Remicade Failure?

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Chipintucson
New Member


Date Joined Nov 2006
Total Posts : 6
   Posted 1/11/2008 8:44 AM (GMT -7)   
I've had six infusions of Remicade with no remission achieved.  Does anyone know how long a GI wll generally keep a patient on this treament?  How long does it take to know whether or not it is working?

MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 1/11/2008 10:05 AM (GMT -7)   
I guess it depends on what you think of as 'remission'.   I've been on remicade for 3 years (i think) and it just helps my symptoms and closes my fistula for 7 weeks at a time.  
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


climbs
New Member


Date Joined Sep 2007
Total Posts : 18
   Posted 1/11/2008 10:58 AM (GMT -7)   
That's right. I'm not perfect, still going five to 6 times a day (sometimes more probably depending on stress and food) but I have no pain and keep my weight.
If you're worried, talk to your doctor.
J

MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 1/11/2008 4:41 PM (GMT -7)   
I know it took my Daughter a little more than six infusions (7-8?) before we could consider her in remission.
Thinking it might depend on how bad of straits the patient's disease is in as to how quick Remicade might get it under control.

Some patients notice immediate results and others, it can take 3 or even more infusions. My Daughter being the high end of it. But she was pretty darn sick when it was started trying to wean off Prednisone and trying to get Imuran to therapeutic levels.

Some GIs will up the dose of Remicade sometimes to see if faster results might be achieved or schedule the infusions closer together for awhile. Need to have a good chat with your GI as to what his/her plans are if you feel Remicade is not being effective.

crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 1/11/2008 7:37 PM (GMT -7)   
Hi I have been using Remicaid for over 3 years, yes it helps, I had to up the dose to the max and change the dose to every 5 weeks. I do get some relief and I am completely off the dreded steroids, is this remission, complete no, but better is the word that fits. going to get the infusion and it's aftermathe is the tradeoff I do suffer after the infusion, but I have this period where I feel it helps. I know the Crohn's is there if I stop as I feel it coming back near the infusion date, and it somewhat subsideds after the infusion. Thats my Remiciad response.

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 1/12/2008 10:44 AM (GMT -7)   
I've had 6 infusions also-7th is next week. I just saw Dr. Ullman at Mt. Sinai and he told me to stay on it. I do have to have another seton put in on thursday  because I got another fistula after my 2 nd infusion. It is not healing by remicade alone. Not sure what your syymptoms are but make sure you don't have an infection.....
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/14/2008 3:41 AM (GMT -7)   
Hi I have been on Remicade for over 2 plus years and in remission. It depeneds on your doctor how long they try remicade with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 1/14/2008 5:39 AM (GMT -7)   
crohnie1985 said...
Hi I have been using Remicaid for over 3 years, yes it helps, I had to up the dose to the max and change the dose to every 5 weeks. I do get some relief and I am completely off the dreded steroids, is this remission, complete no, but better is the word that fits. going to get the infusion and it's aftermathe is the tradeoff I do suffer after the infusion, but I have this period where I feel it helps. I know the Crohn's is there if I stop as I feel it coming back near the infusion date, and it somewhat subsideds after the infusion. Thats my Remiciad response.


You suffer how? I'm suppose to start Remicade on wednesday..and I'm have a bit of apprehension.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/14/2008 6:56 AM (GMT -7)   
I think he means he suffers with crohns symtpoms then after that he has a period where it helps.

Not trying to answer for crohnie1985, but just wanted to put your mind at ease Matty G. I have been on remicade for over 3 years. No side effects or anything. Good luck on Wed. Let us know how it goes.
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