Apology and Update

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eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 1/18/2008 5:18 AM (GMT -7)   

 

As some of you may have noticed, I am no longer a moderator.  Peter was kind enough to encourage me to stay on even when I was not pulling my weight,  and I did so for as long as my conscience would allow (well, longer, actually.)  I did not leave Healingwell, and even when I wasn’t posting at all, I still read what I could and included all of you in my prayers.  It just wasn’t right for me to be listed as a moderator when I wasn’t acting as one.  Besides the Crohn’s, I had a bout with tailbone pain and couldn’t sit for very long.  I have neuropathy, too, which is just a nuisance.  It was a bunch of little things, plus trying to get moved and organized, that set me back.

Now for the update.  It will have to be more of an outline.  I moved in with my brother and his family in September, and I am happy here.  I stopped Remicade because it was no longer working.  The doctor had mentioned Humira, but just before Christmas I had my first ambulance ride and my first ER visit due to Crohn’s.  It was an obstruction, but I kept my record of 25 years since diagnosis and no resections – so far.  The hospital stay is pretty much of a blur, thanks to dilaudid and phenergan, but I wish I had gone somewhere that my doctor has privileges.  If it ever happens again, I’ll swallow my pride and go earlier so I can get to the hospital I know.  My problem is that I’ve had many partial obstructions, but they all worked themselves out before I got desperate enough to call for help.  I thought this would be the same.

Anyway, I saw my regular GI and am on Entocort now (and eating very carefully.)  When I go back in February,  if things haven’t settled down a lot, he’s going to do another CE.  If the inflammation is diffuse, he’ll have to treat it medically; if it is localized, my first resection may be looming. What will be will be.

I pray for you all.  In order to give some meaning to the frustration of having to drop everything and run to the bathroom, I have decided to regard nature’s call as a call to prayer.  My bathroom is re-named my prayer room. So be assured that I am praying for you often!  From now on, I’ll try to post more often and not so much at a time.


Take care. Lois
 

http://www.geocities.com/eljay1066/Aunt_Babe_s_House.html

Post Edited (eljay1066) : 1/21/2008 8:42:12 AM (GMT-7)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/18/2008 8:02 AM (GMT -7)   
Ahhh Lois I am so sorry you are feeling so poorly. I like you fought surgery and finally I lost because I became totally blocked. I am hoping you will be luckier and will be able to avoid surgery. I will definetly keep you in my prayers. And thanks for all those you have sent up for us. Keep us posted.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 1/18/2008 8:04 AM (GMT -7)   
What a nice post Lois! I am glad you are doing better. Don't go away completely. I did that recently and I really missed everyone here. I know now this place is like a little bit of therapy for me. I can come here and post about yucky stuff that no one else wants to know... or will listen to.
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 8:48 AM (GMT -7)   
I know that you do not personally know me because I am new to the site. However, I wish you well. I also feel the same way as you about the bathroom. I think it has become my one place where I have a little time to myself to sit and think. After all I have three children 5 and under. I hope that you start to feel a little bit better.
 
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/18/2008 9:09 AM (GMT -7)   
Hi Lois. Thanks for the update....so sorry that life has been a bumpy road lately. Please keep us updated when you can.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 1/18/2008 9:45 AM (GMT -7)   
Lois,
Sorry to hear all of this. And very sorry I hadn't thought to ask about where you where earlier. I hope there are no more ambulance rides in store for you. I've only had one, though you know I'm certainly well known in all local ERs where I live (sigh). I feel the tailbone pain too. After all, they seem to do the bloody spinal injections there on me!
Please take care of yourself, get better, & come back & resume your Mod position when you are able. We DO miss you.
Here is a <<HUG>> and a giant <<<PRAYER>>> JUST for you.

Sincerely,
Matthew

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 1/18/2008 9:56 AM (GMT -7)   
Lois, please don't apologize for stepping down. We all have to put ourselves first at times due to this DD. Take care, rest and feel better.

Prayers...
 


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 1/18/2008 9:58 AM (GMT -7)   
Thanks so much, new friends and old. Matthew, fortunately my tailbone pain is easing now. The neuropathy is apparently from my spine and not due to diabetes. I have decided to be less demanding of myself, and that actually enables me to do more. Go figure.

Nanners, thanks for your response and for all the encouragement you give on this site. Karen, welcome back to you, and I'll answer your recent post soon. Amanda, nice to meet you, and wow! How do you ever even get into the bathroom with three little ones? Chroniemom, thanks, and I'll post more often from now on. Matthew, sorry to hear you have that tailbone thing, too. I couldn't sit and sitting is absolutely my favorite thing to do. I don't like lying down, won't stand. But mine is easing up. The neuropathy is probably from my spine and not related to diabetes, but I can deal with that because it comes and goes.

