after remicade

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Regular Member

Date Joined Jan 2008
Total Posts : 67
   Posted 1/22/2008 12:51 PM (GMT -6)   
It's the day after my first remicade, I had a mild headache yesterday. Today I got up with bad joint pain and a really bad headache. It will be worth it I keep telling myself. I had to leave work early and come home and sleep. Just wanted to vent alittle......thanks

Regular Member

Date Joined Oct 2007
Total Posts : 235
   Posted 1/22/2008 1:24 PM (GMT -6)   
It will! Strangely enough, the same thing happened to me when I started Entocort. I couldn't believe that it could be caused by such a benign little thing as Entocort, but it was. I eventually adjusted to it, though, and the side effects are gone. I had bad headaches, the feeling like I had the "flu" (joint pain, muscle pain, etc.), and really bad fatigue.
Just trying to be a "Regular Member".
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 1/22/2008 1:26 PM (GMT -6)   
It usually takes me at least 3 days to get over the headache and fatigue, I used to get joint pain also but the last few infusions went much better. I have to be honest and let you know for me personally sometimes it would knock me for a serious loop for up to a week, I call it my remicade hangover. But for me it is beyond worth it, remicade gave me back my life and got me into remission. I hope it helps you as much as it has helped me!!
Feel free to vent, that is what we are here for! Take it easy and get some rest!
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa, Seaonale, Seroquel, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

Regular Member

Date Joined Oct 2006
Total Posts : 87
   Posted 1/22/2008 3:10 PM (GMT -6)   
i always do my treatment on friday that way i know i have at least the weekend to get over it and sometimes i still have to take off on monday too.I have noticed it helps if i take my pain pills and sit with my heating pad or take hot baths.
dx in oct 2006
entocort ec 9mg 1xday
remicade 10mg per kilo every 6-8 weeks
phenagren every 8 hours
dycyclomine 20mg 3xday
iron 325mg 2xday
calcium supplement
hydrocodone/apap 5mg/500mg 1-2 tabs every 4-6 hours
hydroxyzine 25 mg 1 tab every 4-6 hours
glycopyrrolate 2 mg every 8-12 hours

Regular Member

Date Joined Jan 2008
Total Posts : 67
   Posted 1/22/2008 4:39 PM (GMT -6)   
Should I ask for pain pills?.......always afraid to ask, my doc doesn't seem to like to give them

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/22/2008 4:59 PM (GMT -6)   
Hi I would recommened asking for pain meds. I have been on Remicade for over 2 years and I am doing fine with it I have no-side effects. I hope you have good results like I have from the Remicade
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Aug 2004
Total Posts : 1169
   Posted 1/23/2008 1:58 AM (GMT -6)   
styxgurl---i wish you the best with remicade as you know we all are known as crohnies but
we are alittle different in small or large ways,what works for some may not work for others
its your body and your ''crohns disease'' listen to your body--check out your gi watch your
sugar count and see it you feel better with remicade or not??all med's have some side -effects
ask for pain meds which will more likely ultram--just keep watch over how you feel on remicade
best of luck but remember ''we are all different''--
crohns since 1994-retired-

Regular Member

Date Joined Sep 2006
Total Posts : 181
   Posted 1/23/2008 2:13 AM (GMT -6)   
I highly recommend getting Remicade on Friday if possible for the first 5 or 6 infusions.  I suffered for leg cramps and joint pain after the first infusions as well. Not to mention I would sleep for hours after them, then be up all night.  Usually by Monday I was getting back to normal.  For me, Remicade is a miracle drug and worth the first weeks of side effects.  Best of luck to you!
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa

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