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bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/24/2008 11:36 PM (GMT -7)   
Just wondering - any army or i guess military for that matter? was wondering how to get referred to a different doctor... i have a dr on post and i have a specialist off post but im not sure if i agree with the way he wants my treatment to go.... help? ty

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 1/25/2008 6:09 PM (GMT -7)   
I get my medical care at a military hospital with referral to outside specialists when there is no room in military specialty clinics.

Who are you disagreeing with? the military doc or the civilian one? I have become somewhat of a specialist in working the systen to get what I want. If you don't want to discuss particulars here, feel free to email me [click the envelope under my name on the left]. Otherwise, tell me what it is that you are trying to accomplish.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 1/25/2008 9:23 PM (GMT -7)   
are you active or retired? i dont really know if you have that option . if they contract out to a specific specialist , then maybe you might be stuck. does this specialist have others in his/her group? that might be an option. also would depend on where in the world you are at the moment. more coices in a city versus "armpit, third world" know what i mean?
randynoguts 



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upt0106
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 1/26/2008 7:48 AM (GMT -7)   
hey,
I'm active duty military (Air Force)...from my experience it depends on where you are...
If they have military specialists in the area, you have to see them. But it sounds like you are in a similar situation to what I've experienced. My primary care guy was a doc on base, but he was not a GI. So, first I was seeing a specialist at the local community hospital. After a while I thought I needed a new/second opinion. I switched (thankfully) to a different doctor at a University teaching hospital. It all worked out really well. I actually told the first specialist that I was seeing that I thought I needed a second opinion. He had no problem with that and gave me a couple of suggestions. i did some research and chose someone. The referral from my primary care doc had been for x # of visits to a Gi doctor over a period of x months. Tri care didn't care which GI I went to see, as long as they were tri-care approved, and as long as I didn't exceed my number of office visits allowed by the referral. (on that note, it was always easy for me to get a new or longer referral from my primary car military doc If I told him I needed it.)
So, that was when I was stationed near Boston, Mass. Now, I'm based out of San Antonio. They have 2 big military hospitals there, and they have GI specialists. Because of this, I don't get to choose who I see. Fortunately, I've been hooked up with a great Army GI doc. I would rather see him than any civilian specialists in San Antonio.
Anyway, hope that helped, let me know if you need more info...having Crohn's on active duty is a challenge, but definitely not impossible. I've been in for 8.5 years. 6 of those diagnosed with Crohn's. Just got out of the hospital here in DC (where I'm TDY for 6 months) after a partial obstruction. I went to the ER at Bethesda naval medical center...what a great facility!
-upt0106

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/26/2008 12:04 PM (GMT -7)   
I think a second opinion or possibly even a third is well worth the private pay just to see what your options are in case they are unwilling to refer you. But I think just requesting a second option is the first thing to do. After all no one should have surgery until they have been seen by two doctors (exception emergency). Why would you ask any less for chronic illness treatment?
Having said that there are limitations given some locations...
What questions are you having about your treatment?
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/27/2008 2:08 PM (GMT -7)   
My dr. on post is not a specialist and after he did the surgery on my fistula and got that all taken care of he told me he only needed to see me if i had anymore problems with that he referred me to a specialist here in Manhattan, KS and ive been seeing him for everything else like meds and all the other side effects. at his office its actually him and another guy who is the ACTUAL specialist the one that always trys to take care of me is a PA ive requested dr visits with both of them but it seems to me that the PA just takes any questions or concerns he has to the dr but i dont ever actually see the dr. all this stuff happened back in sept and since then ive been on what seems like a ton of drugs and im not sure if any of them are working and now i have all the side effects from the meds too.... everytime i tell them i have a problem he just wants to add another med to my already huge list. maybe this is normal i know alot of people with crohns just have to take different meds until they find what works but i feel absolutly powerless... and its my husband who is active army so im not even sure where to start.... also 1 more q ---- anyone heard of the exceptional family member program?? thanks for all your advice so far =)

 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/27/2008 11:03 PM (GMT -7)   
buckley - I have lots of suggestions for you and I do know about the exceptional family member program. Unfortunately, I am really tired tonight and feel I might forget something if I try to write. I'll come back tomorrow and try to let you know what I have learned in my 30+ years of dealing with the system.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/28/2008 8:20 AM (GMT -7)   
bckley,
I am in the little apple too (KSU grad student). Try the GI doc (Dr. Durafelt)(sp?) on Claflin Road near taco bell (it is a little strip that is the next road up the hill on the east side), it is about $160 to go see him. I am more then happy to talk with you. Feel free to email me (the envelope beneath my id).
Take Care,
Navy
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 1/28/2008 8:48:44 AM (GMT-7)


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/28/2008 3:22 PM (GMT -7)   
MMMNAVY said...
bckley,
I am in the little apple too (KSU grad student). Try the GI doc (Dr. Durafelt)(sp?) on Claflin Road near taco bell (it is a little strip that is the next road up the hill on the east side), it is about $160 to go see him. I am more then happy to talk with you. Feel free to email me (the envelope beneath my id).
Take Care,
Navy

Just let me say - Thanks for all your help! i really do apperciate it! the funny thing is that the GI dr that you were talking about is who i see currently.... Dr. Dierenfeldt and his PA is Robert Starnes....

