Colocort question

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debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/16/2008 8:29 PM (GMT -7)   
  eyes   I was diagnosed officially with crohn's colitis about a week ago. My GI said I have patches of inflamation throughout my entire colon all the way to the cecum.  The worst part is at the sigmoid colon.  I started the using colocort enemas 4 days ago, one a day at bedtime. Colocort is a generic of Cortifoam.  It's a small two ounce bottle and it isn't a foam. My question: is that enough? Will that enema reach all the way around to the right side? shouldn't I be doing something else?  I was happy at first to not take pills but today I'm feeling gas and bloaty and bad and I wonder if its working at all.  How do you know? I'm not sure what questions to ask my GI.


 

smurf  Debbidoo

Crohn's Colitis diagnosed: 01-10-2008 

 


Post Edited (debbidoo) : 1/16/2008 8:40:11 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/16/2008 9:36 PM (GMT -7)   
Hiya Debbidoo!!

I've only ever used the cortiofam when experiancing proctitis (inflammation of the rectom), I believe it's meant to treat the rectom and that's why you're on pills, to help with the inflammation in your colon. Are you on Asacol or Imuran?

Pills to treat the colon, rectal meds to treat the rectom....you may have to stay on the pills as maintenance for your colon, but once the inflammation in the rectom clears then you can taper off the rectal meds and only go on them when necessary.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/16/2008 9:45 PM (GMT -7)   
Hi PB4,
I'm not on anything except the colocort, thats why I was wondering if colocort was going to be enough. What kind of questions should I ask my GI about that? I don't have inflamation in my rectom as far as I know. The directions say to lay on your left side for at least a half hour to let it get into the left colon area, but what about all the rest?

  smurf  Debbido  

Crohn's Colitis diagnosed: 01-10-2008 

 



pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/16/2008 10:07 PM (GMT -7)   
hmmm, maybe I'm wrong but if colocort is the generic version of cortifoam which is what I've been using on and off for the last 16ish yrs then I have to say that according to my GI(s) (I've had 4 in total) cortifoam is to heal the proctitis since it doesn't reach far enough into the colon, and for the colon, oral RX are needed...maybe things have changes in the last little while, I don't know...

Ask if specifically if the colocort will be enough or if you need oral meds too...just seems kinda odd that you'd get rectal meds to treat your colon if there isn't also inflammation in your rectom, so ask him about that as well.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


debbikay
Regular Member


Date Joined Dec 2007
Total Posts : 102
   Posted 1/16/2008 11:09 PM (GMT -7)   
I could be wrong, I'm still pretty confused by all this. I was thinking Colocort was the generic version of cortifoam because I'm on medi-cal
( state public medical assistance ) and they only will OK generic if it is available. But what the package says is: Colocort Hydrocortisone Rectal Suspension, USP (retention) 100mg/60ml so maybe it is different. I guess I should find out more. I felt really good the first couple of days. not so much my digestion but my energy and just in general. But today I had period cramps really bad ( I was 4 days late which is unusual) and just really bloated. I'm still having mild pain on the right side too and I just don't see how this stuff could make it all the way over there. I wish I was more assertive. I'm pretty shy in person and sometimes I feel intimidated by doctors. I forget to ask things and I don't want to take up to much of there time. I know it's dumb and I need to get over that now that I have a serious condition. If I was rich I would hire someone to follow me around and do all the asking and talking. LOL

  smurf  Debbido Crohn's Colitis diagnosed: 01-10-2008 

 



pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/17/2008 8:57 AM (GMT -7)   
:)

It makes sense if you were feeling okay or better and then started feeling yuck again because of your menstral cycle, both IBDers and IBSers commonly feel worse symptoms during their cycles, so it's likely that, you'll know a few days or so after your period is done. I know for me when I'm getting/have my periods my stool consistancy even changes from well formed (before periods) to looser and flatter stools during periods, and I've had docs confirm there is a connection to worsening of IBD/IBS symptoms for many woman during their cycle.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/17/2008 5:20 PM (GMT -7)   
I don't know anything about this sorry i'm no help Debbidoo
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 1/17/2008 8:35 PM (GMT -7)   
Hi Debbidoo,
Do you have someone close to you to take with to the doctor? I see myself as a very assertive person and a good communicator, but when I feel really sick, I turn to mush. If you don't have someone to bring and help you speak, then it also helps to write down your questions in advance. Then if you are anxious, you can look at your list, and remember what you want to ask. Good luck, and let us know how things go.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

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