Post Edited (mibiks) : 1/16/2008 7:14:54 PM (GMT-7)
have you ever just wanted to reply "been there. done that"
I read so many threads and really cant reply to as many as I want, however....
I wanted to say, that there was a period before I got diagnosed and after, about 2 years total, that I was considered mentaly unstable, attention getter, drug seeker, blah blah blah....
This may just be one of those things some people have to go through, kinda like growing pains for your illness and you, lol
Anyway, it passed, eventually my stories grew and the test results came back and there was no way for those people to undersell my problems anymore.
Some of them are now sympathetic, but still most just dont have any idea about the disease. I feel its kinda my obligation to educate them about the disease (if they want to know) so they better understand the seriousness of it.
So I just try to be patient and breathe alot, and yeah, it does get to me, I do cry.... When I quit crying I shake it off and I move on cause tomorrow is another day :)
Post Edited By Moderator (stkitt) : 1/17/2008 12:05:59 PM (GMT-7)
I was accused of being a hypochondriac all the time before my diagnosis. I also get my symptoms explained by a few family members. Once I was complaining about my side hurting. I was told it was just gas. I was so upset I was having that awful right sided pain that lasts for days. Boy that is some gas!
Keep your chin up and try to not let it bother you. I am sure a lot of us know how you feel.
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
Don't ever let anyone deter you from finding out what is wrong with you! There is obviously something wrong. I myself have been doubting myself on what was wrong with me because i went from dr to dr with nothing being done to help me. Finally I had an Upper GI and Small bowel study which showed severe narrowing of the ileum. I then went in the next monday the 14th where my GI had no doubt in his mind that I had severe crohns disease. He also did a biopsy. Hang tough and don't give up. I haven't told all of my family about my Crohns disease just because I don't know what they will think. My husband was always wondering at one point why I was getting sick so often at such a young age. Now that its been confirmed I'm trying to help him understand what is going on with me. If you ever need to talk or vent i'm here! Just send me a message.
I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)