 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/28/2008 3:27 PM (GMT -7)   
I actually doctor in Topeka and KC, he is just one I have seen in an emergency. I believe there is another one in town. For my GI stuff I use the VA in KC and KU Med.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/28/2008 3:30 PM (GMT -7)   
i will have to look into my options. How do i go about getting the refferal? who do i have to talk to?

 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/28/2008 3:32 PM (GMT -7)   
Your primary care should be able to do it. Have you had any interaction with Dr. Woods out on post? I have heard some good things about him, but sometimes doctors just have days that are not good.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/28/2008 3:39 PM (GMT -7)   
haha Dr. Woods was my surgeon. small world eh?

 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/28/2008 3:40 PM (GMT -7)   
that is funny! I am sorry let me check to get some more info.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 1/28/2008 3:43:43 PM (GMT-7)


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 1/28/2008 10:20 PM (GMT -7)   
If you are having trouble with getting the appropriate referrals, or want a second opinion, talk to the hospital "patient advocate." The one at the military hospital I use has been great in getting me the appropriate care and recommendations.

As far as the EFMP, are you thinking about having your spouse apply? Or are you just wanting info on it? Here is a good site with info on it: Exceptional Family Member Program
 
At one point, a long time ago, we thought about signing up for the EFMP. However, the program was new and we had concerns about career effects. From my reading today, I see that may be less of an issue than before. My case was not something that I really needed highly specialized care like perhaps a child with extensive handicaps might have. The reason my husband did not apply was that it might get him further unaccompanied assignments and we did not want to be separated. If an assignment cannot be found at a base that can provide appropriate care for the EFM, then the soldier can be sent unaccompanied. Not sure how it works now, but I knew some people that had to endure several almost back-to-back unaccompanied separations.


Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

Post Edited (Ides) : 1/28/2008 10:27:52 PM (GMT-7)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/28/2008 10:33 PM (GMT -7)   
Forgot to add - if you want to see the "real" doctor - not the PA, call up and schedule an appointment with the doctor. When they offer the PA, say no, it is time for you to see the doctor. Betting he is busy and there might be a bit of a wait. If that is the case, ask to be put on the cancellation list where they call you if someone cancels.

Also, don't hesitate to be a "squeaky wheel." When you are having medication reactions, call. The nurse will likely call you back. Make her listen. Tell her you feel like things are not improving and getting worse. Ask her if she can get you into see the doctor sooner because they normally leave a couple slots for the nurse to assign.

Just some tactics I have used in the past....
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/28/2008 11:21 PM (GMT -7)   
about the efmp my husband has brought it up a couple times and i guess he had talked to someone at work about it and they said because of all the meds and dr visits that he should sign me up... they sent him home with a packet that i was supposed to have my specialist fill out.... well i took it to my GI and he refused to fill it out stating that it was the armys job to fill this paperwork out and that i needed to go see my primary care doc. i was a little confused on the paperwork it specifically asked for my specialist and quite honestly my primary care doc has no idea.... ive never gone to see her for anything that had to do with my crohns. and the time i did go to see her for something else she wasnt very helpful. hmmm so even if im the one in the program does it still look bad for my husband? and have you ever heard of anyone in the program for crohns? to me it seemed a little drastic ... i could be wrong.... im so new to all of this (army and crohns) ..... i think im going to be a little more 'pushy' with the drs office about the PA thing.... we will see what comes of it =) thanks for all the help

 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/29/2008 7:38 AM (GMT -7)   
Oh dear Dr. D did that! I am so sorry. I should get some more info about a different GI for you today.

The old patient advocate was chris but I think he has gone back to NY, but I have the # (785) 239-7739.

IACHPatientRep@amedd.army.mil
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 1/29/2008 7:47:06 AM (GMT-7)


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/29/2008 12:14 PM (GMT -7)   
thank you! you have all been so helpful!

 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/29/2008 7:55 PM (GMT -7)   
sorry I didn't hear back today, but they were gone from the office today.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 1/29/2008 9:04 PM (GMT -7)   
thats quite alright! thanks

 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/1/2008 7:30 PM (GMT -7)   
Sorry am in hosptal will get it asap
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


Glad Bag
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Date Joined Mar 2007
Total Posts : 699
   Posted 2/4/2008 12:07 PM (GMT -7)   
Go KSU!
"The things that make us feel so abnormal, are actually the things that make us all the same" - from PostSecret: Extraordinary Confessions from Ordinary Lives - by Frank Warren


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/7/2008 5:00 PM (GMT -7)   
LOL gladbag!

Ok the other gi's name is DR. Starnes
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

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