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New Member

Date Joined Jan 2008
Total Posts : 4
   Posted 1/21/2008 12:33 PM (GMT -6)   
Hi there,i have never done this before,so here i go....My biggest problem living with Crohn's (right now)is the fatigue.I am only 39 yrs old,but feel like i'm 80!For real!!!!I have had this disease since i was 13,and i can't ever remember feeling this drained (all the time!)Anyone have any suggestions?Guess i'm looking for the miracle pill. tongue

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/21/2008 12:38 PM (GMT -6)   

Hello Cici21 and welcome to HealingWell and the CD Forum. I am so glad you found us as you will find many wonderful and caring members here that know where your coming from and what your going through.

Fatigue is tough on a person.  I know my husband receives the B 12 injections every month and that helps him.  He also takes a nap every afternoon as his body just shuts down and demands the rest.  Has anything changed in your disease process lately that would account for the fatigue.....any med changes?  How about meds for another condition?

Again a warm welcome and know that you are safe here so post away.
Gentle Hugs, Kitt

Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 1/21/2008 12:43 PM (GMT -6)   
Hi cici :)

Sorry you have to be here...goodness you've been dealing with CD for much too long! As far as the fatigue toes, I know this will sound crazy and maybe even impossible but the only thing that really helps my fatigue is exercising regularly, at least 4 days a week with both cardio and weights...there are plenty of yogas to choose from as well and you can combine different programs together too...honestly exercising has been what brought me out of feeling tired and eating healthy helps too, giving up junk-foods, refined sugar and such has given me back my energy.

Sorry, no miracle pill, just some sweat and tears for giving up the junk/sugar but honestly it's been well worth it for my overall well-being.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 1/21/2008 12:49 PM (GMT -6)   
Unless you have already done so, I would sure ask the GI to test you for low B12. That can lead to anemia and fatigue over time, and B12 deficiency is not uncommon with longstanding Crohns, due to scarring and malabsorption in the terminal ileum.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 1/21/2008 1:49 PM (GMT -6)   
Welcome to HealingWell!
Not many suggestions, as there doesn't seem to be any magic pill for any aspect of this DD! Definitely look into the B12 thing. also, have them check you for depression. A real possibility for you, especially if this is a fairly new diagnosis. How long have you known your a Crohnie?


New Member

Date Joined Jan 2008
Total Posts : 4
   Posted 1/21/2008 2:21 PM (GMT -6)   
wow,it worked,****.Thanks for getting back to me,ya i kinda thought it would come down to the exercise thing!LOL.It is hard to get motivated due to the arthritis,and other probs,buti have to do something.It has been a long haul living with disease,but i do believe it has made me a stronger person.I can remember when i was first diagnosed,i thought i was as good as dead!I was told i would never have kids,and likely die of colon cancer in my 20's.All i have to say to the people out there who like to play god.........F...U.I have 2 beautiful,so far healthy kids,6&15,i have a wonderful husband,a wonderful home.Ya i have a disease,but its like anything,you learn to cope the best u can,and just enjoy the time u have on this planet.Thanks everyone,so glad to have found this site!I think it will help.

Regular Member

Date Joined Jan 2008
Total Posts : 53
   Posted 1/21/2008 4:49 PM (GMT -6)   
I would also look into an iron suppliment as well, a low iron count is also related to fatigue and anemia.

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 1/21/2008 9:11 PM (GMT -6)   
Hi Cici and welcome!
I am 39 too (actually will be on Saturday)...coincidence?! Anyway, the fatigue caused by the CD is really up and down for me, sometimes I am fatigued for days on end, always when I am running a low grade fever...then for awhile my energy level goes back up, which is awesome. I have found that since regularly taking my iron supplements and multivitamin it really has made a huge difference in my level of energy...what a God send the iron supplements have been. I was anemic for soooo long, to the point of getting dizzy couple times per week...but iron supplement twice a day and the dizziness is gone and the fatigue has improved a lot too.
Are you taking any supplements? Have you had your blood tested lately? You might be anemic.
Anyway...welcome aboard, any more questions please ask us...we all love to talk here...haha.
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)

Blue Velvyt
Regular Member

Date Joined Sep 2006
Total Posts : 194
   Posted 1/21/2008 9:39 PM (GMT -6)   
Welcome, post anytime, others posts help keep me sane :) and I hope to help anyway I can, even if that means cheerleading ont he forums.

Definitely look into the vitamin deficienies, iron, b12, d, etc

These things can cause massive fatigue, muscle pain and a slew of incredilby uncomfortable symptoms.

Im in the same boat, massive fatigue, muscle pain etc, trying to right the ship with vitamins, injections etc.

Get on it withyour Doc, get blood tests for anything you or your Doc deam needed, really hopeyour feeling better soon

Veteran Member

Date Joined Jan 2003
Total Posts : 3166
   Posted 1/21/2008 9:49 PM (GMT -6)   
Hi and welcome, cici, though I'm sorry the entrance requirements are so demanding. I, too, have as hard a time with fatigue as with pain, sometimes more because I know the pain is real but it's hard to accept that I can't push through the tiredness. I am learning to do things in installments, even little things like emptying the dishwasher. I put the things from the top shelf on the counter, take a break, put the dishes on the counter away, take a break, empty the bottom shelf, tale a breal. etc. It takes me all day sometimes but it gets done. I know not everyone has the leisure to live that way, but it helps me a lot to break tasks into steps. I agree that you should keep looking for reasons and relief; in the meantime, though, give yourself some wins.
Take care. Lois

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/22/2008 5:20 AM (GMT -6)   
Just wanted to say hi and Welcome to HW. These are a great set of ppl here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

New Member

Date Joined Jan 2008
Total Posts : 4
   Posted 1/22/2008 10:55 AM (GMT -6)   
Thankyou everyone for the words of advise,u all r so nice,and it is really helping me out!I am anemic,and i am currently trying the b12 strips that dissolve on the tongue.No improvement in the fatigue as of yet,but it hasn't even been a month yet.As for the iron suppliments,they really upset my stomach,and i refuse to get the shots again,my hip wasn't right for 3 months after stopping the shots.Any suggestions as to what i can do for the iron would be appriciated.Anyone else have a problem with lack of magnesium,can't seem to retain it,and have to keep taking the liquid stuff all the time.The signs of it are crazy,tingling in the fingers,and the feeling travels up into my face when it gets really bad.Hands start to distort,they dont even feel like my hands at timed.I have only had this problem for the pat yr,and never even heard of it.Ive always had a problem with my pottasium levels,not magnesium?Dont get it????Anyways till next time,take care y'all,and thanks!

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 1/22/2008 12:54 PM (GMT -6)   
Mybe you should go for the B12 shots, since it gets absorbed fastes this way, tingling finers (pins and needles) is also the first indication of nerve damage due to lack of B12.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 1/22/2008 4:02 PM (GMT -6)   

Welcome Cici!  There are some great people here who have answered many of my questions and helped me with concerns!

I hope you find something to help with the fatigue!

Take care!



Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 1/22/2008 6:00 PM (GMT -6)   
Taking vitamin c allows me to absorb more iron from food so I can avoid the supplements.
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