Pyoderma Gangrenosa Q..

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paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 1/10/2008 6:28 PM (GMT -7)   
Hi, I know there are a few of you here that also have Pyoderma Gangrenosa.  I am taking Prednisone, started on 60mg, now on 30 mg since end of Nov when I was dx with PG. The ulcer on the front of my leg was about 3 by 3 inches, had alot of depth, lots of drainage, very painful, and making my foot & leg swell. Since taking the pred the ulder has become much smaller, no drainage, no swelling, all that is better. The thing is now that its doing better I can't believe how long it is takign to heal up. Not sure if you can answer it but how long till it goes away completely? My GI said if by the end of jan its not getting significantly better we will do a remicade tx. My dermatologist said in March we will talk about how to prevent a scare. March? By March then we would be tx this ulcer for 4 months... do they take this long to heal? that seems so long.. appreciate any feedback from you guys.. thanks
28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 40mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !


Dancerpeg
Regular Member


Date Joined Dec 2007
Total Posts : 43
   Posted 1/10/2008 10:13 PM (GMT -7)   
Hi Paintedsongs,
My husband had Pyoderma Gangrenosa under his wafer next to his ilesostomy and the doctor put him on remicade for the med's for him. He hasn't had that problem since then. Good Luck with this healing.
Dancerpeg

paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 1/11/2008 3:17 PM (GMT -7)   
Hoping to still get more feedback on this.. thanks.
28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 30mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/11/2008 4:36 PM (GMT -7)   
Hi there
I have severe PG and I have had this for over 14 yrs took 9 yrs to DX me: I have   had the sores for Months at a time
'I am totally scarred from the sores mine have been so deep they go to bone and I have had one about 8 inches all around nearly lost my leg actually
All scar tissue is very tender and if I bang it I will break back out IF under stress or CD is acting up
WHEN i get that bad although it is not Bacterial ,I am put on IV antibiotics Rocephin2 grams every 8 to 12 hrs I also take methotrexate and folic acid ........
If you want to email me it is at the side I have pics and I can send then to you or you can pop in the search and see if they still come up .
When I first joined HW there was 2 of us DX with this it is now becoming more of prob with CD'ers than ever before

I am so bleeding sorry I DO feel your pain believe me as I have said so many times I would rather give birth to triplets unmedicated than deal with this
I also do the pred but a stright 50 mg dose and then taper after 2 weeks or depending on the outbreak I am not a candidate for Remicade due to other health issues........and I am in Ontario Canada where it is not widespread in its useage yet ........sadly enough

Please do take care...LYN
I will be back on in early am to answer anything I possibly can and I am sure others that have will also  IF you reply by then k ......

Be well


Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 

Post Edited (Howlyncat) : 1/11/2008 4:44:02 PM (GMT-7)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/12/2008 7:26 AM (GMT -7)   
Bringing to top for paintedsongs to see
LYN
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 

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