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Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 1/23/2008 8:45 PM (GMT -6)   
Anyone here ever get mouth sores on their soft palate that hurt so bad you feel like you are getting a sore throat?   
Also when I get them, I sometimes feel like I am "coming down" with something.  Can anyone relate?
Thanks a bunch! 

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 1/23/2008 8:46 PM (GMT -6)   
There have been other posts about this problem and I think we all get them. I take lysine when I get them and they go away quickly. There were some other suggestions so I am sure that others will post them.

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Date Joined Nov 2003
Total Posts : 7056
   Posted 1/23/2008 9:12 PM (GMT -6)   
Oh yeah...when my CD used to flare so did the mouth sores [aphthous ulcers]. Some people actually get ulceration with granulation in the mouth just like that seen in the intestines. These ulcers are different in nature.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Elite Member

Date Joined Feb 2004
Total Posts : 20553
   Posted 1/23/2008 9:16 PM (GMT -6)   
I used to get them quite frequently on the roof of my mouth and they did hurt...I no longer get them since taking primadophilus reuteri probiotics daily.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 1/23/2008 9:19 PM (GMT -6)   
Yes! Before I was on Humira, I got them so very badly for years and years. I used to get them way at the back of my throat or even down my throat. They hurt so much and you really couldn't put anything on them there. At least the ones on the gums or under the tongue I could ease with Kenalog. Sorry you are going through this. The pain of those are awful.

Regular Member

Date Joined Nov 2006
Total Posts : 304
   Posted 1/23/2008 10:08 PM (GMT -6)   
I get them on my gums after a really bad flare and i swish mouth wash to help numb the sores, it does sting a bit but it really helps numb them so im not as 'aware' of them lol......mostly so i don't try to pop or burst them......but i only get around a half dozen at a time so i figure its not too bad
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 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 omega 3, digestive enzyme, calcium, vit d, flax oil, aloe vera juice, 9mg of entecort
 diagnosed with a CT scan september of 2007.

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 1/23/2008 10:13 PM (GMT -6)   
I have them as well and they can be quiet sore at times,the one thing that I have used to help with the is a mix of mylanta and mouth wash the helps to ease the pain up and in my case it helps them to heal as well.I hope you get some relief from them.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 1/24/2008 12:03 AM (GMT -6)   
I have 2 right now and one of them is on my soft palate. I am almost useless. Everytime I yawn the tissue stretches. It is incredibly painful and doctors don't think you need pain meds for these. I know it would take something strong because I've tried milder pain meds in the past (i.e. darvocet) and they only help a little Tylenol is useless. I haven't had bad mouth ulcers in a long time so this is very discouraging. When I used to get them years ago my pcp at that time gave me a steroid rinse which did help heal them but then I got to using it on a daily basis and that isn't so great.

And yes, indigosunrise, when I have them I do feel sick.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 1/24/2008 1:47 AM (GMT -6)   
I've been struggling with these for a while now. I've found a prescription cream that helps tons. It's called aphthasol. It cuts the healing time and also the pain. Great stuff... I get mine from my dentist, but I am sure a GI would prescribe it.

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 1/24/2008 8:55 AM (GMT -6)   
I get them when I'm having a bad flare. Super annoying because it hurts to even talk!
Diagnosed in October, 2003 at age 31.
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue

New Member

Date Joined Jan 2008
Total Posts : 5
   Posted 1/24/2008 12:25 PM (GMT -6)   
Has anyone heard of the sores not only effecting the mouth but also the lips? My lips would occasionally swell and turn really painful the year leading up to my Crohn's diagnosis. I would usually have a mouth sore or two also. Now, my lips only swell slightly and the pain is minimal.

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 1/24/2008 5:13 PM (GMT -6)   

Welcome Junco!

That sounds painful!  I myself haven't had sores on the outside of my lips but the corners of my mouth will crack (but I think that is probably from something different). 

I am sure someone on here will be able to answer that for you!

Take care and keep in touch!

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