Dghtr sees cardiologist tomorrow

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C-Mom
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Date Joined Jun 2007
Total Posts : 29
   Posted 1/21/2008 3:22 PM (GMT -7)   
My daughter sees the cardiologist tomorrow to find out if these heart issues are going to make her Remicade a no-go anymore. She is now 10 days past her 8 week cycle for Remi and she started flaring last week. I put her on a liquid diet and it helped after three days to start reversing the flaring trend. Kind of between a rock and hard place, as the Remi was the only thing that worked for her when she was first diagnosed with a massive bleed last April. Yet the Remi seems hard for her body to tolerate. I've noticed her returning more to her "normal" self this week (better attention span, finishes homework easily now!), since she's been longer off the Remi. She's noticed too. I just want to know it is "safe" for her to take. She's temporarily scheduled for Friday if we get the green light from the cardiologist tomorrow that the heart episodes after Remi are not harming her body. I guess we need to get another chest x-ray to see if her right lung still has fluid in it. Is it safe to have Remicade with your lung compromised in that way? Remicade - it's been a love/hate relationship for us. A blessed help but not without a price.

chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 1/21/2008 3:26 PM (GMT -7)   
I can't imagine your dr. giving the ok for the remicade with the lung issue, and personally, I would be really hesitant about putting her back on it with the other issues...attenion span and all.

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/21/2008 3:38 PM (GMT -7)   
Unfortunately, the inflamation from crohns can cause heart and lung problems. I think the cardiologist and a pluminologist might be a good idea.
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stkitt
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   Posted 1/21/2008 4:52 PM (GMT -7)   

IMHO I would be very leary of the Remicade as it comes with a warning regarding lung problems.  I too would want the opinion of the cardiologist and pulmonologist. I know many people take the medication and have no side effects as your daughters but please remember each person reacts differently to medications.

Bless you and please keep posting.


 
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C-Mom
Regular Member


Date Joined Jun 2007
Total Posts : 29
   Posted 1/22/2008 3:34 PM (GMT -7)   
Thanks for your insights/input. The cardiologist said the heart was in good shape and she basically said the heart racing/pain issues are a side effect of the Remicade for her, but that it appears that it is not harming her heart. That was such good news. The cardiologist didn't really have any suggestions about the lung issue (actelactasis), saying that can happen with a virus. Her G.I. doc doesn't seem concerned about the lung, but I'm hesitant to just let it go and go for the Remicade on Friday. She's still maintaining on a liquid diet, which has kept her flare from getting worse, but I'm also nervous about not having the Remicade and she flares big-time again. Aren't you not supposed to get Remicade if you are having lung issues? Any suggestions on how to approach this with her G.I. doc that I want "lung clearance" before getting the next Remicade?
Thanks so much. It is SO helpful to "talk" with you all who have been through so much of this before us.

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/22/2008 6:51 PM (GMT -7)   
All we can say is go see a pulmonologist too.
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We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

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