Working with CD

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Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 1/23/2008 10:48 AM (GMT -7)   
Hi Everyone,
 
I'm supposed to start Humira on in a week.  I'm excited cause I hear a lot of good feedback on the effects, but I have to admit at the same time I'm skeptical.  I have switched meds constantly for the past year (Ive been in a flare for over a year now).  Every time I switch I think it will be the miracle drug that will help me get through the day, but I'm always let down...
 
In case this Humira thing doesnt work, I guess my question is whether people with CD eventually end up on disability?  Does anyone know the % of people with CD who are on disability?  If this doesnt work, I am terrified of losing my job or having to give it up - I love my work.  But I also can't say I'm being very effective anymore - more than 10 bathroom visits a day and pain all the time... My boss is understanding but I always feel so guilty running out of meetings or going home cause I had an 'accident'. 
 
My other question is more optimistic: If the Humira does work, and I decide to start job searching (I want to advance my career) do I have to tell my next employer about CD?  Is CD considered a disability? 
 
Thanks!! 
 
Hope you are all feeling better today than yesterday!
Diagnosed with UC 8 years ago
Asacol / 12 per day
Canasa / 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!)
Azathioprine / 100 MG Day
Levaquin 1 per day
Flogyl 1 per day
Diagnosed with Crohn's 6/26/2007
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/23/2008 11:05 AM (GMT -7)   
Well, this is just me speaking, but I have had Crohns for over 32 years and have worked most of them. But I also have a milder form of Crohns. I have missed alot of time due to Crohns, but think I would go stir crazy if I didn't work. Helps to keep my mind off my gut. Ha! But for some there is no choice, they have to go on disability. If this is a direction you need to go, my one tip is to have all doctors on board with you and also have an attorney.

As for telling your future bosses, I believe (my opinion) that you should tell. Otherwise, when we don't eat this or that, or get sick and loose weight they start assuming other things like eating disorders etc. I have always been up front about it, and for the most part my bosses have been very supportive. jmho!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/23/2008 11:46 AM (GMT -7)   
I would say it depends on the person, severity of the disease, and financial situation. There are some that really shouldn't be working but do anyway because that is there only means of insurance. I worked through some really really nasty flares but only because I basically had to. My coworkers were understanding and I used the restroom a ton but was never in there for so long that it was a huge problem.

I do tell all my employers but not during the interview process. Just after I start to get to know them. Usually it comes up at a firm lunch or something. Or even during training when I say "don't think I'm rude if I step out a lot from the morning meeting, I have crohns disease and can't wait."

I think it brings us peace of mind to not have this big secret and to even get some accomodations but I know not all that have disclosed have been so lucky.

I think a lot has to do w/ your mindset too. People that have severe anxiety about accidents are going to have a much harder time than those that think eh, if it happens, it will suck, but what can I do? I know I have worked when an accident was a likely probability but knock on wood it didn't happen. I think someone a little less shameless would have said geez, I can't leave the house like this. I am not saying that one is better than the other just that we all have different ways of dealing with pain and embarassment.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/23/2008 1:05 PM (GMT -7)   

Hey there, Nanners and FitzyK23 said it well, very well.  It is very dependent on the course of your disease.  Also how you handle the disease process emotionally has a lot to do with working.

I know some people that have been on disability almost from the beginning of their disease and others who worked whenever they could. We know that Crohn's can cause severe pain too so again it is an individual case by case decision.

I hope you will continue to work as you have the desire too, that is half the battle.  :)

Take care and keep posting.


 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 1/23/2008 5:46 PM (GMT -7)   
Tell a potential employer about any illness or diseases you have AFTER you get the job offer. Don't give them any reason to deny offering you the job because of it.

As far as working goes.... I only was diagnosed 2 years ago but I have been having the fatigue and joint pain symptoms since I was 16. I have always worked or gone to school except the two times I was too sick to work for about 6 months the first time in college, and about 3 months 2 years ago when I was diagnosed with CD. I expect to work through my career, god willing.

Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 1/24/2008 8:41 AM (GMT -7)   
HI Everyone!
 
Thanks so much for your posts!  I'm glad to hear that its not the inevitable course I thought it was.  I was getting really sad and frustrated at how this is affecting my work, but I guess I need to stay more positive and try harder. 
 
Thanks everyone for making me feel better.
 
And that is good advice about telling them I have it after I get a job!  Its hard enough to bring up with friends and family, let alone perfect strangers who you are still trying to make a first impression on. 
 
:)
 
Have a great day!
Diagnosed with UC 8 years ago
Asacol / 12 per day
Canasa / 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!)
Azathioprine / 100 MG Day
Levaquin 1 per day
Flogyl 1 per day
Diagnosed with Crohn's 6/26/2007
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2008 9:45 AM (GMT -7)   

Hey Pampers,

I had one other thought for you.  When the time comes to tell your new boss, maybe you can print off a copy of the article that "climbs" recently posted/wrote that was on the online Newsweek site.  I printed it off and shared it with alot of my co-workers and got alot of excellent feedback from them.  It really helped them to understand what I go thru daily.  Just a thought!


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 1/24/2008 12:27 PM (GMT -7)   
Pampers -
I just wanted to let you know to be optimistic about the Humira - I started it about 9 months ago and I have had great success with it and I am on most of the same prescriptions you are on, I have had crohn's for quite a bit longer than you but was getting to the point where I was wondering if I would be able to continue working the way I was. The urgency and accidents are a thing of the past for me now. Good luck. MB
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