As some of you may have noticed, I am no longer a moderator. Peter was kind enough to encourage me to stay on even when I was not pulling my weight, and I did so for as long as my conscience would allow (well, longer, actually.) I did not leave Healingwell, and even when I wasn’t posting at all, I still read what I could and included all of you in my prayers. It just wasn’t right for me to be listed as a moderator when I wasn’t acting as one. Besides the Crohn’s, I had a bout with tailbone pain and couldn’t sit for very long. I have neuropathy, too, which is just a nuisance. It was a bunch of little things, plus trying to get moved and organized, that set me back.
Now for the update. It will have to be more of an outline. I moved in with my brother and his family in September, and I am happy here. I stopped Remicade because it was no longer working. The doctor had mentioned Humira, but just before Christmas I had my first ambulance ride and my first ER visit due to Crohn’s. It was an obstruction, but I kept my record of 25 years since diagnosis and no resections – so far. The hospital stay is pretty much of a blur, thanks to dilaudid and phenergan, but I wish I had gone somewhere that my doctor has privileges. If it ever happens again, I’ll swallow my pride and go earlier so I can get to the hospital I know. My problem is that I’ve had many partial obstructions, but they all worked themselves out before I got desperate enough to call for help. I thought this would be the same.
Anyway, I saw my regular GI and am on Entocort now (and eating very carefully.) When I go back in February, if things haven’t settled down a lot, he’s going to do another CE. If the inflammation is diffuse, he’ll have to treat it medically; if it is localized, my first resection may be looming. What will be will be.
I pray for you all. In order to give some meaning to the frustration of having to drop everything and run to the bathroom, I have decided to regard nature’s call as a call to prayer. My bathroom is re-named my prayer room. So be assured that I am praying for you often! From now on, I’ll try to post more often and not so much at a time.
Post Edited (eljay1066) : 1/21/2008 8:42:12 AM (GMT-7)
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)
Dear Lois,Hi I am Kitt and I guess they through me in as mod to pinch hit. I hope I can fill your shoes. I know every minute you have devoted to HW has been out of love and caring for the members. Keep on praying in your new prayer room and know we are thinking of and praying for you. Nice to meet you. Gentle Hugs
Oh wow, it was so great to see a post from you, but I sure hate to hear of all the problems you have had going on. I knew about you moving , but did not know it was to your brother's, thats great. I am quite sure your neighbors miss you.
I have been stricken by one of your past problems. Cellulitis in the legs. I was admitted to the hospital right after Thanksgiving and spent 8 days in there for wound care and IV antibiotics. I then did 10 days of IV antibiotics at home, all done by me me using my port, it was so simple. They accessed my port and I used it. All I can say is the past 2 yrs I have been putting up with hot, red swollen legs that would weep because they were so swollen. After the fever subsides and some of the swelling goes down, my legs peel like an actual sunburn. Sound familiar, lol. None of my drs really knew what to do with me. I have since of course changed PCP drs and that was a good move on my part.
Post Edited (eljay1066) : 1/20/2008 4:30:29 PM (GMT-7)