Crohn's & PCOS

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Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 1/12/2008 10:38 PM (GMT -7)   
Does anyone out there have both Crohn's Disease and Polycystic Ovarian Syndrome?  What advice can you give me as to how to deal with both diseases?

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/13/2008 8:27 AM (GMT -7)   
I am 48, but I had PCOS in my twenties and a complete hyst at 29. I know there are several women on the board who list this problem, so I hope some can help you. at least that is ONE problem I don't have to worry about and the hyst when great...best choice I ever made.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus and vicodin as needed.


Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 1/13/2008 12:49 PM (GMT -7)   
I have both as well. I take birth control pills to control the cysts and the pain. Before going back on the pill I was having odd periods. Where they would only last a few hours, and then the next month I'd get 2 days of heavy bleeding. Now I skip my periods for the most part as I still will get some symptoms and they just aren't worth having for me.
 
I finally found out I had PCOS after a miscarriage several years ago (they did a catscan and found my ovaries a mess!). They wanted to put me on Metiformin (a diabetic drug originally), which is a medication a lot of people with PCOS take. But the nurse explained that I needed to eat carefully because this can cause D. A lot of women are able to get pregnant while on Metiformin and have success with it helping their PCOS. I just never wanted anything to help give me D!
 
Between having high blood pressure, Crohn's, and PCOS my GYN has recommended strongly that I not get pregnant again. She said she would send me to a high risk doc and she'd be very worried about me. My other doctors agreed, so for now I stay on the pill. I feel very lucky I was able to have my son before my health went down hill! I suspect eventually I will have a hysterectomy. I'm just trying to prolong the surgery so that I won't be too young going in to menopause (I'm 30). Seems there is a lot of us here that have both!
~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 1/13/2008 3:20 PM (GMT -7)   
Thanks Yogaprof for your reply. about five years ago they were considering doing a hysterectomy at the same time they were going to tack up my bladder, but the testing went well on my bladder and all surgery was cancelled. Thanks Jen 77 for your reply. I was put on Metformin (500mg a day). It worked great to regulate my periods and to decrease the heavy bleeding. The metformin also helped me get from a size 16 to a size 14 and it increased my energy level a ton. My cravings for carbs went completely away. The Metformin was a miracle. Then, after several years of use it quit helping. I think I should have pushed to get my dose increased, but instead I just quit taking it and slowly my periods are getting messed up again. Also, the Metformin made the pain of my periods excrucitating which was all the reason I needed to just stop taking it. Then, this last year I was diagnosed with Crohn's and although I'm not haveing D I'm glad you told me it can make it worse since I'm at the very early stages of the Crohn's Disease and I don't want to do anything that could make it worse. I'm going to have my two year physical soon and I plan on asking the doctor for some options on how to handle the PCOS. My husband had a vasectomy after our second child so I don't have to worry about pregnancy and medication. Currently, I'm taking 16 Pentasa a day and 2 Prilosec. I also take 80mg of Lipitor for cholesterol and I'm suppose to be taking Fosamax for Osteopenia, but I've stopped taking that, too. I have a hard time taking so much medication. The only reason I've been so good about not missing any Pentasa is that I'm afraid that if I do I'll get back into the terrible pain I was in when I went to the hospital with an "appendictis attack" and was told that it was really a "Crohn's flare." Thanks a bunch for your insight! I hope others with these two diseases will reply and share their insights as well.

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/13/2008 3:30 PM (GMT -7)   
My sister has PCOS, and was put on birth control to help with the cysts and irregular periods. She was told by her doctor on several occasions that it would be very difficult, if not impossible, for her to become pregnant (she's 22). The pills had the desired effect of regulating her period... And during a stressful time where she forgot to take her pill, she accidentally became pregnant! At the same time she has a cyst which the doctors are monitoring.

