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Regular Member

Date Joined Apr 2007
Total Posts : 134
   Posted 1/16/2008 4:20 PM (GMT -6)   
So by now, we all know that Tysabri has been approved for CD and will be available sometime next month.
How many of you are considering a switch to Tysabri? Are any of you seriously worried about the possibility of getting PML?
I'm just curious as to what the consensus is here. I am extremely excited about this, but am a bit worried because it hasn't been studied in people who have used it for more than 2 years. I will remain patient and see what happens first before I jump in the bandwagon.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/16/2008 4:35 PM (GMT -6)   


It is exciting however I understood it is to treat moderate-to-severe Crohn's disease in people who haven't responded to other therapies. It would not be a first line medication. Crohn's patients prescribed the drug will be enrolled in a restricted distribution program. Yes it has great potential.  :)

Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Regular Member

Date Joined Apr 2007
Total Posts : 134
   Posted 1/16/2008 4:38 PM (GMT -6)   
I've been on every medication...and I cannot tolerate TNF inhibitors...hence the excitement/hesitancy.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/16/2008 4:41 PM (GMT -6)   
Hope this is the answer for you. Like you, I will take a wait and see approach.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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