Vitamin D and Crohn's

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73monte
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Date Joined Mar 2007
Total Posts : 1496
   Posted 1/18/2008 9:09 AM (GMT -7)   
I found this info. regarding Vitamin D and Crohn's/Colitis. I had never heard that there was any connection.
 
<<<Recent research with mice at Penn State has demonstrated a connection between vitamin D deficiency and two bowel diseases that occur in one out of every 1,000 people in North America and Europe, Crohn's disease and ulcerative colitis. Treatment with Vitamin D for as little as two weeks lessened the symptoms of these inflammatory bowel diseases in mice.  (This was discussed in a recent Nutrient News article here. >>>
 
Heres the link: http://www.vitaminexpress.com/article.php/content/vitamin_d.php
My 13 year old daughter was diagnosed Feb. 19/07 with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa, and iron supplement.


njmom
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Date Joined Apr 2006
Total Posts : 1884
   Posted 1/18/2008 9:24 AM (GMT -7)   
I knew that there was research going into the role of vitamin D and Crohn's, but didn't know about the Penn State study. Thanks.
 
To test for vitamin D deficiency, a blood test needs to be done to check the level of vitamin D 25-hydroxy. (And NOT vitamin D 1,25).
 
The latest recommendation from the famous Dr. Weil is that everybody should take 1,000IU daily of vitamin D (D3 is best, not D2).
 
My daughter finds that the only way she can keep her vitamin D from falling is by taking at least 1,800IU daily. 
 
In latitudes from Boston northward, between the months of November and February, most people cannot get enough vitamin D from the sun.
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivit, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. Off SCD diet but wheat was iffy so back on SCD modified to include potatos and rice.   


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 1/18/2008 9:53 AM (GMT -7)   
Dr. Mehmet Oz was on Oprah in the fall and he said to be sure you're taking D3 (cholecalciferol), not D2. He added that you are not getting the correct D in most dairy, as it is supplemented with D2. He himself takes D3 and I *think* he said he takes 1500 IUs a day.

He classifies it as an antioxidant and says right now we can take up to 2000 IUs--unless you're out in the sun, then you cut back. I seem to remember him saying he expects that dosage to go up in the future as we begin to understand vit. D3 better. Also, he used Atlanta as a latitudinal line. Anyone north of there needs to supplement in the winter months. He also pointed out that it does no good to go outside for sunshine D3 if you're all covered up (because it's COLD out!! Burrrrrr!). Face and arms, at the very least, should be exposed. Today that would mean frostbite here!!!

Thanks for posting that, 73monte!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Blue Velvyt
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Date Joined Sep 2006
Total Posts : 194
   Posted 1/18/2008 12:58 PM (GMT -7)   
MY Vitamin D dropped off the charts, dairy I can not do :) As well as iron, b-12 and one I forget right now...

anyway, taking vitamin d pills every week, still waiting for it to help , was told though it would take a couple months before If elt the difference.

Not quite the same as vitamin d helping relive the pain, but thought I would add my D was effected and perhaps the pills will reverse the muscle pain and help with the other "chronic pain"

yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 1/18/2008 1:02 PM (GMT -7)   
Vit D seems to be the "new black," as it is being advised by all the docs for menopause, bone loss, digestion, etc etc..I am getting some today!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus, probiotics, and vicodin as needed. Experimenting with gluten-free diet per naturopath's tests.


73monte
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Date Joined Mar 2007
Total Posts : 1496
   Posted 1/18/2008 8:25 PM (GMT -7)   
Before you start to supplement with Vitamin D, try to do some research about the differences between D2 and D3. From what I understand D3 is a much more potent form of Vitamin D, and is more closely related to the the D we would get form the sun. I'm pretty vague on all of that though, surf the net and see what you come up with, or ask your Doctor. 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 1/21/2008 10:10 PM (GMT -7)   
I know I usually feel better when it is warm and I am working outdoors in the sun. Is it because the body makes its own vitamin D from the sun? Was it a coincidence that I got sick with this disease in February?? Now, some studies say that the sunscreen can cause cancer and the sun prevents it. Makes sense that something that has been around longer than mankind and nourishes life on earth may be better for us than using sunscreen.
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/21/2008 10:29 PM (GMT -7)   
The mention of lack of Vitamin D and diseases was mentioned here a while back...living in Canada sure doesn't help with the loooooooong winters we get that's for sure.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 1/22/2008 7:14 AM (GMT -7)   
my GP tested my vitamin D levels this past summer because I have IBD & a sun sensitivity from a cardio med that I take.she also told me that lack of vit. D can cause alot of unexplained aches & pains.

thanks for sharing!
I sure do learn alot more useful info from this message board then all of my specialist docs put together...hehe ;)
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/22/2008 8:16 AM (GMT -7)   
I just heard, too, that darker skinned people have less D as they absorb less sun.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now just taking Glycolax, Ultra Fiber Plus, probiotics, and vicodin as needed. Experimenting with gluten-free diet per naturopath's tests.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/22/2008 8:30 AM (GMT -7)   
yogaprof, it may be too soon (I've lost track of time), but please let us know how the gluten-free diet is going after you've been on it a bit. Thanks!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 1/22/2008 8:59 AM (GMT -7)   
I've wondered if this ties in to the notion that IBD might be worse for flares in the winter. I've heard a lot of people saying that they feel better in the summer months. I don't notice a difference, but it seems like several people do. Vit D would help explain that. I also heard a little about calcitriol, and it being studied with psoriasis.

Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 1/22/2008 9:25 AM (GMT -7)   
"Dr. Mehmet Oz was on Oprah in the fall and he said to be sure you're taking D3 (cholecalciferol), not D2. He added that you are not getting the correct D in most dairy, as it is supplemented with D2. He himself takes D3 and I *think* he said he takes 1500 IUs a day".

Yes, I red that there will be a trial in Canada the coming years on 1000 IU a day for all participants. Vitamine D3 is preventing cancer, they think. I take 1000 IUs a day, but I am not afraid of taking even more. I use cod liver oil containing D3, Vitamin E and omega 3. I am sure a use a big bottle a month :)

I live "on the top of the world", not far from the North Pole, we have no sun during 2 wintermonths at all. The sun is below the horisont then. It's dark, but luckily we have the cod in the North See along the coast of our beautiful country. Cod liver oil may be the best for IBD, both the omega 3, vit D and E is helping IBD. So they say.


Another think, a bit off topic, but anyway:
I still use LDN, low dose naltrexone. I am in remission since the first week I started to take it. It's such a small pill, only 4.5 mg's. I have not used anything else since mid september 2007. No cramps, no pain, no vomiting, no obstruction episodes, no red eyes, no bloating, and NO DIARRHEA........And it helps a lot of Crohnies that's visiting the yahoo.com forum lowdosenaltrexone.

If some are interested in learning more: register with one new emailadress where all emails on ldn will stay, and just stay as a lurker. Noone knows you have registered, noone knows you're there, and of course, if you want to pop in to ask a question, you're welcome to do that.


Best wishes
Ingrid


 
Diagnosed CD June 2007. Have only used prednisone. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. LDN is super! I am now in remission ;-)

Post Edited (Skjura) : 1/22/2008 9:55:41 AM (GMT-7)

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