Free Crohn's book.

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AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 8:52 AM (GMT -7)   
I just wanted to post this I am hoping that it is ok to do so. Awhile back before I was diagnosed I was looking through Crohn's websites and I had come across http://www.crohnsonline.com and realized that they had a free book that they were giving away. It is absolutely free no shipping, no catches. I recieved mine in the mail a couple weeks ago. It is the 100 Questions & Answers about Crohn's Disease nd Ulcerative Colitis: A Lahey Clinic Guide By Andrew S. Warner, MD and Amy E Barto, MD.
 
I just wanted to share this with others that may not know much about it or others that know a ton but still may want the book! There are a lot of good questions and answers in this book.
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 1/18/2008 9:14 AM (GMT -7)   
Thank you for sharing, I read a lot of books relating to CD and nutrition and I am going to get this book. I am hoping the Q/A will be good for friends and family who want to understand what CD is.
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa, Seaonale, Seroquel, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/18/2008 9:58 AM (GMT -7)   
That is a great book, I have it too. I shared it with the board about 6 months ago or so. Good to get it out there again since we have so many newbies. It gives alot good information on Crohns, medications, pregnancy, you name it.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 10:06 AM (GMT -7)   
I am slowly trying to go back and read some of the old posts. Some things I just seem lost when I read like about the meds and such. I guess it will take awhile to view and comprehend everything since a lot of this is just so very new to me.
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/18/2008 10:09 AM (GMT -7)   
Amanda that book in my opinion is really good. It provides alot of good information in an easy to read format too. I love the comments from people who are living with the disease too. Maybe you should let your husband read it too. Maybe it will enlighten him a little more to what you are going thru.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 10:29 AM (GMT -7)   
Nanners said...
Amanda that book in my opinion is really good. It provides alot of good information in an easy to read format too. I love the comments from people who are living with the disease too. Maybe you should let your husband read it too. Maybe it will enlighten him a little more to what you are going thru.
I am hoping I can find a local support group or something here in the state college, pa area. My husband really does need to learn more about it but I think he is afraid to. I finally got him to open up to me  tiny bit about why he has been acting so weird since I have been "officially" diagnosed. I also thinks he feels terrible since in the past he was getting so frustrated about me getting so sick all the time and us not knowing why. He used to feel I wasn't taking care of myself the way I should have been. I was avoiding wheat bread and such because I knew it bothered me terribly and he would literally bug me to eat it because it was healthier. I know he has a lot of guilt about that. He told me that he is afraid that something is going to happen to me one day and then I won't be there for the kids or him. I never knew he was so scared about it. I did send him the link to this website because I was hoping that one day he would decide to just come on and learn as much as he can. I am going to leave it on his night stand tonight and ask him to please read some of it because I do want him to be involved in my treatment and care as much as possible. If anyone knows of any support groups in my immediate area plz let me know I would greatly appreciate it. Having something local as well may be even more beneficial. You guys have already given me a self-esteem boost. I realize that I am definitely not the only one out there that feels so terrible so often.
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 1/18/2008 10:52 AM (GMT -7)   
Wow- Thanks Amanda! My Counselor told me the other day that I should get it! I feel I al ready know everything but I guess you can never learn too much. But I just ordered it! Fabulous! Take Care!
I have had Crohn's since I was 21 years old and I am now 27....

On HUMIRA....


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 10:54 AM (GMT -7)   
You are very welcome. :-)
Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/18/2008 10:56 AM (GMT -7)   
Thank you Amanda for sharing with the members of the C Family. That was extremely nice of you. Kudos to you.
Kitt
 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 11:00 AM (GMT -7)   
I almost feel embarassed to say this, yet I feel like I have found another family here and lots of friends. This site has really helped me a lot. I really truly appreciate the site and the people here. I find myself getting online or leaving my internet logged on because I have cable just to hop on and see whats new! :-)
stkitt said...
Thank you Amanda for sharing with the members of the C Family. That was extremely nice of you. Kudos to you.
Kitt


Amanda: age 23 happily married for 6 years
Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since a young child but I was FINALLY diagnosed 1/14/2008!
  • Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily

I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)

 
 


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/18/2008 11:59 AM (GMT -7)   
This is a good book!  I got mine recently as well!
 
Did it take you a while to get diagnosed, Amanda?

AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/18/2008 12:07 PM (GMT -7)   
I had been having symptoms since childhood. I went to doctor after doctor but I was having absolutely no luck getting anything. I even made sure to tell them that Crohn's disease was in my family. My cousin has it even though it was very rarely talked about I knew that it was in the family. I went in on the 7th for an upper gi and small bowel study and that is when the saw the terrible narrowing of the ileum. Then I went the next monday for the colonoscopy and my GI confirmed it immediately that it was crohn's disease. It was a long frustrating battle just to be diagnosed not that I was pushing for it i just wanted to know what was wrong with me and why I was feeling this way all the time. Hopefully my meds start to help soon.
indigosunrise said...
This is a good book!  I got mine recently as well!
 
