I have no family or friends around me other than my husband and children so I very greatly appreciate this group and i'm hoping to become a regular. You are all great people! (I also need to add my father in law does live fairly close as well..I don't want to leave him out.)
Hi Amanda. Welcome to HealingWell. It sounds like you are on the right track trying to learn more about the disease and finding a support group. (I say the three keys to dealing with this disease are: education, support group/system, and a good doctor!)
A word about your husband: I was diagnosed at 25 when our baby was about 18 months. My husband had been on my case for quite some time about depression, needing to excercise, eat, etc. Our marriage suffered because we didn't know what was wrong with me. Once we got a diagnosis, I tried to learn all I could (after a bout of denial). It was hard for him because of two things: it was hard for me to talk about it (kind of embarassing for newlyweds to talk about, ya know) and he was scared. When you hear that close to 80% of CD patients have to have surgery, that's a scary thing.
So every time I go into a flare, my husband immediatly thinks, "what is going to happen this time? Is there going to be a fistula, absess, blockage, etc? Don't get me wrong, I used to be the same way.
The thing that has helped us is that he knows I am trying to stay on top of the latest research going on as well as taking my meds and doing things to make myself as healthy as possible. In return he tries to be as understanding as possible. But it is hard at times. Being the spouse of a chroniclly ill person is very, very trying. I highly recommend going to some kind of counselor/therapist (go alone and with your husband--and make him go alone too).
I always had a hard time asking for help. But with this disease, you learn that asking for help is not such a bad thing. Good luck to you and your husband as you learn to navigate these new waters.