me too.  I have found that a hot water bottle or a hot pad on the stomach helps a lot for comfort.  I also spend a lot of time in a hot shower when it gets too uncomfortable.

As for foods to avoid, it is person specific.  i kept a book the first 2 years after I was diagnosed and I did start marking those things that made me gassy and what situation it happened.  Over the last 17 years, my gassy food list has changed, so be prepared to modify the diet as you age!  Generally, I found foods that made me gassy were also tough on my gut so I have eliminated a lot of those things.  Wish I could give you that magic list of foods we all desire :-)  I would just keep a list---noted by situation as some foods depend on time of day, amount of activity that day or current status of a flare.


Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/11/2008 9:04 AM (GMT -7)   
I only get the really bad abdominal bloating when I'm in a flare caused by partial blockage, it really sucks though.
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 2/5/2008 9:14 PM (GMT -7)   

I'm sorry this post is soo late but I'd like to ask if you ever took dietary enzymes?  I used to have a BIG BIG problem with bloat and once I started taking them, it's not as bad as often.


Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 2/5/2008 9:56 PM (GMT -7)   
Hi Malakai!  What kind of enzymes do you take?   I tried taking some a while back but I don't remember the exact brand or type, and I got heartburns so bad I thought I was turning into a human flame thrower!  I'll try again as long as someone else has tried it first.  I just bought these from the health food store and didn't know what I was buying really.  eyes

 debbikay  smurf Crohn's, ADD, Migraines, Anxiety & Depression….I take: Lexapro 10mg, Topamax 25mg, Adderallxr 20mg, & Colocort

         


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/5/2008 10:10 PM (GMT -7)   
debbikay said...
Hi Malakai! What kind of enzymes do you take? I tried taking some a while back but I don't remember the exact brand or type, and I got heartburns so bad I thought I was turning into a human flame thrower! I'll try again as long as someone else has tried it first. I just bought these from the health food store and didn't know what I was buying really. [img]/community/emoticons/eyes.gif[/img]


Jumping in here...I've used Ultra-Zyme Digestive Enzymes by Nature's Plus for many, many years. My son uses them now, too. I swear by them. You probably need to look at a health food store for them, or for something comparable. You can take one, two, three--however many you think you need. Good luck!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 2/6/2008 5:02 AM (GMT -7)   
Hi there,

I have the very same problem with bloating but i don't think it matters what i eat because every little thing i eat makes me bloat like i'm 6 months pregnant!! Its gotten worse in the last few months and now all my clothes are way too tight so i need a new wardrobe!! I know i have a stricture but i still wish there was something i could do (apart from diet) to try keep the bloating down a little. it's the most uncomfortable thing ever, not to mention embarrassing. I might give the digestive enzymes a try!!

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 2/6/2008 7:01 AM (GMT -7)   
Yes, I have the same problem.....especially in the evening. Every little movement produces a symphony....my daughter is going to start calling me "toot to ma loo"....right now all I hear is MOTHER!!!!.
I think its from strictures, but that is little consolation when you "toot"your way up the stairs......every step!A hot water bottle on my tummy offers some relief for me. ...but I also will check into the digestive enzymes..I remember getting them in the hospital many years ago and they definately helped....the thing is , they are so expensive and being on a disability pension, I usally don't have the extra money to spend . I will check it out tho...maybe they're having a sale at the health food store. Good luck to you and to all of you who look 6 months pregnant....I do too...and if I didn't let "fluffy off the leash " as I often do, Im sure I'd explode. !
mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


runner43
New Member


Date Joined Dec 2007
Total Posts : 13
   Posted 2/6/2008 7:54 AM (GMT -7)   
Hi everyone,

thanks for all the advice on the bloating. After my last surgery I went on the maker's diet it for awhile and I was taking digestive enzymes then, I think I felt much better back then but I don't know if it was from the enzymes or the fact that they took out 12" of yucky intestine. Anyway, I just got my results from my recent colonoscopy and I do need surgery for the stricture, I am going to the surgeon next week. Maybe after the surgery I will feel good again for awhile, I should probably go back to eating things from the maker's diet, but to eat like that and take all the supplements is so expensive. Anyway, thanks for listening and I will keep you updated on the surgery.



43 yr old F, diagnosed: June 93
1 surgery, have a stricture right now
meds: pentasa 500mg 2 pills 4x a day
zoloft 50mg once a day
multivitamin
calcium

looking forward to a few more 5k's in the spring and hopefully a 10k before next winter..God willing!

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 2/6/2008 12:32 PM (GMT -7)   
Hi I have really bad bloating too my doc's have just requested that I start Low Res diet cause they believe my blockage has not yet resolved. Day 3 today and have a stich like pain but I'm not nearly as bloated till i eat bread.

Elisa W.
Regular Member


Date Joined Jan 2005
Total Posts : 55
   Posted 2/6/2008 9:34 PM (GMT -7)   
Hi, I have bad bloating too..but I read the Maker's diet and it suggested starting off on foods that probably won't cause bloating..READ THE BOOK

its very good, you can live like a normal person again!

I don't eat any grains accept rice, I can't consume dairy, onions, or gassy vegetables..I eat only almonds and a limited amount of other nuts. I eat limes, lemon, grapefruit, and berries. I eat fish and meat. I can drink white wine and hard alcohol but not much...and that my friend is it! (some spices too)

its worth it to take the time and figure out what you can eat..one thing at a time. Start with meat or fish and add one thing a day if you get bloated, don't eat that thing, and start again once your bloating has gone down.
Diagonosed and operated on January 10th, 2005 in Santiago, Chile during my last semester of Grad school. 


nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 2/7/2008 12:03 AM (GMT -7)   
I seem to work in cycles. First, I do a few days or a few weeks of miserable diarrhea; then I switch to the gas and bloating thing for a few weeks or a few days; then back to the big D. I have no idea why this happens, although my doctor agrees that it's probably caused by a stricture. Everything backs up behind it (hence the bloating and gas) and, when it all finally gets through, it's the D phase. The bloating and gas are so uncomfortable that I actually look forward to the D!
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