Chron's piece in Newsweek

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climbs
New Member


Date Joined Sep 2007
Total Posts : 18
   Posted 1/11/2008 10:38 AM (GMT -7)   
Wanted to let you all know that I have a column on chron's disease on the Newsweek Web site.
let me know what you think.
 
john
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/11/2008 11:04 AM (GMT -7)   
That was great John, thanks for sharing. I hope alot of folks are able to see it.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


momoftwoangels
Regular Member


Date Joined Jul 2007
Total Posts : 222
   Posted 1/11/2008 11:12 AM (GMT -7)   

I just read the article, I think that it was well written and it gives a good picture of the lives we crohnies live. I am overweight and when I try and explain what we are allowed to eat, I explain it this way: anything you would normally consider eating if you were on a diet! I still try and I pray that I never have to get so sick that I lose the weight that way (although at times it seems like an easier way!! :0)) Good job. I hope that you do have a long term remission and are able to stay out of the hospital for many years!

Heather


Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
 
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 1/11/2008 11:55 AM (GMT -7)   
Any publicity is good, I guess, because we want people to know what Crohn's is and understand what we're going through. But this article was a little too simplified and in some cases inaccurate- Crohn's isn't the body's immune reaction to food! If we want publicity for our disease, we want it to be true!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/11/2008 12:07 PM (GMT -7)   
The article is great, especially since it helps to dispell suspicions by co-workers, family and employers that Crohn's patients are simply malingerers, using their condition as an excuse. 

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/11/2008 12:38 PM (GMT -7)   
I just read the article and think it's really well written and gives a very clear, easy to understand picture of what most of us with CD deal with. I wish the article was in the printed version of Newsweek but I guess it wasn't "big enough" news to make the print version. At least it's out there on the Web for people to see, that's better than nothing.
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/11/2008 2:21 PM (GMT -7)   
That article was awesome! the way you explained crohns disease was the best iv ever heard! im never great at explaining it when my friends ask what crohns is. I'll use ur answer from now on!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/11/2008 3:17 PM (GMT -7)   
Bell, as an Englsih prof, I beg to differ. I thought it was interesting, personal, and well-developed!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus and vicodin as needed.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/11/2008 3:37 PM (GMT -7)   
wow bell....im sorry u feel that way, it seems a little harsh to me.who's to say that's not what it was supposed to be, somewhat of an editorial to share his experiences. He's not a doctor, so what did you expect exactly? Now granted, it would have been awesome if Newsweek had done a follow up article mayb with some resourceful info, but i think that any one who shares their experiences with the national public is very impressive!

Guess that's why we all have our own opinions :O/
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/11/2008 3:39 PM (GMT -7)   
also, the way the disease was explained to me was that the disease attacks our digestive system. Mayb this was the simplest way he could explain it so people might try to understand. I do however, understand ur point zazucat.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/11/2008 6:50 PM (GMT -7)   
This article was meant to be written from a crohns sufferers point of veiw...I think some people may have missed that...and infact food can and does have it's impact on the disease...if we didn't eat food then it gives our bowels a rest and that can cause inflammation to go way down, which is why in severe enough cases, people with crohns do go to the hospital for bowel rest (tube feeding). Common sense, it's not proven if food is a trigger for IBD but looking at most peoples experiance here alone at HW, many have severe issues with foods, so yes, reaction to food is definitely related to having crohns.

I agree that bell was to harsh in response to this and I know we are all entitiled to our own opinions but I think the golden rule of thumb is if you don't have anything nice to say then don't say anything at all...not to mention I personally think that HW rules may have been slightly broken since it does state not to offend or hurt anyone. My opinion anyway.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


belleenstein
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Date Joined Feb 2007
Total Posts : 1010
   Posted 1/11/2008 8:36 PM (GMT -7)   
I think Newsweek's shoulders are broad enough to stand the observation about the falling standards of journalism. I fail to see who else might reasonably take offence.
Belleenstein:

30+ years living with Crohn's.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/11/2008 8:43 PM (GMT -7)   
the writer, who is one of us could take offense.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus and vicodin as needed.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/11/2008 9:03 PM (GMT -7)   
Climbs, thanks for a great article. I was just explaining my diet to new people today. I could really see printing that and handing it to someone who has too many questions. Thank you!
Currently in remission!