I suffered liver problems after being on oral contraceptives for about 6 years. Since anyone with Crohn's is already at higher risk for liver issues, I would not recommend staying on the pills for too long, and have your liver function monitored occasionally. Crohn's also puts one at higher risk for PE, and the hormones compounds that as well. Just something to think about. After what happened to my liver, my sis is hesitant to go back on the contraceptives after the baby is born, so we'll see.

Post Edited (Confused in IL) : 1/13/2008 3:34:43 PM (GMT-7)


Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 1/13/2008 10:44 PM (GMT -7)   
Thanks for the info.  I, unfortunately, have tried the pill before on multiple occasions and have found that it causes me to be so moody that my family wants to run away from home.  I guess, considering all that you just said, that it is a good thing that I haven't been on the pill.  You used the initials PE.  What does PE stand for?  Hopefully, I can find another way besides the pill or Metformin to regulate my periods.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 1/13/2008 10:57 PM (GMT -7)   
PE= Pumonary Embolism. In other words the pill increases the risk of blood clots, that can cause a PE.

Right now I've been on the pill for 7 years. I don't feel I have any other choice right now. Besides a hysterectomy, which would mean I'd have to take hormones anyway! So for me the benefits outweigh the risks, especially since the pill works so well for me with this (I'm lucky that it actually HELPS my moods during that time of the month). Not that I enjoy being on it, but I haven't found anything better at the moment! I've never had any liver problems on it. But as always it's best to talk to your doctor about what treatments may be best for you. Unfortunately no medication is without risks.

Oh and about the Metiformin and it causing D, that may just not be an issue for you if you didn't already experience that. From what I've read it can be a side effect. It's been a few years but I remember the nurse telling me to watch my carb intake and that would help. I didn't have a Crohn's diagnosis at the time, and my symptoms were really out of control. So anything that had diarrhea as a side effect scared me! :)


~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Post Edited (Jen77) : 1/13/2008 11:08:36 PM (GMT-7)


lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 1/14/2008 7:59 AM (GMT -7)   
after my second child i had a cyst rupture, it took out my appendix, ovary and fallopian tube.........i am now on the depo shot every 3 months......i healed for a year after the rupture the tried for my 3 baby.......i had to take pills to induce ovulation as i had a cyst on my other ovary that required removal of cyst and repair of the ovary........i was never told that i should not get pregnant.....my specialist was very helpful in advice for actually getting preg........my concern is now that im in a relationship that i will be getting married soon........we would love to have a baby together.......its my meds im concerned about........but that question is a year or so away so we will deal with it when we need to.......
I'm cute. Let's put me in charge.(happy bunny)
 
 
 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 omega 3, digestive enzyme, calcium, vit d, flax oil, aloe vera juice, 9mg of entecort
 diagnosed with a CT scan september of 2007.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 1/14/2008 2:50 PM (GMT -7)   
I wasn't told to not get pregnant just because of my PCOS. I just have too many health problems, including high Blood Pressure. That with Crohn's and having to probably go down the road of fertility treatments for the PCOS, my doctors feel it's not in my best interest and could be dangerous to my health and a baby's. Unfortunately I just got slammed with too many health problems, and I agree with my docs that for me I shouldn't have anymore. But that's okay, I've accepted that, and know my son was my miracle baby!

lady1012 good luck and I hope you are able to have another easily when that time comes!
~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


anna2
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 7/27/2011 1:28 PM (GMT -7)   
I see this is an older thread, but I have U.C. and PCOS. I wanted to comment, as I have been asking the docs. if there is any relation and am being told no.....I have been feeling that there must be some relation.

If anyone has any info. about this please let me know. I am finding info. about progesterone's influence in both diseases, and I the estrogen dominance can be a factor in autoimmune development I got UC immediately after giving birth, so that makes me think about the progesterone relation.

anna2
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 7/27/2011 1:28 PM (GMT -7)   
I see this is an older thread, but I have U.C. and PCOS. I wanted to comment, as I have been asking the docs. if there is any relation and am being told no.....I have been feeling that there must be some relation.