Did it take you a while to get diagnosed, Amanda?

Amanda: age 23 happily married for 6 years Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since childhood but I was FINALLY diagnosed 1/14/2008! I also have scoliosis and hypothyroidism
Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily, I take levoxyl 200mcg for my thyroid issue.

 

 
 


heavly
Regular Member


Date Joined Nov 2007
Total Posts : 83
   Posted 1/18/2008 1:08 PM (GMT -7)   
Thanks for the post :)

I'm going to share this book with my boyfriend and my family. It's all so new to me too, I appreciate it.
xxoo
25 yrs - female : diagnosed with Crohn's 11/29/07

"i believe - you can keep going long after you can't"


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 1/18/2008 6:14 PM (GMT -7)   
Thank you for sharing this with us and I will be checking it out.
Curley
.........
 


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 1/18/2008 6:47 PM (GMT -7)   

Hi Amanda.  Welcome to HealingWell.  It sounds like you are on the right track trying to learn more about the disease and finding a support group.    (I say the three keys to dealing with this disease are:  education, support group/system, and a good doctor!)

A word about your husband:  I was diagnosed at 25 when our baby was about 18 months.  My husband had been on my case for quite some time about depression, needing to excercise, eat, etc.  Our marriage suffered because we didn't know what was wrong with me.  Once we got a diagnosis, I tried to learn all I could (after a bout of denial).  It was hard for him because of two things: it was hard for me to talk about it (kind of embarassing for newlyweds to talk about, ya know) and he was scared.  When you hear that close to 80% of CD patients have to have surgery, that's a scary thing. 

So every time I go into a flare, my husband immediatly thinks, "what is going to happen this time?  Is there going to be a fistula, absess, blockage, etc? Don't get me wrong, I used to be the same way.

The thing that has helped us is that he knows I am trying to stay on top of the latest research going on as well as taking my meds and doing things to make myself as healthy as possible.  In return he tries to be as understanding as possible.  But it is hard at times.  Being the spouse of a chroniclly ill person is very, very trying.  I highly recommend going to some kind of counselor/therapist (go alone and with your husband--and make him go alone too). 

I always had a hard time asking for help.  But with this disease, you learn that asking for help is not such a bad thing.  Good luck to you and your husband as you learn to navigate these new waters.


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 1/19/2008 8:26 PM (GMT -7)   
I got this awhile ago and its actually quite informative. I put it in the bathroom ----- LOL!!!!

Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 1/19/2008 9:24 PM (GMT -7)   
Thanks a ton!  I just signed up to get the book.

angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 1/19/2008 9:55 PM (GMT -7)   
:-)  Just when theres something i dont have to pay for going i dont qualify im in the uk lol oh well never mind!

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/20/2008 5:50 AM (GMT -7)   
Thanks! I signed up for the book too.

AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 1/20/2008 12:16 PM (GMT -7)   
angelang40 said...
:-)  Just when theres something i dont have to pay for going i dont qualify im in the uk lol oh well never mind!
I'm sorry. I didn't know what the requirements were. :-) Maybe we can find something like that for in the UK.
Amanda: age 23 happily married for 6 years Mother to Kirstiana 5, Savannah soon to be 2, Halen 11 weeks
I have had symptoms since childhood but I was FINALLY diagnosed 1/14/2008! I also have scoliosis and hypothyroidism
Currently taking: Pentasa 500 mg 2 tablets 3 times daily  Darvocet 1 tablet every 6 hours as needed (I can't take due to watching my children it makes me drowsy and sick) Prednisone 60 mg to decrease by 10 mg weekly until down to 2.5mg Ranitidine 300 mg 1 tablet twice daily Women's one a day multi-vitamin with double the calcium once daily, I take levoxyl 200mcg for my thyroid issue.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/20/2008 12:19 PM (GMT -7)   
I signed up for the book too........they will be in shock when they open their mail tomorrow. Thanks again .

chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 1/21/2008 10:05 AM (GMT -7)   
I tried to order this book but unfortuanatly I am in Canada and this is only available to US residents

Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/14/2008 8:46 PM (GMT -7)   
This is a great book to have. It answers so many questions.

chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 4/14/2008 8:54 PM (GMT -7)   
does anyone know a way we can order this in Canada. I would really love to read it!!

nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/14/2008 9:46 PM (GMT -7)   
Thank you so much for posting this link.  I too have had sypmtoms since childhood.  I haven't been formally diagnosed yet as I have a Lower GI and Colonoscopy May 8th, hopefully they'll be able to tell me for sure.  I also have a cousin with Chrons too.  Thanks again!!!
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