Thanks again for bearing with me and making me feel welcome, all.
Take care. Lois

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/18/2008 11:35 AM (GMT -7)   

Dear Lois,
Hi I am Kitt and I guess they through me in as mod to pinch hit.  I hope I can fill your shoes. I know every minute you have devoted to HW has been out of love and caring for the members.  Keep on praying in your new prayer room and know we are thinking of and praying for you. 
Nice to meet you. Gentle Hugs

Kitt

 


 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3310
   Posted 1/18/2008 2:52 PM (GMT -7)   
Awwww Lois, no need to apologize. I should have checked with you sooner. Hoping and praying you feel better soon. Here's a little ((((Hug)))) and a prayer coming your way.
Jon,  Co-moderator for Crohn's Disease and Depression forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/18/2008 4:54 PM (GMT -7)   
Lois, I am sure that Keah told you the scare your absence caused. After she determined that you were indeeed alive and well, we had a good laugh. Sorry your CD is being a bother. And I am very glad you updated us all!
Ides
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/18/2008 8:48 PM (GMT -7)   

Hi Lois,

Oh wow, it was so great to see a post from you, but I sure hate to hear of all the problems you have had going on. I knew about you moving , but did not know it was to your brother's, thats great.  I am quite sure your neighbors miss you.

I have been stricken by one of your past problems. Cellulitis in the legs. I was admitted to the hospital right after Thanksgiving and spent 8 days in there for wound care and IV antibiotics. I then did 10 days of IV antibiotics at home, all done by me me using my port, it was so simple. They accessed my port and I used it. All I can say is the past 2 yrs I have been putting up with hot, red swollen legs that would weep because they were so swollen. After the fever subsides and some of the swelling goes down, my legs peel like an actual sunburn. Sound familiar, lol. None of my drs really knew what to do with me. I have since of course changed PCP drs and that was a good move on my part.

How is your daughter and grandson? Do they still live close to you now? I sure hope so.
 
I too quit the Remicade, it just lost its punch with me. I have been on Entocort and Lialda, it will be 2 yrs this June after being dx'd with UC by way of scope. If I try to get off the Entocorte I start to flare. My dr says I will be on it indefinely, same with the Lialda.
 
You owe no one here an apology for stepping down as a moderator. You gave so much of your time and yourself on this board. Now its time, to let someone else do the job and you take care of you.
 
Please don't be a stranger and keep us posted on how you are doing. Hugs, Susie


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/19/2008 3:56 AM (GMT -7)   
Hi Lois,
I am glad to see a post from you. I am sorry you had a bit of a rough road. remember one thing we are always here for you no matter what.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 1/19/2008 11:08 PM (GMT -7)   
Hi Lois,
Sorry to hear what a rough journey you've had recently. You are in my thoughts and prayers. I always watch for people I've come to recognize and when I don't see their name up there for a while I worry even though we've never met. This is indeed a little family and to see each others post however short is always reassuring.
Glad you are back ....
Don't stay away..
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 1/20/2008 1:57 AM (GMT -7)   
lois, glad you have somebody to look after you now. i know how hard it was getting living alone for you. are you sure you dont want to join the resection club? i hear the entrance exam is not that hard!
randynoguts 



     http://www.geocities.com/randynogutsweb/


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/20/2008 2:47 AM (GMT -7)   
Bless you, Eljay, that's a very courageous attitude to take towards a horrible situation. I hope the Entocort kicks in quickly and that you'll be feeling better soon.

I'm sorry you've stood down, but I hope you'll be able to come back some day.

I.
Co-Moderator Crohn's Forum.


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 1/20/2008 12:22 PM (GMT -7)   
Thanks, lamb, Kitt, Jon, Ides, Susie, teddybear, Mary and Ivy. You are all so kind and patient. Jon, I would have Emailed you; I am so far behind. Ides, yes, Keah and I had a laugh once she found out I was still alive and typing. I thought I had told her I was moving, but my plans changed several times and when it finally happened it was hurried and hectic. I forgot to give anyone my new phone number and address.

Susie, I am so sorry to hear you've been suffering with cellulitis. It's awful, isn't it? I, too, had the weeping blisters, and the swollen, hot, red, itchy legs. Fortunately the medicines worked both times and I didn't have to be hospitalized. My PCP blamed the remicade for exacerbating it. Anyway, I haven't had it again, knock on wood.

Ides, Ivy, and other mods, I had meant to post a farewell on the moderator's board but was waiting to hear from Peter. He missed my first Email; so when he got the second one he acted quickly, and I didn't have a chance. I thank you all for bearing with my unannounced absences.

I am reading a bit every day but still not posting much. Of course, my prayers continue.


Take care. Lois
 

http://www.geocities.com/eljay1066/Aunt_Babe_s_House.html

Post Edited (eljay1066) : 1/20/2008 4:30:29 PM (GMT-7)


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 1/20/2008 2:56 PM (GMT -7)   
((((((HUGS)))))))) At my house we call those prayers "poo-poo prayers" :) I'm glad you're doing a bit better. I hope you continue to do well and keep us posted.

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 1/21/2008 7:27 PM (GMT -7)   
Lois,
I love that you re-named your bathroom and it's now your prayer room...do you mind if I steal that and use it at my house?
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 1/21/2008 7:43 PM (GMT -7)   
Randy, sorry. I inadvertently missed your post. Thanks for the invitation; I'll take it under advisement. Stef, I knew people here would understand "poo poo" prayers. Thanks for the name. Mcleaver, words and prayers are all I have and you can steal as many as you want.
Take care. Lois
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