daughters constipation

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gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 1/22/2008 11:33 AM (GMT -7)   
i have uc.  my daughter has had severe constipation for months now.  i've been told crohn's can also cause constipation.  what can i do for her?  her doc put her on contulose liquid every day.  that didn't work so we went on miralax daily.  i finally gave her milk of mag and that worked, but she immediatly goes back to constipation.  i'm telling you i can't believe what comes out of this 4 year olds body.  it would hurt an adult!  we have an appt with our md today and he's taking an xray to see if there's a blockage.  we have an appt with our 1st pediatric gastro in 3 weeks.  what else can i do in the mean time?
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/22/2008 11:50 AM (GMT -7)   
I don't know what that contulose liquid is, but I use a stool softner everyday to keep myself going. Colace is an example. But do talk to her Ped about this first.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 1/22/2008 12:31 PM (GMT -7)   
the contulose, from what i've been told, is both stool softner and laxative. do they make a children's otc softner?
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 1/22/2008 12:45 PM (GMT -7)   
My Daughter was pretty much born constipated. Sign of things to come?? Her Peds just kept dismissing it over and over again. We found that Citrucel daily worked best for her when she was old enough for it. Would still take her 2-3 days to go. I SO hear you! What came out of my Daughter's tiny backend when she would finally go was pretty darn scary!
I would cringe, but she claimed it didn't really hurt. Always had to keep a plunger nearby for those "special" times.

Daughter was diagnosed with Crohns/Colitis at age 17. She is 25 now and has never really suffered the "D" that so many IBDers do. She still can get constipated! She suffers more from urgency and frequency especially after a meal.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/22/2008 12:53 PM (GMT -7)   

My granddaughter went through a period of being very constipated at about the same age. It  helped to give her added fiber by mixing Metamucil or Citrucel with 8 ounces of water or juice, or another bulk forming laxative or fiber supplements.

Let us know how you make out with the physician. Take care.


 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
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want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 1/23/2008 12:17 AM (GMT -7)   
How long has she been on the Miralax? It can take 3 or 4 days to kick in, but for me when remicade constipates me I take it daily and it works miracles. If I need extra help I drink a caffienated beverage too.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 1/23/2008 12:45 PM (GMT -7)   
she's been on miralax for almost a week. she did go a little yesterday and today. went to our pcp yesterday. he doubled her miralax, added 1 tsp of mineral oil 2x a day, and an enema tonight and tomorrow....he wants to start with a "clean colon"....i'm a little worried about administering the enema!!!
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 1/23/2008 1:25 PM (GMT -7)   
Hi Gela. My daughter was regular up to the time of potty training. Then she wouldn't go for days. Finally she started having poo accidents. My mind immediately went to CD, since I was constipated all my childhood and then dx'ed with CD. I asked my GI about it and he immediatly (during my appt while I was in the room) called his friend--a ped GI to ask him if he thought she needed to come in.

Long story short, she's been on Miralax (started at full dose daily, in the middle of a long weaning process) for eight months. She drinks it daily, sits on the potty after dinner, and we keep track of all BM's with a sticker on the calendar that we take back to the dr.'s office.

We has seen great improvement--not only with #of BM's, but also her listening to her body. The dr. said that he is seeing more kids with this condition than any sort of disease. He also said that it tends to be the bright kids who have this problem :)

Good luck!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/23/2008 1:28 PM (GMT -7)   
Yogurt might help. Also, more fiber like cooked vegies, fruit, and cereal with high fiber content.
 
Avoid rice while she is constipated, because it can make it worse. 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/23/2008 6:44 PM (GMT -7)   
Boy this really makes me a little nervous for my oldest granddaughter. She has been constipated since she was a baby too. I can remember her mom and me having to help her pass stool sometimes. I sure hope her future does not include Crohns. She takes stool softners or mineral oil to help her go. Her mom says her stools are so large she doesn't know how her little body passes it. None of my girls have Crohns although all 3 have IBS. I pray my baby girl doesn't end up with this hideous disease. Good luck Gela!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 1/23/2008 8:34 PM (GMT -7)   
Nanners,

I hope Crohn's is not the future for your dear Grandaughter either. I was always having to use some means of helping my Daughter go and amazing how many things did not work all that well. Suppositories as a baby, Castoria as a toddler working our way up to Citrucel. I remember Magnesium Citrate coming right back up when she tried that, mineral oil did not work, nor stool softeners. I think I remember administering an enema or two. Always stayed on top of her diet, lots of fiber hoping that she would just go naturally/regular which she did sometimes. Luckily she was a good healthy, non-picky eater, still is at 25. The large, hard stool used to just flabbergast us. Potty training for bowels was a REAL chore.

I remember one time and one time only my Daughter had "D" and that was the day we brought her home from the hospital after her birth. From that day forward it was pretty much "C" from then on.

Crohnie Yogi,

Yep, my Daughter was considered a bright child! I also found that any change in Daughter's daily routine/schedule would throw her off horribly like going on vacation or staying at Grandma's for a few days. I used to think she had a fear of using "other" toilets.

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 1/24/2008 9:15 AM (GMT -7)   
Something I forgot--straight apple juice works, too. (But I would go to a ped GI just in case.)

gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 1/24/2008 9:50 AM (GMT -7)   
we've been givng her tons of apple juice, fiber one bars, apples, you name it. she's gone some the past couple of days, just waiting to see what happens.....we go to the ped gi on feb 11th.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 2/4/2008 10:35 PM (GMT -7)   
Gela any luck yet? I was hoping daily Mirlax would be working well by now.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 2/6/2008 8:02 AM (GMT -7)   
it has helped tremendously, along with the mineral oil.  we go to see the ped gastro on monday...hoping to get some answeres as to why she chronically has the proble,...thanks for the responses!
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.

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