If anyone has any info. about this please let me know. I am finding info. about progesterone's influence in both diseases, and I the estrogen dominance can be a factor in autoimmune development I got UC immediately after giving birth, so that makes me think about the progesterone relation.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 7/27/2011 2:25 PM (GMT -7)   
Anna2, I think the relationship between IBD onset and pregnancy has more to do with the whole upheaval of the autoimmune system during pregnancy.

Progesterone is a long muscle relaxer, so a lot of people get constipated during the luteal phase of a menstrual cycle, and even more so during pregnancy, but I haven't ever read anything that would connect progesterone to our inflammatory disease process.

From what I know about PCOS, it is a complicated endocrine issue that includes insulin resistance and excessive androgen production (including estrogen??). I'm not sure why you think PCOS would be linked to UC or CD.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

Maeday
New Member


Date Joined Feb 2011
Total Posts : 12
   Posted 7/27/2011 7:05 PM (GMT -7)   
I have both Crohn's disease and PCOS. I was diagnosed with Crohn's when I was 14 and PCOS about 6 months ago (I am 29 now). I am having problems getting pregnant and finally the third doctor that we were seeing for infertility diagnosed me.

I take Metformin 1000mg a day and I weigh less than 110 pounds. I think that your dose was wrong. Actually a lot of what I have read says that 1500mg a day may be the correct dose for most people. Diarrhea can be a side effect of Metformin but that doesn't mean that everyone gets it. When I first started Metformin and went from 500mg to 1000mg I started to get more D and my doctor said to go back to 500mg for a couple of more weeks and then try to go up again. That's what I did and didn't have any problems once I went up again.

As far as diet goes I met with a nutritionalist because it was recommended that I go on a low GI diet to manage my blood sugar. That diet is based off of veggies and whole grains... 2 things I HAVE to stay away from with the Crohn's disease. Now I do carb counting and they also recommended that I exercise for an hour a day, 5 days a week--yikes!
With my change in diet and regular exercise I have been doing better with my Crohn's symptoms. When I am feeling exhausted and had a bad day crohn's wise I will back off the exercise and get the rest that my body is calling for. Depending on how I am feeling I may just go for a walk instead of doing my favorite exercise-Zumba!

As far as the painful periods go, my MD said that mine could be from a lack of progesterone. I guess if you don't produce enough progesterone your uterine lining doesn't completely shed causing painful periods. Once I was started on progesterone vaginal suppositories I have hardly noticed any cramps before and during my period. In the past, my pain so bad I would walk around work with heating pads on my lower back and on my stomach-it may be something for you to look into.

By eating right, exercise, and taking metformin, periods can regulate, hormones can regulate naturally and ovulation can be induced. I don't believe in going on the pill to "mask" PCOS. The truth is even if you have regular periods on the pill you are still at a high risk for type 2 diabetes and insulin resistance, cardiovascular disease, uterine cancer, obesity, high cholesterol and triglycerides, the list goes on and on.

It is still taking a lot of trial and error for me to change my lifestyle so much but I am determined to do it! I want a baby!! I am actually scheduled for an exploratory Laparoscopy mid August to see if I have any adhesions blocking my tubes or any other thing that could cause trouble from my past bowel surgeries. Wish me luck!

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 7/28/2011 11:54 AM (GMT -7)   
I have PCOS, Crohn's and Endometriosis. I take birth control continuously (no 'off' time for a period-haven't had one in over 2 years). As far as kids...we adopted.
Stephanie
Crohn's dx April 2003, in remission 2004-December 2010
Apriso, omeprazole 40mg, Cimzia
Severe Crohn's throughout the colon 12/10-present, but doing MUCH better, just not enough to claim remission

Bipolar I dx 2009
Saphris 10mg, Zoloft 100mg

Surgeries:
Cholecystectomy (gall bladder)-7/2011
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