Post Edited (inflamed) : 1/11/2008 9:08:03 PM (GMT-7)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/11/2008 9:26 PM (GMT -7)   
Yogaprof you are absolutely right. I just re-read my post and I'm ashamed of myself. What was i thinking?

Climbs I hope you can forgive me.
Belleenstein:

30+ years living with Crohn's.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/11/2008 9:34 PM (GMT -7)   
Great story!!! Thanks. Watch yourself w/ the exercise you are starting. Many on here find it helps (PB4 specifically) but anything high impact is worse than eating raw broccoli for me. I still try to stay active but no more running till I hit the wall.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/11/2008 9:39 PM (GMT -7)   
Hey Fitzky I thought running causes what's called "runners diarhea", which is the main reason why running has never been part of my regime, but I can ride that stationary bike like there's no tomorrow.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/11/2008 9:42 PM (GMT -7)   
Great article!  Thanks for sharing with us!

Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 1/11/2008 9:42 PM (GMT -7)   
I thought the article was interesting.  I'm newly diagnosed and trying to understand what life for me is going to be like in the future.  I'm guessing that the foods that bother people with Crohns vary from person to person.  I think I will start a food diary.

hatemeds
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/12/2008 9:06 AM (GMT -7)   
just curious - what was your reaction to 6mp?  i took it recently and feel like it has made my Crohn's worse as well as made me feel worse in general!

climbs
New Member


Date Joined Sep 2007
Total Posts : 18
   Posted 1/12/2008 4:25 PM (GMT -7)   
I really wish I knew what belleenstein said, but since it was yanked, maybe its for the best.
I've been a journalist for 15 + years, so as long as you're attacking Newsweek, and not me, I guess I can live with it. My surgeon read the piece and said it was good, and based on everything I've been told and read, i came up with the most accurate piece I could. If its inaccurate, i'd rather you told me how its inaccurate, rather than just saying so. Seriously, I'd like to know. By the way, I had 800 words to tell MY story, not give a scientific dissertation. I think I did a good job.

From CCFA.org
"Researchers believe that the immune system mistakes microbes, such as bacteria that is normally found in the intestines, for foreign or invading substances, and launches an attack. In the process, the body sends white blood cells into the lining of the intestines, where they produce chronic inflammation. These cells then generate harmful products that ultimately lead to ulcerations and bowel injury."

I've been told that food is reacted to in the same way. Whatever.


I've never heard of "Runner's diahrea" but have heard of its symptoms especially from doctors and know of it first hand. But you have to admit, it's a darn good workout and beats riding the bike in the basement every other day.

My reaction to 6-MP meant 2 weeks in the hospital. My white cells and platletes dropped dangerously low. I had no energy, and could barely move. My Gi's nurse called me and said the doctor "really thinks I should go to the emergency room now." it was 11 a.m. and I was on a deadline. Later she told me that they were afraid that if I bumped my head I'd bleed to death or that I could catch some kind of super bug.

I'm lucky. I guess.

Thanks for reading!

lilgeniexol
Regular Member


Date Joined Nov 2007
Total Posts : 50
   Posted 1/12/2008 7:00 PM (GMT -7)   
   Fantastic article in Newsweek!! What was your reaction to 6MP?  Just this week I had elevated liver enzymes from being on Imuran and I felt horrible.

debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/12/2008 8:00 PM (GMT -7)   
Thanks for reinforcing those of us who have been nagged and gripped at by well meaning family members for not "eating right". When you try to tell them that eating a high fiber diet won't make you feel better (it makes you sick!) it's almost like they don't believe you, they think you just want an excuse to eat wonder bread. I am emailing this to my sister right away! Thanks!


Post Edited (debbidoo) : 1/13/2008 9:46:24 AM (GMT-7)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/12/2008 9:49 PM (GMT -7)   
Hello there,
 
Thank you for taking the time to write the article and I found it very well written.  You did a fine job and sharing it with all of the members here in the forum was extremely nice of you.
 
Job well done.
 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/12/2008 10:05 PM (GMT -7)   
I just have to add, Kitt, you rock!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus and vicodin as needed.

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