Edit: I just noticed that CrohnsDaddy is now a forum "Regular Member". Could it be a sign of good things to come?? : )
Post Edited (CrohnsDaddy) : 1/15/2008 7:58:13 PM (GMT-7)
If you would like to learn more about IBD med treatments, there is information about them on the CCFA website:
I just read your other post, where you mentioned your Crohn's is in your terminal ileum. In that case, Entocort might help you.
Some GIs believe it is best to start with the strongest meds first, even though they might be more toxic. Other GIs believe it is best to try the milder but less toxic meds first.
My daughter is in full remission without side effects on only one pill of Entocort a day, which is intended for people with Crohn's only in the terminal ileum. We prefered to try the milder meds first. (btw, prednisone is indeed nasty stuff, with serious side effects - it often works, but a price is paid)
Other people manage to do well on other milder meds, like Pentasa, Asacol or Lialda.
www.ccfa.org provides pretty good info
Other info, including diagrams, etc, can be found on the following:
Post Edited (njmom) : 1/15/2008 10:36:51 PM (GMT-7)
I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)
I understand where others are coming from when they say you should bypass all the old treatments and go for the new biologic agents such as humira or remicade,
These treatments are last resort, when you are non-responsive to other conventional treatments such as prednisone. They are highly toxic, and have some very serious side effects (however rare getting them may be). I've had severe crohn's for nearly 6 years now and I've been on nearly all the meds, including having surgery. However, I always try to hold out until I ***really*** need the biologic agents, so I don't build up some sort of resistence to them by using them too much. Moreover, as I said, some of the side effects can be very serious, and I don't think people should suggest using these drugs as a "shortcut" to the "good drugs". But if you do try other, weaker meds and they still aren't working, then by all means, these biologic treatments can be a saviour.
Good luck with the treatments etc though! You won't know yourself once you start getting some relief from the meds! It's just a matter of finding what ones work for YOU!